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  1. Replies
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    Welcome Matthew. Although no one wants a MND...

    Welcome Matthew. Although no one wants a MND diagnosis, you seem to have had the diagnosis quickly. Please don’t hesitate to ask questions - someone on the forum will usually have an answer or can...
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    I’ve now got my new app for iPhone or iPad - it’s...

    I’ve now got my new app for iPhone or iPad - it’s called Speech Assistant and I am very happy with it.
  3. Thread: Hello Everyone

    by miranda
    Replies
    4
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    482

    Welcome Tess. Please don’t ever feel there are...

    Welcome Tess. Please don’t ever feel there are questions you can’t ask. It’s a lot to take in but try to take a step at a time otherwise you will feel overwhelmed.
  4. Thread: Teeth Brushing

    by miranda
    Replies
    9
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    725

    If using an electric toothbrush, donít switch it...

    If using an electric toothbrush, donít switch it on until itís in the mouth! One of my carers learnt the hard way!!!
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    1,668

    I’ve got side rails fitted to my hospital bed and...

    I’ve got side rails fitted to my hospital bed and use these to haul myself over. I also have Wendylet sheets (Provided by my wonderful OT). These have a slippery fabric down the centre which helps...
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    1,610

    Hello David and welcome. I lost my speech before...

    Hello David and welcome. I lost my speech before voice banking was available and used a wonderful cheap app called Speak It. Unfortunately it’s not now available and I’ve tried using Predictable...
  7. Thread: Bed Advice

    by miranda
    Replies
    11
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    1,251

    I go through exactly the same procedure for...

    I go through exactly the same procedure for getting in and out of my profiling bed as Ellie. In addition I raise the foot end when my feet become swollen - as they always do when the weather is hot...
  8. Thread: Ivan

    by miranda
    Replies
    11
    Views
    1,251

    Welcome Ivan. There’s a lot to get your head...

    Welcome Ivan. There’s a lot to get your head around in these early days but Please don’t hesitate to ask questions- there’s usually someone who will be able to give you an answer or point you in the...
  9. Thread: Moving house

    by miranda
    Replies
    9
    Views
    1,142

    Great news for you. Make sure you know where...

    Great news for you. Make sure you know where your favourite tipple is packed so you can have a cuppa or something stronger when you arrive in your new home.
  10. Thread: Advice needed

    by miranda
    Replies
    4
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    724

    Welcome John. Hopefully you will get reassurance...

    Welcome John. Hopefully you will get reassurance that you haven’t got MND. In the meantime perhaps your grandad might be interested in this forum?
  11. Thread: Please help

    by miranda
    Replies
    12
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    1,810

    I do hope you can accept that your symptoms are...

    I do hope you can accept that your symptoms are unlikely to be MND. The health of your Mum must be difficult to cope with, even more so in the current lockdown which can’t but impact on your anxiety...
  12. Thread: Hello

    by miranda
    Replies
    8
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    1,250

    Welcome Elvisfan. A positive mental attitude...

    Welcome Elvisfan. A positive mental attitude seems to help in coping with the many aspects of MND but please don’t hesitate to ask questions - there’s a lot of knowledge and experience on this forum.
  13. Thread: Nuedexta

    by miranda
    Replies
    9
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    1,749

    I donít believe it!!! Barry I canít believe you...

    I donít believe it!!! Barry I canít believe you are still breaking the ďno falls allowed ď rule by not using your walker. You will no doubt get another telling off - only because we care and donít...
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    Hi David. I’m sure your positive post will have...

    Hi David. I’m sure your positive post will have reassured many people. I had my PEG fitted soon after diagnosis but have only ever used it for medication as I can still manage a soft food diet. As...
  15. Welcome. I am not a carer but can understand the...

    Welcome. I am not a carer but can understand the awful dilemma you are facing and, from the time you,posted, I guess you are having sleep disturbed nights. Does your wife have a support team...
  16. Thread: Hi

    by miranda
    Replies
    10
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    2,157

    Welcome Diddly. I can only echo,previous...

    Welcome Diddly. I can only echo,previous comments. In my case it was four years after my MND diagnosis that I was told by prof Talbot at the MND clinic in Oxford that I had PLS. But unfortunately...
  17. Thread: RIP Dude

    by miranda
    Replies
    26
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    10,450

    Sad to remember those like Dude who contributed...

    Sad to remember those like Dude who contributed so much to the forum. Good to keep memories alive. Thank you.
  18. Replies
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    17,604

    I have,just received this email from Waitrose. ...

    I have,just received this email from Waitrose. So presumably it’s because MND is now recognised? Or it could be my age (over 70)?

    We’re writing to let you know that from today we are offering...
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    Welcome Peanut. Good to see that are starting to...

    Welcome Peanut. Good to see that are starting to come to terms with your diagnosis and getting practical stuff sorted. Have you seen an OT yet to advise on providing you with aids such as grab...
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    Welcome GG. From being a speedy touch typist, I...

    Welcome GG. From being a speedy touch typist, I now use one finger of one hand but it means I can still communicate using a text to speech app on my iPad. Like you, Iím a fan of ready meals from...
  21. Thread: New member!

    by miranda
    Replies
    7
    Views
    1,806

    Welcome Hazel. I too was 64 when I was diagnosed...

    Welcome Hazel. I too was 64 when I was diagnosed and in many ways happy that I had had a fulfilled life. I also fall into that group Mature with PMA (positive mental attitude). However, I would...
  22. Hello Lea. Welcome to this friendly forum...

    Hello Lea. Welcome to this friendly forum although obviously you would prefer not to be here. Do not hesitate to ask questions. Someone somewhere will probably have the answer although we all...
  23. Replies
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    17,604

    Terry was thoughtful and caring towards others,...

    Terry was thoughtful and caring towards others, even letting us know in his final post on here that he would soon be passing away. He will not be replaced on the forum but hopefully we can follow...
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    Thank you Ellie. That was hilarious. My husband...

    Thank you Ellie. That was hilarious. My husband said ďam I like that?Ē As gently a possible, I agreed he is!!!
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    17,604

    Just received this email Hello, You...

    Just received this email

    Hello,

    You registered as clinically extremely vulnerable, but had not received a letter from the NHS to confirm this. We’ll share your details with the NHS.

    If the...
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