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  1. Replies
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    Hello Dina, After Terry’s tale of wind, I...

    Hello Dina,

    After Terry’s tale of wind, I relate my weekend which I hope is more uplifting (wind required).

    We set off on Friday for a 140 mile drive to Newbury where we spent the night to...
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    Flu vaccination

    Hi everyone,

    I was reminded that it will soon be flu season when I went to my surgery yesterday. Most surgeries are starting the flu vaccination in September and it is important for those with MND...
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    Hi Sue, I’m sorry to hear that Steve is in...

    Hi Sue,

    I’m sorry to hear that Steve is in hospital and please give him my best wishes. I did miss our usual chat at the last meeting.

    I agree with Lynne that the care agency should insist that...
  4. Thread: Hi Everyone

    by Barry52
    Replies
    8
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    527

    Hello Adam and welcome. If you have looking in...

    Hello Adam and welcome.

    If you have looking in for a while you will probably have got to know some of us and no doubt you have a sound understanding of MND. I always feel sad to hear about people...
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    Hi Andy, I am pleased you have been ruled out...

    Hi Andy,

    I am pleased you have been ruled out of any heart disease since dealing with MND is enough.

    QMC hospital in Nottingham has a care centre for MND as has Sheffield if you move further...
  6. Thread: Duty of care?

    by Barry52
    Replies
    30
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    2,078

    Hello Dina, I have just read about your...

    Hello Dina,

    I have just read about your predicament and like others I am appalled at how the system is failing to meet your needs. I hope the powers that be can fast track your application for...
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    Kayleigh I’m laughing my socks off at the...

    Kayleigh

    I’m laughing my socks off at the only fools and horses sketches and I should have remembered to put my mug of tea down before spilling it down my shirt. I think CC will get the humour in...
  8. Thread: Pain/Agony

    by Barry52
    Replies
    48
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    2,773

    Hi Devonmaid, I hope Tony is more comfortable...

    Hi Devonmaid,

    I hope Tony is more comfortable today. I agree with you that we often experience pain and Terry sums it up well. I think the information on the MNDA website is misleading.

    Barry
  9. Thread: collection

    by Barry52
    Replies
    9
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    596

    That’s great news Sheila and the generous...

    That’s great news Sheila and the generous donations in Mick’s name will help others.

    Barry x
  10. Replies
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    Good morning friends, Kayleigh - I would not...

    Good morning friends,

    Kayleigh - I would not be allowed to comment on the goings on within this forum. We did have a captain Peacock who was known as a floor walker and responsible for looking for...
  11. Replies
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    I worked in a large department store in the early...

    I worked in a large department store in the early 70’s and the comedy that Kayleigh refers to was so typical of daily life at work. I was a young department manager with staff of juniors and older...
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    Hi Helen, Many nursing/care homes don’t have...

    Hi Helen,

    Many nursing/care homes don’t have the experience of dealing with residents with MND and I understand how a search on the internet can be frustrating. I suggest you contact MND connect...
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    Vicky, I don’t believe an assessment is required...

    Vicky, I don’t believe an assessment is required to use a convene as they can be purchased in a pharmacy or on the internet.

    Barry
  14. Replies
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    1,158

    Hi Vicky, As an alternative to urine bottles...

    Hi Vicky,

    As an alternative to urine bottles your dad could use a sheath. I know a few people who find them useful.
    ...
  15. Thread: after the fall

    by Barry52
    Replies
    7
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    660

    Hi Kate, Sorry to hear that you have injuries...

    Hi Kate,

    Sorry to hear that you have injuries following a fall. In answer to your original question it is not unusual to have a weakness in our limbs which may result in a fall. Safety first is...
  16. Thread: Hi all

    by Barry52
    Replies
    3
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    350

    Hello and welcome Richard. You can rest...

    Hello and welcome Richard.

    You can rest assured that you will find advice and moral support from pwmnd and their carers on this forum.

    Best wishes,
    Barry
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    Hello Scotty and welcome to the forum family. ...

    Hello Scotty and welcome to the forum family.

    Sorry to hear that your diagnosis was confirmed as MND and the proposed lumber puncture is only one of several methods involved in the diagnosis but...
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    Hi Andy, I fully understand your dilemma as I...

    Hi Andy,

    I fully understand your dilemma as I went through the same process 7 years ago, albeit probably too early in my case. We had our dream retirement house in the city centre when I was...
  19. Thread: Quick Hello

    by Barry52
    Replies
    9
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    839

    Hello StandardBeatz and welcome. As others...

    Hello StandardBeatz and welcome.

    As others have said you only have to ask and someone will reply to your questions. Here is a link to the tutorial compiled by our good friend Lee aka onein300.
    ...
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    Hi Hayls, You mentioned medications and I...

    Hi Hayls,

    You mentioned medications and I assume you are taking antidepressants such as citalopram. I find it has helped me control the spontaneous laughter or crying. As Dina said, the guests...
  21. Thread: Good news

    by Barry52
    Replies
    111
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    7,143

    Hi Lynne, Great news with your wheelchair. Of...

    Hi Lynne,

    Great news with your wheelchair. Of course as a driving instructor you will have no issue with spacial or traffic awareness. Make sure you get your husband to reach the difficult items....
  22. Thread: Muscle spasms

    by Barry52
    Replies
    13
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    1,117

    Hi Panniertank, Is it possible that you have...

    Hi Panniertank,

    Is it possible that you have done some damage when you fell recently? I have noticed that my cramps have worsened since I fell 4 weeks ago and the doctor said it was a result of...
  23. Thread: Ventilation

    by Barry52
    Replies
    90
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    6,895

    Hi Dina, That’s great news that you can...

    Hi Dina,

    That’s great news that you can tolerate the mask overnight and a significant improvement in your CO2 levels. Although as yet I have no serious breathing issues, my neurologist at...
  24. Hi Ellie, I agree the sample is tiny and as...

    Hi Ellie,

    I agree the sample is tiny and as Doug says the results following the trial may be more conclusive. I did consider this when typing my post and as with people who have led an active...
  25. Thread: Jude

    by Barry52
    Replies
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    834

    Hello Jude11 and welcome. I’m sorry to hear...

    Hello Jude11 and welcome.

    I’m sorry to hear that you have recently received this diagnosis and your head must still be spinning. As Dina has said you will find support and advice here from our...
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