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Type: Posts; User: Ellie

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    How's the macho nose doing with the new mask...

    How's the macho nose doing with the new mask Andy?

    Love Ellie.
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    Yeah Andy, and I use eye gaze to type, hence the...

    Yeah Andy, and I use eye gaze to type, hence the acronyms....
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    Hi Andy, If you want to know how your...

    Hi Andy,

    If you want to know how your breathing is doing, the “alphabet soup” (nice one :)) of data is how you track it.

    As our diaphragm and intercostal muscles weaken, it affects how much...
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    Andy, Do St Thomas's resp team give you full...

    Andy,

    Do St Thomas's resp team give you full Pulmonary Function Tests (PFTs) too or, at least, does someone regularly monitor your PFTs and keep an eye on your FVC/SVC, MIP, MEP etc? (I think I...
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    Sheila, It could well be reflux, given that...

    Sheila,

    It could well be reflux, given that you've a burning/hot feeling which mostly happens lying down.

    Because our tummy and chest musles weaken, reflux often rears its ugly head :( and...
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    Yes Sheila, could you please explain more so we...

    Yes Sheila, could you please explain more so we can help you?

    Has it only recently started?

    Is it just chest muscles that jerk rather than a 'startle' type of reflex?

    And have you any...
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    When I saw that "h", I thought, Oh Oh....

    When I saw that "h", I thought, Oh Oh....
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    Andy, how macho are you ;) There are lots of...

    Andy, how macho are you ;)

    There are lots of full face masks out there, so I'm sure there's one that won's cause you skin trauma.

    My one, for example, has different settings at forehead level...
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    Andy, Hopefully that N30 mask will suit you,...

    Andy,

    Hopefully that N30 mask will suit you, but, if you're a mouth breather, a nasal pillow may not be the best option - full face masks are better because of their better seal.

    Is your mask...
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    Yes I know that concern too! My arms & hands are...

    Yes I know that concern too! My arms & hands are next to useless so I need someone to put on my mask at night and remove it every morning.
    I've no access to my sleeping beauty at night as he sought...
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    Hi Miss M, Try short periods of daytime use as...

    Hi Miss M,

    Try short periods of daytime use as Terry said, to get used to the feeling. Using BiPAP will make your life more comfortable.

    Given you've tried nasal pillows, which have the least...
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