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    Very important to know what MND you have. Get a...

    Very important to know what MND you have. Get a gene test.

    This informs you how much time you have to get a care package in place but the safe assumption is to act fast.
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    What would a good care app include?

    Please feel free to give any thoughts or dreams on what features on what a good care app would include.
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    Hi Barry, I'm sorry to hear that your MP is...

    Hi Barry,

    I'm sorry to hear that your MP is not helping you. I rely heavily on the office of Rebecca Long-Bailey MP and I would really struggle otherwise.

    On this occasion, the home visit...
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    The pneumonia I had kept returning and so after 5...

    The pneumonia I had kept returning and so after 5 courses of antibiotics, I have sought my MP's support and got put on stronger antibiotics.

    I would like to be tested for covid-19 but I can...
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    We just need a COMPETENT Government that can...

    We just need a COMPETENT Government that can organise minimum 100,000 tests per day as promised.

    Iain Duncan Smith MP said we have 'The capacity' to do 100,000 test in his weasel words yesterday,...
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    Hi Doug, Barry, You have a lot of catching up...

    Hi Doug, Barry,

    You have a lot of catching up to do on songs Doug. lol. Here is another one that may spark more memories.

    https://www.youtube.com/watch?v=dCYApJtsyd0

    Yes Barry, such a waste...
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    Hi Barry, Doug, Yes, sore 4 kitty n now Terry....

    Hi Barry, Doug,

    Yes, sore 4 kitty n now Terry. In the year 2020.

    Another classic doom...

    https://www.youtube.com/watch?v=aZT_OxPRmSw
  8. Thread: Terry

    by Graham
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    Truly awful news about the passing of Terry. ...

    Truly awful news about the passing of Terry.

    Terry was of a vintage stock. He was kind, empathetic and had good banter.

    Terry held this forum together singlehandedly.
  9. Thread: Terry

    by Graham
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    Hope you pull through Terry. Fight hard. You...

    Hope you pull through Terry. Fight hard.

    You are in my thoughts and prayers.

    All my love, Graham.
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    Hi Barry, There is no advice for people who...

    Hi Barry,

    There is no advice for people who have had it. My carers and I have all the highlighted symptoms and a young carer still has pneumonia I think. i have not been tested and this...
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    Hi Lynne, Hope you are ok and your husband is...

    Hi Lynne,

    Hope you are ok and your husband is behaving. My pneumonia has dried up and gone for now having had the double-barrelled antibiotics.

    My social worker took the time to try and...
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    Definitely YES, we are SHIELDED. Definitely...

    Definitely YES, we are SHIELDED.

    Definitely YES, your carers MUST attend people with MND and SHIELD themselves and their children.
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    My carers been calling 111 but not interested...

    My carers been calling 111 but not interested unless you are dying. Finally got to see the GP today.

    Nearly 4 weeks into covid and the pneumonia is still persisting albeit being much improved from...
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    Government now wants to shield me and you. Six...

    Government now wants to shield me and you. Six weeks too late for me but how the heck do you SHIELD people that need close intimate care?? WTF are these highly paid top brains of the country...
  15. Thread: Nippy 4

    by Graham
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    hi terry, further to ellie's good advice, the...

    hi terry,

    further to ellie's good advice, the mask may need subtly bending to relieve the pressure points. guessing that cotton wool may relieve pressure.

    love
  16. Thread: Nippy 4

    by Graham
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    hi terry, you should find help here ...

    hi terry,

    you should find help here

    http://www.nippyventilator.com/support/

    love
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    There must be a huge percentage of our population...

    There must be a huge percentage of our population with or has had coronavirus. The BBC/NHS are pulling our leg by suggesting only 3,000 have had it. The true figure must be at least 300,000. People...
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    hi lynne, I hope you are keeping well and...

    hi lynne,

    I hope you are keeping well and thanks for your kind words. it is common sense to test for people that have natural immunity, but as most ministers are focusing on appearing on love...
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    Hi barry, the type of mnd you have is crucial....

    Hi barry,

    the type of mnd you have is crucial. I have upper neurone disease or brain-rot, which means the lower motor neurones can still do their stuff. my sneezes are legendary and my laptop...
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    great news you are back home terry. IT WOULD...

    great news you are back home terry.

    IT WOULD SEEM THAT I HAVE HAD IT.

    over 3 weeks ago I had flu-like symptoms but went on to get pneumonia. I have had flu jab this season, as always, and...
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    certainly challenging times for us all. hope you...

    certainly challenging times for us all. hope you are ok terry. as long as you watch that no-one comes near you in hospital and you don't touch your face, you should be ok, but hospital is the worst...
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    you sound like trump, cc. only trump has now seen...

    you sound like trump, cc. only trump has now seen the light, as he too is in the 'at risk' category and sees the threat.
  23. Thread: Access to work

    by Graham
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    like u say, AtW are a joke. you must use your...

    like u say, AtW are a joke.

    you must use your MP to get any sense out of 'em.

    I have had massive battles with 'em thru my MP but won.
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    It is unrealistic to expect to not get...

    It is unrealistic to expect to not get coronavirus for those of us bedbound and reliant on others to visit and care.

    the choice is; -
    1. get coronavirus and take your chances.
    2. die of...
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    hi juliette, contact ur MP as urgent. steve...

    hi juliette,

    contact ur MP as urgent. steve bell, care director mnda may help.

    hospitals r no place 4 mnd patients. u r mum's best hope.

    my chc was equally rude n brutal. they gave me till...
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