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  1. Replies
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    Welcome to the Forum, Janette. I see Terry has...

    Welcome to the Forum, Janette.

    I see Terry has lectured you already about eating safely, so I won't have to :D:D

    I still eat what I can safely enjoy and use my feeding tube for my main...
  2. Thread: inbox

    by Ellie
    Replies
    10
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    2,103

    If you're replying back and forth in the same PM,...

    If you're replying back and forth in the same PM, usually you need only keep the latest 'Sent' version.

    Messages have stored history - to see it click on 'View History' under the text box. See...
  3. Thread: Private messages

    by Ellie
    Replies
    7
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    338

    If you're replying back and forth in the same PM,...

    If you're replying back and forth in the same PM, usually you need only keep the latest 'Sent' version.

    Messages have stored history - to see it click on 'View History' under the text box. See...
  4. Thread: So tired

    by Ellie
    Replies
    13
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    929

    On the ball Hayls !!

    On the ball Hayls !!
  5. Thread: Terrified

    by Ellie
    Replies
    9
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    597

    Hi Kelly. Sorry to hear about your symptoms. ...

    Hi Kelly.

    Sorry to hear about your symptoms.

    How is your manual dexterity - opening buttons, plaiting hair etc?

    Does your wrist/arm/hand hurt if lifting a pan or child etc?

    Best wishes...
  6. Replies
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    4,061

    You must have been on tenterhooks last night,...

    You must have been on tenterhooks last night, Lynne - they left it late to score the winner :rolleyes: I don't think you'd have been mighty happy with a draw (against Wolves!!)

    I don't really...
  7. Thread: So tired

    by Ellie
    Replies
    13
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    929

    Hi Hayls, It sounds as if you maybe should...

    Hi Hayls,

    It sounds as if you maybe should have an overnight pulse oximetry test too.

    If you don't know what it is, it's a fingertip monitor which measures your oxygen sats (SpO2) during the...
  8. Thread: So tired

    by Ellie
    Replies
    13
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    929

    That way you will know what you're dealing with...

    That way you will know what you're dealing with at least and, if necessary, you can start NIV to give you some extra power in your battery pack :)

    Even though I know you've other things on your...
  9. Replies
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    4,061

    Oh Lynne, you've been hanging around with Barry...

    Oh Lynne, you've been hanging around with Barry for too long ;):D:D

    Enjoy the game.

    Love Ellie.
  10. Thread: So tired

    by Ellie
    Replies
    13
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    929

    Would you think of wearing an overnight Sats...

    Would you think of wearing an overnight Sats monitor ?

    I doubt you'd go in for a sleep study, I know I'd need to be physically dragged into a hospital to do one at this stage :) xx
  11. Replies
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    Sorry to hear about your fall, Lynne. It sounded...

    Sorry to hear about your fall, Lynne. It sounded scary but you managed not to panic much - good on you. Of course a fall will knock your confidence and you don't need that....

    Yes, I also...
  12. Replies
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    Chrissie, who is your Gran's next of kin? ...

    Chrissie, who is your Gran's next of kin?

    Hope you manage to get some sleep later.

    Love Ellie.
  13. Thread: So tired

    by Ellie
    Replies
    13
    Views
    929

    Oh Sarah, you must be sooo fed up with diarrhoea...

    Oh Sarah, you must be sooo fed up with diarrhoea at this stage :(

    I'm sorry those tests all drew a blank, that is frustrating. Any idea if your gut biome was tested?

    You might find this...
  14. Thread: So tired

    by Ellie
    Replies
    13
    Views
    929

    Hey TC, great to hear you had a good day...

    Hey TC, great to hear you had a good day yesterday - hoping you go from strength to strength from now on and get back to where (-ish) you were before the virus hit.

    Do you think your breathing...
  15. Replies
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    It is a randomised, double blind trial, so the...

    It is a randomised, double blind trial, so the fact that some people will be or won't be or maybe will stop or start taking another glutamatergic drug (riluzole) during the memantine trial, seems odd...
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    Yes people can continue taking Riluzole if also...

    Yes people can continue taking Riluzole if also taking Memantine, but not everyone takes Riluzole.

    So, if some in the Memantine trial cohort take it, andothers don't, given its similar...
  17. Replies
    41
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    2,972

    No Kayleigh, your post didn't confuse anything,...

    No Kayleigh, your post didn't confuse anything, don't worry - I was aware Memantine mops up glutamate.

    My 'confusion' stems from fact that, in a randomised, double blind trial, there seems to be...
  18. Replies
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    2,972

    Notwithstanding any newly found preclinical...

    Notwithstanding any newly found preclinical evidence regarding Memantine, its previous clinical trial, for which results were published, consisted of one cohort of patients taking Memantine plus...
  19. Replies
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    Hi Barbara, I am sorry about your dad’s...

    Hi Barbara,

    I am sorry about your dad’s predicament and know it must be so hard for you being in a different country to him.

    When you say “ER”, do you mean ICU, Intensive Care Unit? And I take...
  20. Replies
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    Oh my days Juliette, that is utterly appalling. ...

    Oh my days Juliette, that is utterly appalling. Your mum isn't a commodity but a real person with real feelings and a family with the same.

    The only thing I can say is a feeble Good Luck in...
  21. Thread: Terry

    by Ellie
    Replies
    101
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    10,041

    Well you're home at least - your own bed and...

    Well you're home at least - your own bed and chairs, and a female cook to kiss.

    Sorry you're still in pain - any hope of a community physio visiting you?

    Best of luck with the carer later. ...
  22. Thread: New Guy :)

    by Ellie
    Replies
    3
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    451

    Sorry you've had to join the Forum Beemer, but a...

    Sorry you've had to join the Forum Beemer, but a warm welcome to you.

    I presume you're attending the excellent MND Clinic in Sheffield?

    Work: Ah yes, that old chestnut! There are different...
  23. Replies
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    I am so sorry to hear that your beloved Gran is...

    I am so sorry to hear that your beloved Gran is in her final stage, Chrissie, but I am glad she's in a hospice and being cared for appropriately.

    You've been a wonderful grandaughter and I hope...
  24. Thread: Whistle Blowing.

    by Ellie
    Replies
    5
    Views
    560

    No need for regrets Juliette. You need to...

    No need for regrets Juliette.

    You need to channel that energy now into getting your lovely mum home. It appalls me what some people have to do to get CHC :mad::mad:

    I posted on your other...
  25. Replies
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    I'm so sorry your mum was brought to the brink...

    I'm so sorry your mum was brought to the brink Juliette. I cannot imagine the torment you were put through and you still have massive uncertaintity now re getting your beloved mum home.

    Is there...
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