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Type: Posts; User: Bilando

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    Accessible Bedrooms in hotels

    Once again today I have heard from another person living with MND of their experience of failing to get a suitable accessible room from Premier Inn. Quite simply able bodied people can book online...
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    Thanks for the responses to my post. Several good...

    Thanks for the responses to my post. Several good points have been made by you all. Getting newly diagnosed people to engage with the association needs to be promoted by the care team regularly over...
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    I am so sorry to hear of Joyce passing. Despite...

    I am so sorry to hear of Joyce passing. Despite being a positive presence within the MND community she also fought another battle with the Ministry of Defence. War widows receive a widows pension but...
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    Is it good to talk ?

    As someone who has lived with MND for 5 years I have found contact with others in the MND family extremely helpful in dealing with the condition. Like many other people my fear of progression eg ...
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    Eyedrivomatic for wheelchairs

    Patrick Joyce is a person living with MND in Somerset. He has developed a system to allow him to control the joystick on his wheelchair using Eyegaze technology. He has just been awarded the top...
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    Mike - sorry for slow response. I use q...

    Mike - sorry for slow response. I use q Chaswheel 4X built in Finland. It does travel on some beaches but not others. Sand varies so much so "such it and see" comes to mind. Mud likewise. Surface...
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    Gd morning to JRCAT and all forumites. The use...

    Gd morning to JRCAT and all forumites. The use of wheelchairs is one of my passions. I have always independent and I love the scenery where I live near the coast of N Yorkshire. My local...
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    In the 18 months prior to diagnosis for MND I saw...

    In the 18 months prior to diagnosis for MND I saw 2 consultants. One was for a hiatus hernia, the other for a replacement knee. After the first op I continued to complain about swallowing...
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    Dragon Naturally Speaking

    on behalf of a friend living with flail arm MND I am keen to contact someone who uses the Dragon software . Has anyone got any comments - good or bad? Keep fighting it! Ian
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    Having just found this thread it is a great...

    Having just found this thread it is a great suggestion providing the heading or title is kept simple. Why ? I have spent many months fighting the NHS regarding its new AAC or "alternative &...
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    I'm with Dude in his attitude to do with living...

    I'm with Dude in his attitude to do with living with Mnd. Start with a positive thought about the move downstairs. Your local authority will reduce your council tax if you sleep downstairs and (if my...
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    I am genuinely pleased that Nettle, Dude and...

    I am genuinely pleased that Nettle, Dude and Joycie have received good service. I completely understand the good intentions of Wheelchair Services OT s and engineers. I also accept that contractors...
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    Nice one Barry !

    Nice one Barry !
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    Wheelchair Charter launched 20th July

    The National Wheelchair Alliance has spent many months composing a new Charter for the provision and maintenance of wheelchairs in the UK. While I accept that some parts of England enjoy an excellent...
  15. Thread: voicebanking

    by Bilando
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    5,473

    I must be "stalking" you on the forum this...

    I must be "stalking" you on the forum this morning as this is the second post of yours that I am replying to. Model Talker was, for me, easy to use and provided me with excellent support when I...
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    Your experience re twitching, Sari , is the same...

    Your experience re twitching, Sari , is the same as mine. I was diagnosed over 4 years ago and in that time twitching has occurred in almost every muscle. However it does not persist in any one...
  17. Thread: Advice !!!

    by Bilando
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    12,072

    In Cleveland we have a first class MND team which...

    In Cleveland we have a first class MND team which includes a dietician. I have had bowel problems since I took to a wheelchair. After a recent colonoscopy which did not show the cause I asked the...
  18. Thread: Speech aids

    by Bilando
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    Free Speech downloaded from Google Play Store on...

    Free Speech downloaded from Google Play Store on a Samsung android tablet is good. Sound output with my tablet and pad is hopeless in any social situation so use plug in speaker.
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    Even for those living with MND it's far better to...

    Even for those living with MND it's far better to live life to the full accepting the risk of a fall or injury. Even disabled people need some adventure and excitement in their lives ! Better to have...
  20. Thread: Lazy eye

    by Bilando
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    Gd morning Barry & Lynn, please don't fall into...

    Gd morning Barry & Lynn, please don't fall into the trap of assuming all your niggles are down to MND. We are all getting older and, as a result, getting other problems to cope with. A trip to an...
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    Ellie - I checked on the manufacturers website as...

    Ellie - I checked on the manufacturers website as you suggest ....The weights given are for a basic chair with no actuators / motors to alter backrest, lift & lower seat and leg raisers. Someone...
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    Just a note of caution re JET 2. Their T & C...

    Just a note of caution re JET 2. Their T & C state that the maximum weight of power chair cannot exceed 100 kg. Most that I know of range from 120 kg to 160 kg. How do you weigh your chair ?...
  23. Thread: Insurance

    by Bilando
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    World First worked for us. Under 100 for 10...

    World First worked for us. Under 100 for 10 days in and around Italy. As for Terminal Illness we all should tick the box as we all will die sometime ! World First were not concerned about my MND...
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    Just to confuse you further! A device called...

    Just to confuse you further! A device called an OSPREY sold by PC World works on EE. It gives you 4G onto your ipad or upto 10 different devices eg ipad, laptop, kids tablets etc etc....
  25. Thread: New Arrival

    by Bilando
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    A tray on a wheelchair Steve makes a great base...

    A tray on a wheelchair Steve makes a great base for the baby's bum ! Great news to lift all our spirits. Enjoy !
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