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Type: Posts; User: JAY TEE

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  1. Replies
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    Debbie, you will find the Salsa M2 ok I have mine...

    Debbie, you will find the Salsa M2 ok I have mine for three years and did have updated seat for it which is very comfortable. The only thing I need is a strap to keep my legs on the footplate. I have...
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    1,686

    Polly yes agree the Emotional Liability with MND...

    Polly yes agree the Emotional Liability with MND is amazing. I was formally diagnosed five years ago two weeks after my 65th birthday. I have grown up enjoying my classic music and I struggle not to...
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    2,352

    Gillete sorry you got pain. I was formally...

    Gillete sorry you got pain. I was formally diagnosed with ALS MND in few days time 5yrs ago and was 70 on Saturday. My MND all down my left side. Before diagnosis I had pain in my left hip and just...
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    2,340

    ‘Wheelchair. I have Salsa M2 and the main drive...

    ‘Wheelchair. I have Salsa M2 and the main drive wheels got a good grip. I get over ground and fields well. I have used it few times on cruises to the Med and getting in out boat usually easy. Been on...
  5. Thread: Voice banking.

    by JAY TEE
    Replies
    37
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    4,359

    Jim and all thanks for the update on Voice Five...

    Jim and all thanks for the update on Voice
    Five years ago I downloaded the Speak It app of the internet and loaded it on a good mini iPad my mates brought me, also put it on old mobile phone and...
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    Kev, I needed good car 4yrs ago once on...

    Kev, I needed good car 4yrs ago once on wheelchair. I have Citreon Berlingo diesel automatic. Was able to drive for two years but have surrendered my driving licence now. My carer/wife finds it ok to...
  7. Thread: Riluzole

    by JAY TEE
    Replies
    16
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    2,684

    Admin thanks, my chemistry would not provide my...

    Admin thanks, my chemistry would not provide my Riluzole as said it would cost them £300 for four week pack. Luckily my local hospital provided it and had same update.
  8. Thread: Muscle Loss

    by JAY TEE
    Replies
    5
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    1,326

    Daniel, yes agree there is muscle loss. I...

    Daniel, yes agree there is muscle loss. I formally diagnosed with ALS MND in May 2014 just two days after 65th birthday. Previously always kept myself fit had played lots rugby and had pain in left...
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    8,142

    Sarah and all, I had peg fitted three years ago...

    Sarah and all, I had peg fitted three years ago .but can still eat well so long as food mashed. Not having Peg food yet having read through the posts I have learnt a lot. So thanks all for comments. ...
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    Spitfire, I used to sleep on my right side but...

    Spitfire, I used to sleep on my right side but now on my back. My local Council been very good they provided a Hospital bed. This is very comfortable it raises the legs from knee area and the back...
  11. Thread: Rch4

    by JAY TEE
    Replies
    262
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    69,830

    Sportingmac. I am just coming up to 5yrs it will...

    Sportingmac. I am just coming up to 5yrs it will be my 70th birthday in May and was formally diagnosed two days after 65th. My MND just ALS and been on Riluzole and stuff for soliva. I cannot walk...
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    8,408

    Kayleigh, It was a good weekend and we had a new...

    Kayleigh, It was a good weekend and we had a new telly on Friday with a massive screen. The rugby I felt I was back on field playing again and played to long in the front row so assume that’s why got...
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    Lynne, I formally diagnosed coming up 5yrs and...

    Lynne, I formally diagnosed coming up 5yrs and had peg fitted two years ago but only use that few times a week as I can still eat well as long it’s minced up. My saliva very thick and drooling bad. I...
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    Deb I was given Salsa 2 by my local council 3yrs...

    Deb I was given Salsa 2 by my local council 3yrs ago. It is brilliant and I sit in it all day. It will go miles and very easy to control when out and about. I did buy a Citreon Berlingo as that very...
  15. Thread: neck collar

    by JAY TEE
    Replies
    12
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    2,729

    Dave, yes a neck collar does help. My neck is big...

    Dave, yes a neck collar does help. My neck is big as played tight head prop in rugby days. I did have a fall two years ago hurt neck. The therapist got me a metal frame one with chin pad. That not...
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    Jonboy well you have joined good place to find...

    Jonboy well you have joined good place to find everything you need to know about MND. I was also formally diagnosed two weeks after I retired at 65 in May 2014. I cannot walk and talk now but still...
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    Pinkelle, Yes convinced MND switches lots of...

    Pinkelle, Yes convinced MND switches lots of things off. I am often constipated for couple of days and as typing now got stomach pain hope my usual Saturday curry and pint clears me. I have taken two...
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    Andy, Guess what my MND is down my left side....

    Andy, Guess what my MND is down my left side. Formally diagnosed May 2014 and year before I had pain in my left hip and assumed to long in the front row. I did see a Physio and he told me left leg...
  19. Thread: Hair loss

    by JAY TEE
    Replies
    14
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    2,968

    Hair today nail tomorrow Crikey just thought...

    Hair today nail tomorrow
    Crikey just thought my problem nothing. My toe nails growing well and hand nails thicker and quicker, luckily got good chiropodist. As for hair just get usual haircut I...
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    9,754

    David, my care/wife finds it easy hoist me off...

    David, my care/wife finds it easy hoist me off the bed using the riser recliner onto the commode chair and once finished hoist onto the wheelchair it is a Salsa j2. When first had it three years ago...
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    3,721

    Dilly, you find the classic Hospital bed very...

    Dilly, you find the classic Hospital bed very comfortable. I was given one over two years ago by my local council. They also put in ceiling hoist but luckily still able use sit to stand hoist. The...
  22. Thread: Hello

    by JAY TEE
    Replies
    18
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    3,628

    Mini sorry to know you recently diagnosed. On...

    Mini sorry to know you recently diagnosed. On this forum you can find everything you need to know about MND. So hope it not too quick for you. I am coming up 5yrs now and cannot walk and talk. I can...
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    Taking Riluzole. Been on now coming up 5yrs....

    Taking Riluzole. Been on now coming up 5yrs. Always take half hour before breakfast always weetabix mashed fruit yoghurt and second tablet at 5pm usually hour before tea. Had blood test after first...
  24. Thread: Mucus

    by JAY TEE
    Replies
    12
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    2,563

    Reddens. I get constipated a lot these days. Not...

    Reddens. I get constipated a lot these days. Not been for two days and just taken 10ml Senokot. It has got to be the drugs and less exercise no longer running the dog and couple swims a week. Best...
  25. Thread: heavy neck

    by JAY TEE
    Replies
    5
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    1,196

    Shrew, I have permanent neck problem as was to...

    Shrew, I have permanent neck problem as was to long as a tighthead prop. I do wear a collar few days a week if any pain. The nurses gave me wire form support brace for my mouth and that helps keep...
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