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  1. Replies
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    Hi Dude, Thank you for being busy looking for...

    Hi Dude,
    Thank you for being busy looking for houses for us. Some nice ones there, unfortunately a bit out of our price range. We have an option of buying a house from a family member, so when we...
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    Thanks everyone. I think we are going down the...

    Thanks everyone. I think we are going down the house route as we can get more for our money. Unfortunately we need to stay near the city for the kids going to school, we don't want to change things...
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    Wet room

    Hi all,
    We are beginning to think ahead with a view to buying a property which will suit us in any eventuality. When we are looking, what sort of space is needed for a wet room? Also, how many...
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    At last a positive experience with our...

    At last a positive experience with our neurologist, a meeting with the mnd specialist nurse, a referral to Sheffield AND a prescription for riluzole. Just wish work would get a bit easier. Not sure...
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    Still no referral to Sheffield Barry,...

    Still no referral to Sheffield Barry, unfortunately it is with Dr Unpleasant -Rude at our local hospital. The SLT did tell us he normally refers to Sheffield though, the only light at the end of our...
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    Hi Smiles, I've not been on for a while, we...

    Hi Smiles,
    I've not been on for a while, we recently moved back to the UK and I have started a new, very stressful, job. I got this before my husband was diagnosed with mnd/als. We have two kids 13...
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    Feeling down

    Just having a bit of a down time at the moment. Have started my new job, which is keeping me more than busy (16 hour day today!), but I am missing my own personal support network. Two full months...
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    That is great! We will have to begin house...

    That is great!
    We will have to begin house hunting soon. Did you find it easy enough to get a suitable property?
    Enjoy your shower!
    Gill x
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    Yes fish, pets - finally after 4 years, hours of...

    Yes fish, pets - finally after 4 years, hours of begging and pleading letter writing, she has got a pet!
    Gill x
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    We went to York Barry. The consultant didn't seem...

    We went to York Barry. The consultant didn't seem to be a mnd specialist and actually asked whether we had really seen proper neurologists in Germany. We were really taken aback!
    Who would we need...
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    Happy Birthday Dude! It is our youngest son...

    Happy Birthday Dude!
    It is our youngest son birthday today too, so we have been flat out giving her a great day. She has finally got some fish, so can sleep happily at last!
    Gill x
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    At a bit of a loss...

    We saw the UK neurologist today, and we're expecting to be quickly taken on and pointed in the direction of the services we needed, it didn't quite work out like that though.
    As Lee is still so...
  13. Replies
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    It feels like a ton of bricks doesn't it? We are...

    It feels like a ton of bricks doesn't it? We are setting ourselves little achievable goals, and trying to live as normal a life as possible.every day/week at a time.
    When were your first symptoms?...
  14. Hi Denise, We are in the same boat, it is my...

    Hi Denise,
    We are in the same boat, it is my husband just diagnosed. We see the UK neurologist for the first time on Wednesday, not sure what that will entail, but Dude tells me a lot will be...
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    Welcome Denise, I am new here too. My husband...

    Welcome Denise,
    I am new here too. My husband was diagnosed a couple of weeks ago. I found this site very quickly, and joined before his diagnosis. I can't imagine life without it now. It is really...
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    Dude, I read the article in the Mail, the lady...

    Dude,
    I read the article in the Mail, the lady said she was having to pay for private physio and that is what was keeping her going.
    Philip, my husband Lee was diagnosed in Germany, after a week...
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    I was a bit shocked that she was only given a...

    I was a bit shocked that she was only given a couple of physio sessions before being signed off. Is that everyone else's experience? In Germany my husband was getting a couple of sessions a week. We...
  18. That is interesting Graham, makes sense from our...

    That is interesting Graham, makes sense from our experience too. It is strange getting used to my husband being more emotional, but thinking back, it has been going on for a couple of years now. In...
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    Glad you are feeling more upbeat. This forum...

    Glad you are feeling more upbeat. This forum really is a lifeline!
    Gill x
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    Much love to you Shellby, and you Christoff! I...

    Much love to you Shellby, and you Christoff! I can't imagine life feeling much worse than the mnd diagnosis, but life has a way of making things even more difficult. What I do know is that you will...
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    Hi all, Thank you once again for the kind words....

    Hi all,
    Thank you once again for the kind words. After a week we are finally able to see something that resembles a home. How can we have so much stuff?
    We are booked onto the conference in York....
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    No Joycie, it isn't. Hopefully it will be sorted...

    No Joycie, it isn't. Hopefully it will be sorted soon.
    Waiting for our furniture to arrive in the UK!
    Gill
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    Thinking of you at this difficult time. Gill

    Thinking of you at this difficult time.
    Gill
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    Becoming a member of the forum

    Hi,
    Not sure who to contact about this, but my husband, who was diagnosed with mnd/als two weeks ago, has been told he does not meet the 'membership requirements' to join the forum. Just wondering...
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    Have out this in the wrong section, will copy and...

    Have out this in the wrong section, will copy and past in the 'support' section.
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