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Type: Posts; User: carolmike25

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  1. Replies
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    First Anniversary - 29th December 2012

    Hi All,
    Today (29th December 2012) is the first anniversary of the day we lost my beautiful wife Carol.
    A very strange day at the end of what has been a very strange year for me and our family -...
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    Hi All - sorry for bringing this post back into...

    Hi All - sorry for bringing this post back into the current list but just wanted to say that my beautiful Carol is in the latest issue of Thumbprint - on page 14.
    It was something we were working...
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    I would like to thank you all for your very kind...

    I would like to thank you all for your very kind words and thoughts.
    If the blog has helped anyone in anyway then it has achieved what Carol wanted it to do.
    Carol wanted to be honest about her...
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    My Brave Lady Finally Loses The Fight

    Hi All - I just wanted to post to let you all know that my beautiful wife Carol finally lost her incredibly brave battle last night.
    Carol fought for almost 3 years and through it all she gave us...
  5. Thread: New Member

    by carolmike25
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    Welcome Paul - keep that positive outlook and...

    Welcome Paul - keep that positive outlook and take strength from those around you. There's support here if you need it.
    All the best
    Mike
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    Elaine - very sorry to read your news - sending...

    Elaine - very sorry to read your news - sending our very best wishes to you all - Carol & Mike
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    Hi Elaine - very sorry to read your post and the...

    Hi Elaine - very sorry to read your post and the advice from Mike is exactly what your sister in law needs.
    Speaking as someone who's been caring since my wife was diagnosed in 2009, and dealing...
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    Hi Robyn, I've just sent a reply to Raj - I've...

    Hi Robyn,
    I've just sent a reply to Raj - I've spent the last month writing a blog of the whole of my wife Carol's journey since diagnosis in 2009.
    It took me a long time to get into a place where...
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    We bought this for Carol's iphone and it worked...

    We bought this for Carol's iphone and it worked really well for as long as Carol was able to use it - definitely one of our better purchases at the time. Might be worth looking around now though as...
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    Hi Steve, Welcome and sorry to hear your news -...

    Hi Steve,
    Welcome and sorry to hear your news - but you're among friends here and there's strength in numbers.
    Take some time to process the information - we relied heavily on MNDA and our local...
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    Hi Pooks - welcome and I hope you find the...

    Hi Pooks - welcome and I hope you find the support you need from all of the inspirational people and stories on the forum.
    Check out the stories on people's blogs as well as everyone is different -...
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    hi sonia1 - don't want to seem like self...

    hi sonia1 - don't want to seem like self promoting but I've started a blog to tell Carol's story (see below) - I did it for me but also so that the family and our friends could see what was actually...
  13. Thread: New member

    by carolmike25
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    Hi kentmnd - GRID2 is the softare package carol...

    Hi kentmnd - GRID2 is the softare package carol uses on her laptop - this also allows her to connect to the internet and text from her mobile - we were fortunate enough to get it all funded as a loan...
  14. Thread: upstairs

    by carolmike25
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    Hi Paul, Carol fought to stay upstairs for a...

    Hi Paul,
    Carol fought to stay upstairs for a long time and we had a stairlift fitted. Unfortunately as her body got weaker the stairlift wasn't really safe for her so we moved into a downstairs...
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    Hi Tom, Personally the best advice we ever got...

    Hi Tom,
    Personally the best advice we ever got was to stay ahead of the disease - start hassling everybody and don't take no for an answer. It's interesting reading all the forum posts that care...
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    Hi - the one mistake we made with Carol's...

    Hi - the one mistake we made with Carol's progression was not getting the PEG fitted early enough. We delayed a couple of possible appointments because Carol wasn't sure until eventually feeding was...
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    Hi Steve - as you can see there's strength in...

    Hi Steve - as you can see there's strength in numbers and lots of great advice out there.
    I only ever looked at the NHS and MNDA websites - too much bull everywhere else - facts are what you need,...
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    Hi there sionz - glad to hear from you - there's...

    Hi there sionz - glad to hear from you - there's lots of friendly people on here who can offer ideas, advice , support or just an ear to listen - all the best
  19. Thread: new to mnd

    by carolmike25
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    Hi tilleygirl - start with a referral to speech &...

    Hi tilleygirl - start with a referral to speech & language therapy as they should have equipment readily available for you.
    Toby Churchill Litewriters work really well early on and are probably a...
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    Hi spiderpad - for my wife Carol it was dependant...

    Hi spiderpad - for my wife Carol it was dependant on household income and the council said I earned too much so they wouldn't pay - their stock response for pretty much everything. (So much for all...
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    Hi All - it's that great unknown that's such a...

    Hi All - it's that great unknown that's such a worry.
    My wife Carol progressed rapidly through 2010 to the point where she only retained some head movement (and only with a support collar).
    I was...
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    You're very welcome Slang King - I know how hard...

    You're very welcome Slang King - I know how hard it is to take advice when it's your life being talked about.
    We struggled early on and denial was our standard default for a long time - even when...
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    Hi Robyn I've finally got myself organised and...

    Hi Robyn
    I've finally got myself organised and joined.
    My wonderful wife Carol was diagnosed back in July 2009 after showing symptoms for some time before that - Carol's gone through a lot in the...
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    Hi Slang King I've only just joined - I've...

    Hi Slang King
    I've only just joined - I've wanted to talk but the time just never seemed to be right.
    My wonderful wife Carol was diagnosed back in July 2009 so we've got 2 and 1/2 years behind us...
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