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  1. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    I’m loving the Kate Bush song and it’s great to...

    I’m loving the Kate Bush song and it’s great to see it linked with Benny from Top Cat.

    Barry x
  2. Replies
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    116

    Thanks for sharing CC. I’m sure with Brian’s...

    Thanks for sharing CC.

    I’m sure with Brian’s high profile he will raise awareness and money to fund further research.

    Barry x
  3. Replies
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    3,428

    Hi Lynne, I had a thought about person to...

    Hi Lynne,

    I had a thought about person to person alert systems which are good for vulnerable people like us. I use a wristband alarm which is managed by Saga. It is linked to my landline so only...
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    3,428

    Hi Lynne, I hope you have not sustained any...

    Hi Lynne,

    I hope you have not sustained any serious injuries and it may be worth checking it out. I know that feeling of panic after a fall. As you mentioned when we do something that distracts us...
  5. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    Great to hear that you are home at last Terry and...

    Great to hear that you are home at last Terry and you now have creature comforts such as internet and a good lady to look after you. I hope you get back to “normal” and can spend some time with...
  6. Replies
    6
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    571

    Hi Shaun and welcome. You have a positive...

    Hi Shaun and welcome.

    You have a positive attitude and this will help you. I was a keen golfer and I regret not being able to play anymore but occasionally I pop in to the 19th hole.

    Best...
  7. Replies
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    29,909

    In honour of Dina I also post celebrating the...

    In honour of Dina I also post celebrating the good things. We are currently enjoying a weekend break at a Warner’s hotel in Cheshire. This break is ideal for people with disabilities and it lifts my...
  8. Thread: Nervous newbie

    by Barry52
    Replies
    7
    Views
    684

    Hello Boden and welcome to the forum family. ...

    Hello Boden and welcome to the forum family.

    Iím sorry to hear that your dad has been diagnosed with MND. You will gain lots of support and knowledge from members here and similarly for your dad...
  9. Replies
    41
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    2,823

    Similarly that Sheffield, another centre of...

    Similarly that Sheffield, another centre of excellence is excluded. I understand that people like me with slow progression are difficult to measure in drug trials but I hope that if they find a...
  10. Replies
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    2,823

    Here is the link for registration. I hope that...

    Here is the link for registration. I hope that the uptake is high as they need several hundred participants to measure results.

    https://www.mnd-smart.org/about/participant-information

    Barry
  11. Thread: London Eye

    by Barry52
    Replies
    1
    Views
    292

    Hi Paul, ...

    Hi Paul,

    https://www.euansguide.com/reviews/results/?categories=1129&location=Lambeth%2c+London%2c+London%2c+United+Kingdom&pagenum=2&sortby=NumberOfReviews&scroll=results

    Check out the above...
  12. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    Love it Terry and you haven’t lost your sense of...

    Love it Terry and you haven’t lost your sense of humour despite your situation.

    Love,
    Barry
  13. Replies
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    714

    Hello and welcome Lynne. There is nothing I...

    Hello and welcome Lynne.

    There is nothing I can say that will ease the burden you find yourself in other than we are here to listen and offer advice or moral support.

    I hope that the support...
  14. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    I also thought “granddad” was some ancient chap...

    I also thought “granddad” was some ancient chap related to Terry and then I met Richard when he brought TC to a meeting in Cambridge a few years ago. To have a friend like Richard is a blessing and I...
  15. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    I’ve been thinking of you Terry and how bored you...

    I’ve been thinking of you Terry and how bored you must be. I thought it might be a good idea to make a playlist of the music you posted on the wonderful thread started by Big Gee aka Graham. This is...
  16. Thread: Bob Adams

    by Barry52
    Replies
    6
    Views
    1,145

    Hi Lynne, I hope you are having a good day. In...

    Hi Lynne,

    I hope you are having a good day. In answer to your question to Bob I attach a link which shows the benefits of various supplements, including curcumin. The list is published by...
  17. Replies
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    937

    Hi Sarah, I used a few different types of...

    Hi Sarah,

    I used a few different types of beach wheelchairs last year on holiday. Providing you have core strength you should be okay. The ones with the big inflatable wheels are good if the sand...
  18. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    Oh my dear Terry. Not only was your Christmas...

    Oh my dear Terry.

    Not only was your Christmas spoiled but New Year hasn’t got off to a good start for you. I suspect your dear wife is run ragged back and forth to visit you. I hope they are...
  19. Thread: Bob Adams

    by Barry52
    Replies
    6
    Views
    1,145

    Welcome Biker Bob, From what you say you...

    Welcome Biker Bob,

    From what you say you appear to have a positive approach which will help you with the challenge this disease brings. Exercise is important but as Ellie says, be aware of your...
  20. Thread: Dina RIP

    by Barry52
    Replies
    17
    Views
    2,478

    I am saddened to hear that we have lost another...

    I am saddened to hear that we have lost another warrior in Dina. The lady was a shining light through her positive posts and even with all the adversity she had to face during her stay in hospital,...
  21. Thread: New

    by Barry52
    Replies
    48
    Views
    9,243

    Hi Jo Jo, It is quite common with MND to...

    Hi Jo Jo,

    It is quite common with MND to experience speech problems. I find that because one of the symptoms is over production of saliva and mucus that clearing my throat is a constant issue....
  22. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    Hi Terry, Sorry to hear that you are still in...

    Hi Terry,

    Sorry to hear that you are still in hospital and I hope they can manage your pain and get you home soon. Here’s wishing you a better 2020 and I will drink a toast to you tomorrow...
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    Hello Vicky, Please accept my condolences for...

    Hello Vicky,

    Please accept my condolences for the loss of your dad. I understand the guilt you feel for not being present when he passed away because this happened to me with my dad. I do believe...
  24. Thread: Lynn & Dave

    by Barry52
    Replies
    6
    Views
    1,173

    Welcome Dave and Lynn. I’m sorry to hear that...

    Welcome Dave and Lynn.

    I’m sorry to hear that your wife has been diagnosed with MND. You can be sure of support and advice here so please keep in touch.

    Best wishes,
    Barry
  25. Thread: Terry

    by Barry52
    Replies
    97
    Views
    8,896

    Thank you CC for the message. Terry you are a...

    Thank you CC for the message.

    Terry you are a fighter and I hope you can shake it off before Christmas. I hope you can get some relief from the pain and you are soon back at home with your wife....
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