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  1. Replies
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    Hi Debbie, Thank you. Luckily I haven't had to...

    Hi Debbie,

    Thank you. Luckily I haven't had to resort to cricket *phew

    I don't know about anyone else but, since developing MND, I hardly notice when the weather is hot. Before MND I couldn't...
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    Hi Kayleigh and Sheila, Actually, I'm not able...

    Hi Kayleigh and Sheila,

    Actually, I'm not able to brush my teeth or wash my face any longer. And I haven't been able to wash myself for a few months. I'm like the Queen: someone has to do those...
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    Hi Barry, Of course I don't mind you talking...

    Hi Barry,

    Of course I don't mind you talking about your lovely weekend. I am always envious of those sitting in miles and miles of traffic jams, Ha ha ha. Presumably you were on the A303 and the...
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    Oh no, so now we are descending into the realms...

    Oh no, so now we are descending into the realms of toilet humour!!!
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    Hi Sheila, I shall show my grandson your...

    Hi Sheila,

    I shall show my grandson your message as he loves football and I hate it. He often wears his football kit when he comes to visit, because he knows I don't like it. He also tries to wear...
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    Hi Ellie, The visitors are much quieter than...

    Hi Ellie,

    The visitors are much quieter than when I was on this ward previously, so there hasn't been a problem.

    The staff are lovely - lots of real characters.
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    I love that song - it's so great to sing at the...

    I love that song - it's so great to sing at the top of one's voice! I've always told my sons (who used to beg me to stop singing it!) that it has to be played at my funeral, so that they know it's me...
  8. Thread: Walkers

    by Gillette
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    Hi Lynne, Thanks for asking. I'm not doing too...

    Hi Lynne,

    Thanks for asking. I'm not doing too badly, thank you. I'm likely to be in here until around 6 or 7 September as they are unlikely to be able to get a care package set up by next...
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    Hi Pannier Tank, Sorry that you are feeling so...

    Hi Pannier Tank,

    Sorry that you are feeling so down. Have you asked at your MND clinic for a referral to the Community Palliative Care Team? Alternatively, you could ask your GP for a referral....
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    That was brilliant, Terry. I particularly enjoyed...

    That was brilliant, Terry. I particularly enjoyed all the references to wind! Who knew it could be so fascinating?
  11. Thread: Walkers

    by Gillette
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    431

    Lynne, is Natalie your physio? I know she and...

    Lynne, is Natalie your physio? I know she and Jennie are both in the unofficial MND community team (as part of the Community Palliative Care Team). So it may well be as Terry said that it comes from...
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    Becoming a tad bored.

    Good morning all.

    It's a beautiful sunny morning here at Wythenshawe Hospital. The only cloud on the horizon is that I am getting a bit bored. My arms and hands are not playing nicely so...
  13. Thread: Duty of care?

    by Gillette
    Replies
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    2,078

    Hi Ellie, The anaesthetist for the other...

    Hi Ellie,

    The anaesthetist for the other procedure is the one in France. And he is going to use a spinal not a GA. I think, for the PEG, I use the Nippy and have some sort of sedative, but I will...
  14. Hi Andy, I can no longer put my card into an...

    Hi Andy,

    I can no longer put my card into an ATM, neither can I enter my PIN.

    I cannot reach to post a letter in a Royal Mail post box.

    Writing is a challenge because my arm wonít move along...
  15. Thread: Duty of care?

    by Gillette
    Replies
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    2,078

    Thatís true. Mind you, thereís no chance of the...

    Thatís true. Mind you, thereís no chance of the second procedure being brought forward as the anaesthetist is in France!
  16. Thanks for the clarification, Ellie. I am...

    Thanks for the clarification, Ellie.

    I am hoping my partner will bring my ipad in tomorrow so that I can start looking at ADRT etc in more detail.
  17. Thread: Hi Everyone

    by Gillette
    Replies
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    Hi Adam and welcome to the forum but sorry that...

    Hi Adam and welcome to the forum but sorry that you have this horrid disease.

    I am pleased for you that being in the hospice is meeting your needs at the moment. I donít envy you having to make...
  18. Hi Ellie, you mentioned FTD in one of your posts....

    Hi Ellie, you mentioned FTD in one of your posts. I wonder if you would tell me what it is, please? Thanks.
  19. Thread: Duty of care?

    by Gillette
    Replies
    30
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    2,078

    Thanks, Doug. Thanks, Ellie. I donít mind...

    Thanks, Doug. Thanks, Ellie.

    I donít mind being an in-patient - at the moment it is the best place for me. The last three weeks have been very difficult for all sorts of reasons and taken their...
  20. Thread: Duty of care?

    by Gillette
    Replies
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    2,078

    Thanks, Lynne. The staff have been lovely. Peter...

    Thanks, Lynne. The staff have been lovely. Peter and I agree that being admitted was a good thing. It may well be that I stay in until 02 September when I am scheduled to have a PEG fitted and...
  21. Thread: Duty of care?

    by Gillette
    Replies
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    2,078

    Thank you. Hugs always gratefully received. My...

    Thank you. Hugs always gratefully received.

    My OT emailed yesterday to say that the wheels have started turning for a fast-track application for CHC funding.
  22. Thread: Duty of care?

    by Gillette
    Replies
    30
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    2,078

    Thank you for your support, everyone. I canít...

    Thank you for your support, everyone. I canít tell you how welcome it is.
  23. Thread: Duty of care?

    by Gillette
    Replies
    30
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    2,078

    Hi Everyone, I had an appointment at...

    Hi Everyone,

    I had an appointment at Wythenshawe Hospital this afternoon. When they heard how things have been they suggested I be admitted and I agreed so thatís where I am for the time being.
  24. Thread: Duty of care?

    by Gillette
    Replies
    30
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    2,078

    Hi Ellie, Thank you. The jobsworth who dumped...

    Hi Ellie,

    Thank you. The jobsworth who dumped was my social worker!!! I have had contact with the hospice but not with their social worker. One of their nurses is due to visit me on Thursday,...
  25. Thread: Duty of care?

    by Gillette
    Replies
    30
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    2,078

    Hi CC, Thank you for your support. I did try...

    Hi CC,

    Thank you for your support. I did try MND Connect but without success.
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