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Mi bathroom is only 8 feet by 8 feet. It is upstairs so we steered away from a wetroom, wetrooms always leak. the sink is placed perfectly for a strp wash, and the Closomat Palma Vita washes my...

Oh yeah doug,

I took some broad spectrum antibiotics for a month to kill bad stuff. Now I take acidophillus, bifidus and butyric acid everyday. I take 2 grams vit c, vitE , vit b12, laxido...

thanksdoug -read loads on it and following a program

cant walk - cbd does not make me groggy

I am addicted to Tramadol but it is the best painkiller. I don’t really care about the addiction because I am going to die anyway��

thanks K

Has anyone else tried to maintain healthy gut microbiome?. My wife has adopted the same regimine as me over the last 9 months. She has returned to the same bodyweight she was when she was 30. My...

My wife and I are going to get a carer in maybe two days a week to give her a break. She is very small and I still weigh 80kg. I havve spent £20,000 on a proper MND facility at home. I can go to the...

I read books whilst I still can. Watch Netflix. The more metaphysics I read about the less depressed I get.

It only took me a few days because I went self funded private
- but I did get a second opinion from Ashwin Pinto.

capsules - sorry -
one at bedtime

The peristalis is impaired and the core strength formed by the abdominals and oblique muscles is weakened, As he disease progresses the transit time increases giving more time to produce gas. Nothing...

thanks K

I take CBD to get a good nights kip.
CBD brothers 16% 250mg - really expensive but works a treat

It works a treat John, I can get to the loo everyday and have a wash.

I won’t type it all out - arms going - too frustrating

ask me questions if your guts are giving you problems

thoughts and Prayers 👀😂

cant type much - right arm exhausted now

My home respiratory team would not let me have a Nippy - so I bought my own. My etCO2 is 45mmHg now so I use the nippy if I get headaches upon waking. Most ALS patients will get type two respitory...

I have learnt loads with the help of my wife and manage things really well. No advice fom any NHS person.

If anyone is struggling let me know I can probably help.

No point now, very few are interested in what happens to us. I will be dead at Xmas

I thought I would share the information about managing gastrointestinal problems, that I have been given by my multidisciplinary team:

I went into the hospice again to give my wife a break. On the first night the active mattress was set too hard, and the alternating cycle was not working. The care assistants refused to change the...

what I am saying is all the OT’s I have met are morons that know nothing about terminal illness - equipment - mangement of symptoms - realistic timescales, answering the phone, returning a...

I would not ask an OT anything now

1000100110021003 The guy in the red shorts is me age 38, I used to do weight training and this is linked to ALS, I am also an aerospace engineer which is another link.