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  1. Replies
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    Onwards & upwards Dina! There are various...

    Onwards & upwards Dina!

    There are various different feeds - higher calorie, protein, fibre, fat and soya based - so I'm sure you and the dietitian will find a suitable one, though I hope you...
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    That arm looks way cool Chas, looking forward to...

    That arm looks way cool Chas, looking forward to hearing how it works for you x
  3. Harry, you need to relax mate - I mean that...

    Harry, you need to relax mate - I mean that kindly - you'll drive yourself demented with this worry.

    First signs of limb onset is not being able to do something, for example, button a shirt,...
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    Sleeping on your side wouldn't be a problem Mick,...

    Sleeping on your side wouldn't be a problem Mick, the tubing (giving set) is long enough.

    The big advantage of pump feeding is that it's plug in and go, meaning you or your carer don't have to...
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    Mick, I use the pump overnight twice per week...

    Mick, I use the pump overnight twice per week and I have to say it doesn't interupt my sleep at all.

    It is very quiet and will happily run on a full battery all night. I cannot move, so the...
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    Dina, did they not ease you into the overnight...

    Dina, did they not ease you into the overnight feeds? (Nutrison?) The Nutrison is very different to Fortisips.

    At the risk of sounding 'preachy', as with all feeds, your system will get used to...
  7. Hi Harry, I am so sorry about how MND has...

    Hi Harry,

    I am so sorry about how MND has affected your family.

    My advice is similar to Rachel’s above.

    You are young to show signs of Familial MND, but I totally understand why you are...
  8. Thread: Rch4

    by Ellie
    Replies
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    88,737

    Actually Doblett, that IS correct. As you...

    Actually Doblett, that IS correct.

    As you are a new member who mainly posts on this thread which you started, I would not expect you to have realised that is how the Forum operates on a...
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    Thanks for clarifying which category of grant...

    Thanks for clarifying which category of grant it'd fall under Rachel.

    Love Ellie.

    PS. You certainly don't need to apologise to me for intruding, if you can call it that. I'd much rather Chas...
  10. Thread: 10k

    by Ellie
    Replies
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    Gosh Lynne, even with the no-shows from injuries,...

    Gosh Lynne, even with the no-shows from injuries, there were quite a few running in your honour !! x
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    Sorry Chas and Barry. There weren't any posts...

    Sorry Chas and Barry.

    There weren't any posts when I started my reply, but I got distracted by a needy dog and didn't realise Barry had given the same advice by the time I got to post my reply ...
  12. Thread: 10k

    by Ellie
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    Hi Lynne, You may need to be in the 'Full...

    Hi Lynne,

    You may need to be in the 'Full Site' version of the Forum, I don't know if you can do it on the 'Mobile' version - I can't see a way how, but I don't use the phone version of the...
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    Chas, I've no personal experience of it but,...

    Chas, I've no personal experience of it but, searching the Forum, people who used it seemed happy with it (they didn't say who paid for it unfortunately)

    Just thinking, if you wanted to buy a...
  14. Thread: 10k

    by Ellie
    Replies
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    1,017

    Good for them - you must be proud of them all...

    Good for them - you must be proud of them all Lynne.

    Hope they got on well.

    Love Ellie.
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    Good to hear that things are settling down Mick ...

    Good to hear that things are settling down Mick - it could've been the after effects of the enema and the whole change of regime, who knows?? :rolleyes: Keep an eye on it, though...

    And...
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    Sorry to hear that Douglas is back in hospital,...

    Sorry to hear that Douglas is back in hospital, Chrissie - it's very distressing for you to hear the "make him comfortable" phrase... :(

    Hopefully those antibiotics will do the job. Is he...
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    Not Mealtime Reading!!

    Hi Mick,

    Sorry to read about your current woes - it must be stressful for you.

    Yes, any change in diet / food intake can upset the often delicately balanced bathroom routine

    Some...
  18. Thread: Walkers

    by Ellie
    Replies
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    1,630

    Oh Lynne, thank you so much for brightening up my...

    Oh Lynne, thank you so much for brightening up my day and making me chuckle!

    Ear wax :D:rolleyes::rolleyes: He has no excuse now and had better hear you loud & clear. If not, chase him with the...
  19. Thread: Ventilation

    by Ellie
    Replies
    137
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    11,624

    Hi Devonmaid, I wonder if overnight pump...

    Hi Devonmaid,

    I wonder if overnight pump feeding may suit your husband better? It's certainly more convenient and less labour-intensive than multiple manual feeds throughout the day, which would...
  20. Thread: Weakening wrist

    by Ellie
    Replies
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    303

    Hi Trevor, I'd start by asking your OT and...

    Hi Trevor,

    I'd start by asking your OT and hopefully they'll give you something suitable which will solve your issue.

    There are lots of different supports and braces, it's hard to recommend one...
  21. Thread: Ventilation

    by Ellie
    Replies
    137
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    11,624

    And maybe go a lot slower with the Fortisips too ...

    And maybe go a lot slower with the Fortisips too - if you don't need to be tube fed right away, you've the luxury of taking time to get used to new food. I agree that 200ml water at the same time...
  22. Thread: Hello

    by Ellie
    Replies
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    Hi Chris and welcome to the club nobody wants to...

    Hi Chris and welcome to the club nobody wants to join - crikey, you're lucky you are still alive to join us, after your unscheduled swim!!

    Making that first post is the hardest post to make,...
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    Hi Sarah and a warm welcome to you and Sue (and...

    Hi Sarah and a warm welcome to you and Sue (and to the 4-legged pets :))

    There is nothing comforting I can say about losing one's speech, I'm afraid. I always say (with experience) that I'd...
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    Renewals are done online Dina, so you shouldn't...

    Renewals are done online Dina, so you shouldn't need to post your current one back.
  25. Thread: Ventilation

    by Ellie
    Replies
    137
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    11,624

    I thought as much Dina :( Can I ask how much...

    I thought as much Dina :(

    Can I ask how much of what you're getting and do they push it in with syringe plunger or is it gravity flow?

    Love Ellie.
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