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Type: Posts; User: Donkeyboy

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    Cycling the length of the uk for mnd

    Hi everyone, i dont know if this is the right place to post or if i'm allowed but, i'm cycling from john ogroats to lands end to raise money and awareness for mnd.
    Please click on my gofundme page...
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    Andy I still go to my gym but, it seems to have...

    Andy
    I still go to my gym but, it seems to have affected my left trapezius to the point it pulls in my throat and makes me feel like i'm choking. I also get occasional big noticeable twitches on the...
  3. Thread: In Denial

    by Donkeyboy
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    I am 2ith you on this, i am in complete denial...

    I am 2ith you on this, i am in complete denial over my mnd. All my adult life i've been a firefighter in London, a powerlifter for GB keen sportsman in many ways. Yes my right arm is not far off...
  4. Fasciculations": how long have you had them without muscle or strength loss?

    Hi all.
    If i didn't have fasciculations i could literally forget i have MND ( occasionally). My main mental torment personallly is the worry of when that next muscle is going to waste and the...
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    Lol. I dont actually mind it myself shaun! Just...

    Lol. I dont actually mind it myself shaun! Just hoping it doesnt mean things are going rapidly!!!?
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    Cheers jay. Well at least others seem to say they...

    Cheers jay. Well at least others seem to say they have it, well heres for hoping i have it 10 years with no muscle/strength loss!!!
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    Tingling down back of lower legs

    Hi all, hope you are enjoying the beautiful weather?
    Even though i have limb onset in my arms, i have twitching here and there over most of my body, mainly right pecs(chest) . Other body parts,...
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    Timm are you saying you couldnt get on the trial...

    Timm are you saying you couldnt get on the trial or, you can't get tudca??
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    Hey beemer, how similar we sound! Riddem...

    Hey beemer, how similar we sound! Riddem motorbikes on and orf road all my life! Hntil i got smashed off at the pelican crossing at the top of trinity road near wandaworth bridge 13th september 2018....
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    We went to one of my besties for an illicit...

    We went to one of my besties for an illicit barbeque 6 up today! Is that ok????🤪
  11. Thread: New Guy :)

    by Donkeyboy
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    Welcome to you matey, good luck to you. 💪💪💪💪

    Welcome to you matey, good luck to you. 💪💪💪💪
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    Same prob!

    Same prob!
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    MND reversal in the UK! Does anyone know of this?

    I recently emailed Dr Richard Bedlack to ask him if he knew of MND reversals in other countries other than the good ole US of A. As the talk i seem to hear/read is always from there.
    This was his...
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    Hi all, As with all clinical trials, the end...

    Hi all,
    As with all clinical trials, the end timescale is always going to be longer as a rule due to not getting the numbers required, i'm on the mirocals trial and up to january they only had just...
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    Hello to everyone! 😓

    This is my first post, i am 49, live in Beckenham, diagnosed 10th july 2019 with limb onset at Kings College after having twitching in my right bicep and tricep back at the beginning of 2016.
    I am...
  16. Praying for you my friend! X

    Praying for you my friend! X
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