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Type: Posts; User: Arthur

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  1. Replies
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    13,146

    Up until a few weeks ago I was taking Riluzole...

    Up until a few weeks ago I was taking Riluzole with no side effects, no impact on my driving or my alcohol consumption.

    My last Liver function test had some concerns so my GP has stopped Riluzole...
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    I think wheelchair provision varies depending on...

    I think wheelchair provision varies depending on where you live. I asked for an electric chair the day my manual one was delivered and after a small delay it was agreed.
    Certainly contact the MNDA...
  3. Thread: Grid 2 Software

    by Arthur
    Replies
    6
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    3,679

    180 Take a Dell Axim Palmtop computer costing...

    180

    Take a Dell Axim Palmtop computer costing around 300
    Add a loudspeaker, amplifier, batteries and software
    Then sell it for over 2,000

    It has the advantage of size (150mm by 60mm). It...
  4. Thread: Grid 2 Software

    by Arthur
    Replies
    6
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    3,679

    Yes, talking and surfing the web. I hope to see...

    Yes, talking and surfing the web. I hope to see it in action and compare it to my Palmtop which I use as a last resort when "talking".

    I feel like Robocop when I use my Palmtop and the computer...
  5. Thread: Grid 2 Software

    by Arthur
    Replies
    6
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    3,679

    Jo, thanks very much, I will pass that...

    Jo,
    thanks very much, I will pass that information on

    Arthur
  6. Replies
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    Not a recommendation of where to go but a...

    Not a recommendation of where to go but a recommendation of how to find suitable places or how to check on a particular place.
    Have a look at http://www.disabledgo.com/ they have a lot of very...
  7. For the items that are given out could the...

    For the items that are given out could the production cost to the Association be published. This would reenforce that although they are free to a branch there is a cost to produce them.

    Arthur
  8. Thread: Grid 2 Software

    by Arthur
    Replies
    6
    Views
    3,679

    Grid 2 Software

    I don't use Grid 2 and know very little about it but ...

    Another branch member uses Grid 2 but when they open a pdf/acrobat document they cannot close it using Grid 2. They can open and close...
  9. I would take the view that if we cannot invest...

    I would take the view that if we cannot invest the cost of a few t-shirts for someone who will be generating funds for the branch or association then we are rather mean. You need to spend money to...
  10. You can ring up and order them using 0845 6044...

    You can ring up and order them using 0845 6044 150 or email the order form http://www.mndassociation.org/Resources/MNDA/Migrated%20Resources/Documents/S/Supplies%20Order%20Form%20(45)_2447.pdf to...
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    On the speech side I would avoid the phone as the...

    On the speech side I would avoid the phone as the lack of visible clues makes understanding me more difficult. I prefer "talking" face to face.
    I think it's great all the things you are doing, a...
  12. Replies
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    Some time after telling my son about my diagnosis...

    Some time after telling my son about my diagnosis (leaving little out) one of his "friends" told him that if I had MND then he could also have it. Because he was informed about MND he was able to...
  13. Replies
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    I told my son when he was eight but I left out...

    I told my son when he was eight but I left out most of the details. He stumbled across MND in a dictionary and was very upset to read a definition of MND. It would have been easier to tell him the...
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    I am also keen for a cure to be found but I don't...

    I am also keen for a cure to be found but I don't see how a cure can be found without research!
    The families of those plwmnd are often under more strain than the plwmnd and so also need help from...
  15. Thread: Agm

    by Arthur
    Replies
    6
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    2,999

    Even to have the presentations available on the...

    Even to have the presentations available on the Association web site within a few days would be good. That would be cheaper than a live webcast,

    Arthur
  16. Thread: What to expect?

    by Arthur
    Replies
    6
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    3,279

    There is a support group which your father in law...

    There is a support group which your father in law may wish to join, the group is specifically for those with pma or pls.
    See...
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    I thought the DS1500 was a way to reduce the...

    I thought the DS1500 was a way to reduce the waiting time whilst benefits are assessed but you can still apply for a benefit without it. The benefit will then be backdated to when you applied. In my...
  18. Thread: Newbie

    by Arthur
    Replies
    8
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    4,596

    Even thinking about where to start is good. ...

    Even thinking about where to start is good.

    Just remember your dad is the same man as before the diagnosis. I feel it is very easy to lose control as some health professionals do what they think...
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    I had a splint to reduce my foot dropping and it...

    I had a splint to reduce my foot dropping and it worked very well. Even when I moved to a wheelchair my Physio said I should continue to wear it (mine was called toe-off). After a few years I did...
  20. I always try to be nice to the overhelpful people...

    I always try to be nice to the overhelpful people as at some point I might want their help.
    I find giving them something to do helps, a favourite one is asking "Can you steady my wheelchair" and...
  21. Not so much annoying but amusing, people love to...

    Not so much annoying but amusing, people love to help but don't ask what I need

    I move a chair ready for me to transfer into it.
    They move the same chair, saying "thats easier for you"
    I move it...
  22. Thread: Painful Fingers

    by Arthur
    Replies
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    18,762

    I would get painful hand cramps, not when typing...

    I would get painful hand cramps, not when typing but when I do something fiddly. I use a handspring to exercise my grip, not sure if it does anygood but at least I feel I'm doing something,

    Arthur
  23. Thread: riser/recliner

    by Arthur
    Replies
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    8,450

    I got mine via the MNDA, it took a few days to...

    I got mine via the MNDA, it took a few days to get it delivered.
    Talk to your RCDA or Connect,

    Arthur
  24. Replies
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    Hi Pete, my wheelchair is a Spectra XTR2. It is...

    Hi Pete,
    my wheelchair is a Spectra XTR2. It is one of the most comfortable chairs I have ever used. It has a reasonable range (just over 11 miles) and I use a boot hoist to load it into my car (a...
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    What make of wheelchair are you getting? Do not...

    What make of wheelchair are you getting?
    Do not despair at the condition of the demonstration chair!

    Before they ordered a chair for me they also tested my ability to drive it (folk still...
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