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  1. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Guys, Rachel RE the distress- I think the...

    Hi Guys,

    Rachel RE the distress- I think the carers see some of the distress, but I think they put it down to her age, rather than the condition (not surprising, seeing as they've never seen...
  2. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    I was forceful back in September whereby I...

    I was forceful back in September whereby I outright told my Gran I would not be visiting 2 days per week (something I've stuck to and something I'm guessing is the reason I've not already hit...
  3. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Gillette, Think I've already cracked- been...

    Hi Gillette,

    Think I've already cracked- been running on empty since about June! I am trying to look after myself, as best I can, under the circumstances. I can't begin to count the amount of...
  4. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Rachel, The GP only visits when the nurses...

    Hi Rachel,

    The GP only visits when the nurses ring them to say that Gran has a chest infection. They haven't been in touch with her regularly from the start, stating that they're only really to be...
  5. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Rachel, No, she can't/refuses to use any...

    Hi Rachel,

    No, she can't/refuses to use any tech (she can't even use the most simple of mobile phones, unfortunately). When I am there, she gets me to adjust her pillows (this is now taking up to...
  6. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Thank you, Terry and Deb :) Nunhead- I have...

    Thank you, Terry and Deb :)

    Nunhead- I have been seeing a palliative therapist for about 2 months and it was she who suggested antidepressants (on top of our therapy sessions).

    It all came to...
  7. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Guys, Thank you all for the supportive...

    Hi Guys,

    Thank you all for the supportive messages in response to my 'crazy crisis panic day'. Must admit, this week has been a particularly low one- crying all over the place like an idiot! (My...
  8. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Gillette, She does have CHC funding, but...

    Hi Gillette,

    She does have CHC funding, but she flat-out refuses to move elsewhere. I daren't do anything 'behind her back' because then it's taking even more control away from her. It's so hard...
  9. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Ellie, Absolutely agree, yes. I think her...

    Hi Ellie,

    Absolutely agree, yes. I think her age and stubborn personality (almost cutting nose of to spite face type attitude) are causing a lot of the problems here. I have asked her so many...
  10. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Ellie, She won't even let me/the carers...

    Hi Ellie,

    She won't even let me/the carers put a DVD on for her now, so I can't see her embracing the audiobooks or IPlayer or anything like that (woman's her own worst enemy, most of the time!)...
  11. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Thanks so much all of you :) Been pondering...

    Thanks so much all of you :)
    Been pondering (more like panicking) about all of this for a few days now and realised I've missed something completely obvious- the need for glasses to read/watch tv....
  12. Replies
    5
    Views
    925

    You're justified to ask for a specific time, but...

    You're justified to ask for a specific time, but I wouldn't hold your breath that you'll actually get the time you want. Depending on the company, some can be extremely accommodating, but others are...
  13. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Wow- thanks so much guys :D I really appreciate...

    Wow- thanks so much guys :D I really appreciate the effort you're going to to help with this issue! (though, in fairness, Gran is still currently half-talking, half-writing stuff down, so it's more...
  14. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Will do, Terry :D Thank you :) Ellie- May I...

    Will do, Terry :D Thank you :)

    Ellie- May I ask what you use to communicate? :)
  15. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    You've hit the nail on the head there, Terry. It...

    You've hit the nail on the head there, Terry. It does indeed seem that nothing is ever quite right!
    You have sparked a 'lightbulb' for me, though, with the recorder. Gran's voice isn't suitable for...
  16. Replies
    5
    Views
    764

    Happy Birthday!! :cool: Have a great day! :)

    Happy Birthday!! :cool: Have a great day! :)
  17. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Terry, That's another great idea- thank you...

    Hi Terry,

    That's another great idea- thank you :)

    I spoke to my Gran last night about the communication boards and the Lightwriter. She seems open to both (with a resounding 'but not yet!'),...
  18. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Thanks, guys :) Rachel- I've PM'd you...

    Thanks, guys :)

    Rachel- I've PM'd you directly.

    Miranda- I'd not even thought about doing something as simple as that (brain has a way of blocking out the simplest of solutions sometimes,...
  19. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Rachel, It would be brilliant if you guys...

    Hi Rachel,

    It would be brilliant if you guys could speak to her SLT to suggest communication aids. I think the lightwriter might be a hit. What details do you need from me?

    Thank you :)
  20. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    Hi Both, Thank you for replying :) The...

    Hi Both,

    Thank you for replying :)

    The Lightwriter looks good- I'll have to suggest it and see what the response is. Failing that, it'll have to be the communication boards, I guess.

    I tried...
  21. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    4,291

    What Now?

    Hi,

    Are there any communication devices that aren't 'techy' (i.e. ipad) that aren't just the standard spelling boards?

    We're getting close to the point now where writing things down will not...
  22. Thread: Check in

    by Broostine93
    Replies
    11
    Views
    1,803

    Just the financial one. Gran's already made her...

    Just the financial one. Gran's already made her wishes known to the nursing home and her palliative team by signing a DNR. I couldn't think of any other medical use I could be, really, as I don't get...
  23. Thread: Check in

    by Broostine93
    Replies
    11
    Views
    1,803

    Hi Streetwise and thank you for your reply. I...

    Hi Streetwise and thank you for your reply.

    I got in touch with CAB yesterday to ask about what I'm meant to do about 'small everyday purchases' and they couldn't tell me, unfortunately. They...
  24. Thread: Check in

    by Broostine93
    Replies
    11
    Views
    1,803

    Hi Andy, Yes, it's the LPA that comes into...

    Hi Andy,

    Yes, it's the LPA that comes into effect as soon as it's registered, not the one that only comes into effect when mental capacity is lost. I do understand where this goes- thank you so...
  25. Thread: Check in

    by Broostine93
    Replies
    11
    Views
    1,803

    Hi Helen, In a word: Rubbish! Finally got...

    Hi Helen,

    In a word: Rubbish!

    Finally got my head around/accepted that I cannot change what is happening with Gran- counselling on this made a massive difference. I was practising...
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