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    Yes, it is a progressive disease. A gene test...

    Yes, it is a progressive disease. A gene test will provide an in depth analysis of the underlying pathology. You may notice clonus after a hard game.
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    Get a gene test Andy. I too was read Last Rites...

    Get a gene test Andy. I too was read Last Rites in 2012. There are many many MNDs all with different symptoms. Ellie has problems with men in general and often rude.
  3. Thread: Please help.

    by Graham
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    Look into Lyme disease.

    Look into Lyme disease.
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    Hi Lynne, Sorry for the tardy reply. Good to...

    Hi Lynne,

    Sorry for the tardy reply. Good to hear you are getting out. Sounds like a lovely part of the world you visited.

    The hot weather always knocks me for six. Looking forward to a St....
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    Hi Lynne, i hope you are keeping well in this...

    Hi Lynne,

    i hope you are keeping well in this hot weather.

    Love Graham
  6. Thread: Telling Family

    by Graham
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    For reasons of 'Health and Safety', he must...

    For reasons of 'Health and Safety', he must inform his workplace. He may then apply for AtW.
  7. Thread: Lost

    by Graham
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    Thanks Jackie. There is a lot of ignorance about,...

    Thanks Jackie. There is a lot of ignorance about, even in this country.

    There was a human genome project that I took part in. My father's side has been plagued by neuro pathology, although no one...
  8. Thread: This forum

    by Graham
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    Yes, I too am totally disillusioned with this...

    Yes, I too am totally disillusioned with this forum unfortunately. It only caters for a narrow viewpoint and there is a small group of individuals eager to troll dissenters from other viewpoints....
  9. Thread: Lost

    by Graham
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    I am someone with this awful disease and 'Is it...

    I am someone with this awful disease and 'Is it Karma?' or 'Is it genetics?' is a relevant question. I believe the latter being agnostic.

    Of course, I wish you well on this journey of ours but I...
  10. Thread: Lost

    by Graham
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    Ellie, You are quite naive. How are people...

    Ellie,

    You are quite naive. How are people with MND supposed to read Jackie's comment? Please explain?

    People should realise that in many parts of the world people with MND are seen as...
  11. Thread: Lost

    by Graham
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    I know for my sins, I am too analytical and...

    I know for my sins, I am too analytical and believe in science. I do try to help people, however you must ask Andy if he has had any impure thoughts or question your religious beliefs.

    Graham
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    Very important to know what MND you have. Get a...

    Very important to know what MND you have. Get a gene test.

    This informs you how much time you have to get a care package in place but the safe assumption is to act fast.
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    What would a good care app include?

    Please feel free to give any thoughts or dreams on what features on what a good care app would include.
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    Hi Barry, I'm sorry to hear that your MP is...

    Hi Barry,

    I'm sorry to hear that your MP is not helping you. I rely heavily on the office of Rebecca Long-Bailey MP and I would really struggle otherwise.

    On this occasion, the home visit...
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    The pneumonia I had kept returning and so after 5...

    The pneumonia I had kept returning and so after 5 courses of antibiotics, I have sought my MP's support and got put on stronger antibiotics.

    I would like to be tested for covid-19 but I can...
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    We just need a COMPETENT Government that can...

    We just need a COMPETENT Government that can organise minimum 100,000 tests per day as promised.

    Iain Duncan Smith MP said we have 'The capacity' to do 100,000 test in his weasel words yesterday,...
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    Hi Doug, Barry, You have a lot of catching up...

    Hi Doug, Barry,

    You have a lot of catching up to do on songs Doug. lol. Here is another one that may spark more memories.

    https://www.youtube.com/watch?v=dCYApJtsyd0

    Yes Barry, such a waste...
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    Hi Barry, Doug, Yes, sore 4 kitty n now Terry....

    Hi Barry, Doug,

    Yes, sore 4 kitty n now Terry. In the year 2020.

    Another classic doom...

    https://www.youtube.com/watch?v=aZT_OxPRmSw
  19. Thread: Terry

    by Graham
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    Truly awful news about the passing of Terry. ...

    Truly awful news about the passing of Terry.

    Terry was of a vintage stock. He was kind, empathetic and had good banter.

    Terry held this forum together singlehandedly.
  20. Thread: Terry

    by Graham
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    Hope you pull through Terry. Fight hard. You...

    Hope you pull through Terry. Fight hard.

    You are in my thoughts and prayers.

    All my love, Graham.
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    Hi Barry, There is no advice for people who...

    Hi Barry,

    There is no advice for people who have had it. My carers and I have all the highlighted symptoms and a young carer still has pneumonia I think. i have not been tested and this...
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    Hi Lynne, Hope you are ok and your husband is...

    Hi Lynne,

    Hope you are ok and your husband is behaving. My pneumonia has dried up and gone for now having had the double-barrelled antibiotics.

    My social worker took the time to try and...
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    Definitely YES, we are SHIELDED. Definitely...

    Definitely YES, we are SHIELDED.

    Definitely YES, your carers MUST attend people with MND and SHIELD themselves and their children.
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    My carers been calling 111 but not interested...

    My carers been calling 111 but not interested unless you are dying. Finally got to see the GP today.

    Nearly 4 weeks into covid and the pneumonia is still persisting albeit being much improved from...
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    Government now wants to shield me and you. Six...

    Government now wants to shield me and you. Six weeks too late for me but how the heck do you SHIELD people that need close intimate care?? WTF are these highly paid top brains of the country...
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