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  1. Thread: Lost

    by Graham
    Replies
    27
    Views
    2,040

    Thanks Jackie. There is a lot of ignorance about,...

    Thanks Jackie. There is a lot of ignorance about, even in this country.

    There was a human genome project that I took part in. My father's side has been plagued by neuro pathology, although no one...
  2. Thread: This forum

    by Graham
    Replies
    20
    Views
    1,490

    Yes, I too am totally disillusioned with this...

    Yes, I too am totally disillusioned with this forum unfortunately. It only caters for a narrow viewpoint and there is a small group of individuals eager to troll dissenters from other viewpoints....
  3. Thread: Lost

    by Graham
    Replies
    27
    Views
    2,040

    I am someone with this awful disease and 'Is it...

    I am someone with this awful disease and 'Is it Karma?' or 'Is it genetics?' is a relevant question. I believe the latter being agnostic.

    Of course, I wish you well on this journey of ours but I...
  4. Thread: Lost

    by Graham
    Replies
    27
    Views
    2,040

    Ellie, You are quite naive. How are people...

    Ellie,

    You are quite naive. How are people with MND supposed to read Jackie's comment? Please explain?

    People should realise that in many parts of the world people with MND are seen as...
  5. Thread: Lost

    by Graham
    Replies
    27
    Views
    2,040

    I know for my sins, I am too analytical and...

    I know for my sins, I am too analytical and believe in science. I do try to help people, however you must ask Andy if he has had any impure thoughts or question your religious beliefs.

    Graham
  6. Replies
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    568

    Very important to know what MND you have. Get a...

    Very important to know what MND you have. Get a gene test.

    This informs you how much time you have to get a care package in place but the safe assumption is to act fast.
  7. Replies
    0
    Views
    327

    What would a good care app include?

    Please feel free to give any thoughts or dreams on what features on what a good care app would include.
  8. Replies
    99
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    18,030

    Hi Barry, I'm sorry to hear that your MP is...

    Hi Barry,

    I'm sorry to hear that your MP is not helping you. I rely heavily on the office of Rebecca Long-Bailey MP and I would really struggle otherwise.

    On this occasion, the home visit...
  9. Replies
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    18,030

    The pneumonia I had kept returning and so after 5...

    The pneumonia I had kept returning and so after 5 courses of antibiotics, I have sought my MP's support and got put on stronger antibiotics.

    I would like to be tested for covid-19 but I can...
  10. Replies
    99
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    18,030

    We just need a COMPETENT Government that can...

    We just need a COMPETENT Government that can organise minimum 100,000 tests per day as promised.

    Iain Duncan Smith MP said we have 'The capacity' to do 100,000 test in his weasel words yesterday,...
  11. Replies
    424
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    95,041

    Hi Doug, Barry, You have a lot of catching up...

    Hi Doug, Barry,

    You have a lot of catching up to do on songs Doug. lol. Here is another one that may spark more memories.

    https://www.youtube.com/watch?v=dCYApJtsyd0

    Yes Barry, such a waste...
  12. Replies
    424
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    95,041

    Hi Barry, Doug, Yes, sore 4 kitty n now Terry....

    Hi Barry, Doug,

    Yes, sore 4 kitty n now Terry. In the year 2020.

    Another classic doom...

    https://www.youtube.com/watch?v=aZT_OxPRmSw
  13. Thread: Terry

    by Graham
    Replies
    114
    Views
    18,966

    Truly awful news about the passing of Terry. ...

    Truly awful news about the passing of Terry.

    Terry was of a vintage stock. He was kind, empathetic and had good banter.

    Terry held this forum together singlehandedly.
  14. Thread: Terry

    by Graham
    Replies
    114
    Views
    18,966

    Hope you pull through Terry. Fight hard. You...

    Hope you pull through Terry. Fight hard.

    You are in my thoughts and prayers.

    All my love, Graham.
  15. Replies
    99
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    18,030

    Hi Barry, There is no advice for people who...

    Hi Barry,

    There is no advice for people who have had it. My carers and I have all the highlighted symptoms and a young carer still has pneumonia I think. i have not been tested and this...
  16. Replies
    99
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    18,030

    Hi Lynne, Hope you are ok and your husband is...

    Hi Lynne,

    Hope you are ok and your husband is behaving. My pneumonia has dried up and gone for now having had the double-barrelled antibiotics.

    My social worker took the time to try and...
  17. Replies
    17
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    3,995

    Definitely YES, we are SHIELDED. Definitely...

    Definitely YES, we are SHIELDED.

    Definitely YES, your carers MUST attend people with MND and SHIELD themselves and their children.
  18. Replies
    99
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    18,030

    My carers been calling 111 but not interested...

    My carers been calling 111 but not interested unless you are dying. Finally got to see the GP today.

    Nearly 4 weeks into covid and the pneumonia is still persisting albeit being much improved from...
  19. Replies
    99
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    18,030

    Government now wants to shield me and you. Six...

    Government now wants to shield me and you. Six weeks too late for me but how the heck do you SHIELD people that need close intimate care?? WTF are these highly paid top brains of the country...
  20. Thread: Nippy 4

    by Graham
    Replies
    16
    Views
    3,247

    hi terry, further to ellie's good advice, the...

    hi terry,

    further to ellie's good advice, the mask may need subtly bending to relieve the pressure points. guessing that cotton wool may relieve pressure.

    love
  21. Thread: Nippy 4

    by Graham
    Replies
    16
    Views
    3,247

    hi terry, you should find help here ...

    hi terry,

    you should find help here

    http://www.nippyventilator.com/support/

    love
  22. Replies
    99
    Views
    18,030

    There must be a huge percentage of our population...

    There must be a huge percentage of our population with or has had coronavirus. The BBC/NHS are pulling our leg by suggesting only 3,000 have had it. The true figure must be at least 300,000. People...
  23. Replies
    99
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    18,030

    hi lynne, I hope you are keeping well and...

    hi lynne,

    I hope you are keeping well and thanks for your kind words. it is common sense to test for people that have natural immunity, but as most ministers are focusing on appearing on love...
  24. Replies
    99
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    18,030

    Hi barry, the type of mnd you have is crucial....

    Hi barry,

    the type of mnd you have is crucial. I have upper neurone disease or brain-rot, which means the lower motor neurones can still do their stuff. my sneezes are legendary and my laptop...
  25. Replies
    99
    Views
    18,030

    great news you are back home terry. IT WOULD...

    great news you are back home terry.

    IT WOULD SEEM THAT I HAVE HAD IT.

    over 3 weeks ago I had flu-like symptoms but went on to get pneumonia. I have had flu jab this season, as always, and...
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