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  1. Replies
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    Hi - confirmed with our MND nurse that we should...

    Hi - confirmed with our MND nurse that we should be in the shielded group but sounds like they have had no information on ownership of the letters. She suggested self registering (registration open...
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    Hi Musa. ALS Worldwide used to source generic...

    Hi Musa. ALS Worldwide used to source generic edaravone from India and tested it to confirm it was the genuine drug. I have used this. Thesocialmedworks in Amsterdam source from Japan (I have also...
  3. Thread: Beach wheelchairs

    by Guy
    Replies
    10
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    2,631

    Hi Sarah As Barry says if your sand is very...

    Hi Sarah

    As Barry says if your sand is very soft you may need the balloon wheels. If the sand is more compact you may get away with a motorised tramper or similar. There's a great beach at...
  4. Thread: House adaptations

    by Guy
    Replies
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    1,751

    Hi Polly We've just been through this process....

    Hi Polly

    We've just been through this process. A few things that helped us:

    The local council should have lists of approved architects/surveyors and builders for these works. Ours also...
  5. Have been through the diagnostic process twice -...

    Have been through the diagnostic process twice - more recently and v thoroughly, in Sheffield. Presently awaiting more detailed genetic results (mine is familial MND and initial screen ruled out the...
  6. Thread: Stem Cell

    by Guy
    Replies
    42
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    25,284

    Thanks cc. I couldn't convince myself on stem...

    Thanks cc. I couldn't convince myself on stem cell treatment and this helps confirm it.
  7. Thread: Stem Cell

    by Guy
    Replies
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    25,284

    All - Thanks for the welcome and the information....

    All - Thanks for the welcome and the information. I'm not convinced I'm fully over the shock yet, but getting there.

    I'm certainly finding it difficult to decide what action I should be taking...
  8. Thread: Stem Cell

    by Guy
    Replies
    42
    Views
    25,284

    Hi Steven I was diagnosed with MND/ALS just over...

    Hi Steven
    I was diagnosed with MND/ALS just over 8 weeks ago and I'm new to the forum - it's my first post.
    I've been looking at the available treatment options and Edaravone looks the most...
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