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Type: Posts; User: wheelchairking

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  1. Replies
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    Hello Bess. I have been peg feeding for six and a...

    Hello Bess. I have been peg feeding for six and a half years overnight. I have 1000mls at 125mls an hour. For the first month or so I would sometimes vomit in the morning, luckily never overnight....
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    I will be attending the conference in Blackpool...

    I will be attending the conference in Blackpool on May 12th. As far as I am aware there are daily flights between Blackpool and Belfast. Hope to meet you there.
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    I would say go for it. It will give you a goal to...

    I would say go for it. It will give you a goal to look forward to.
    This disease is strange. Diagnosed over 7 years ago. After first year I was in a wheelchair, peg fitted etc. Since then...
  4. Thread: New bed

    by wheelchairking
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    My OT and district nurses provided me with a...

    My OT and district nurses provided me with a hospital bed. Not only does it provide comfort and support but it does everything apart from sing and dance.
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    I use a combination which works for me with no...

    I use a combination which works for me with no adverse side effects.
    Ibuprofen for children, a liquid which I can put through my peg.
    Matrifen patches which is a synthetic morphine. You just change...
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    My local hospice provides weekly aromatherapy...

    My local hospice provides weekly aromatherapy massage sessions. It's wonderful. You can feel muscles you didn't realise were tense dreamily relaxing away. Obviously this will depend on your locality...
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    my gp prescribes me baclofen which is prescribed...

    my gp prescribes me baclofen which is prescribed for irritable bowel syndrome but has the side effect of restricting the production of saliva. It works for me although it can't be taken orally. I...
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    Yes it is quite straightforward at a solicitor....

    Yes it is quite straightforward at a solicitor. We got power of attorney for my wife quite easily. I can't remember how much it cost but it was not excessive. Good luck.
  9. I would advise to go. I had the same doubts about...

    I would advise to go. I had the same doubts about attending my first branch meeting but the doubts were unfounded. Everybody was so friendly and supportive. Yes I did see somebody at more advanced...
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    Hello Paul-uk I used to smoke cannabis in the...

    Hello Paul-uk
    I used to smoke cannabis in the sixties and can still remember most of that time,I have never actually given it up, but with the responsibilities of adult life I gradually let it go...
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    I am with you all the way on this. I was...

    I am with you all the way on this. I was diagnosed 6 years ago. Within a year I was wheelchair bound and had to have a stomach peg fitted and expected the worst. Then it stopped. I've only had mild...
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    Yes well done Elle. 4/5 years ago I explored on...

    Yes well done Elle.
    4/5 years ago I explored on the internet and the best I came up with was at Keele University where my body would be used for general medical research, medical training etc. Valid...
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    I hope this will help. I was in constant pain...

    I hope this will help. I was in constant pain until I went into the local hospice for 2 weeks and the doctor there tried various drugs to assess their effects. As a result, apart from occasional...
  14. owygen

    I have been using oxygen for five years. I only need to use it when the air is hot/humid therefore I hardly use it in winter but sometimes 24 hrs in summer. It's use greatly enhances my quality of...
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    I too had this dilemma. In the end, after losing...

    I too had this dilemma. In the end, after losing weight due to lack of nutrition, I went ahead and had the operation. For a fortnight afterwards I didn't go out as moving was painful but as soon as I...
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    I had a similar experience to SallyB. Within...

    I had a similar experience to SallyB. Within 24hrs of starting the course of rilutek my speech and mobility declined rapidly and I was feeling physically exhausted. Stopped taking it and 24hrs later...
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    Good luck with your retirement. I had to retire ...

    Good luck with your retirement. I had to retire 5years ago. Just take the time to enjoy your family, hobbies and interests. Take up new ones. I've just started a welsh speaking course which with a...
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    Throughout my 5 years with mnd I have often found...

    Throughout my 5 years with mnd I have often found that I couldn't do something that I could do the day before. In most instances, unfortunately not all, I regain the ability the next day. Possibly...
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    When I was diagnosed my OT arranged for the...

    When I was diagnosed my OT arranged for the council's welfare rights adviser to come and see me. She was brilliant. Do you have problems with so and so?. Well yes. Things that in the general process...
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    I had to travel from North Wales to the Walton...

    I had to travel from North Wales to the Walton Centre in Liverpool to stay for a few days for tests. On the way there I drove and noticed that the brakes were a bit slack. I warned my wife to be...
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