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Type: Posts; User: Lynne K

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    Me too Panniertank, I really miss driving and...

    Me too Panniertank, I really miss driving and doing my last job as a driving instructor. As Dina says about keep using the service to get you out from your own four walls. I get fed up staying in too...
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    Thanks Sarah, I'm sure that we will enjoy the...

    Thanks Sarah, I'm sure that we will enjoy the Dales. Good luck with everything x
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    No need to apologise Sarah. We've had difficult...

    No need to apologise Sarah. We've had difficult days, sometimes weeks but we usually come out the other side. Simple things like me wanting to go with him to the shops he reacts to. He often mentions...
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    Thanks Kayleigh x

    Thanks Kayleigh x
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    Well done you Dina. I know the feeling but a...

    Well done you Dina. I know the feeling but a great deal of learning has been done in our home by my important other so the house is tidy'ish, cupboards tidy and washing done regularly (less...
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    Kayleigh, I'm hoping that I can join the trial...

    Kayleigh, I'm hoping that I can join the trial despite over 2 years since my diagnosis. My only concern is having to have no swallowing issues, a score of 4 on the ALSFRS-R Swallowing Sub Category. I...
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    Hi Mickey18, sorry that you are half expecting an...

    Hi Mickey18, sorry that you are half expecting an MND diagnosis. What a worry. I hope that your neurology appointment comes quickly so that you find out one way or another.

    About night time...
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    I just looked online for an ALSFRS-R Scale. 4 is...

    I just looked online for an ALSFRS-R Scale. 4 is the 'normal'function and '0' the worst. Lynne
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    Does anybody know what 4 is for swallowing on the...

    Does anybody know what 4 is for swallowing on the ALSFRS-R Sub Category scale please. Thanks, Lynne
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    Thanks Ellie. I'm seeing my neurologist at her...

    Thanks Ellie. I'm seeing my neurologist at her Salford clinic Wednesday 11th December, that's 2 weeks away. I'll ask her. I hope that it doesn't book up by then. Thanks, Lynne
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    How do you sign up Ellie? I clicked on your link...

    How do you sign up Ellie? I clicked on your link and couldn't find anywhere to ask to join. I'd go to Salford. Thanks, Lynne
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    Terry, we are all eager to get some treatment...

    Terry, we are all eager to get some treatment that works but have to be cautious indeed. Onein300 put a link to research done about 4 years ago on his last but one blog. I only read the research...
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    Hi Terry. I've just looked through previous...

    Hi Terry. I've just looked through previous messages. It was the links put up by originalthought (and not onein300 who does a great blog and gives links to smashing information) that I read all of,...
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    Hi Terry and Ann. Terry, me and my husband...

    Hi Terry and Ann.
    Terry, me and my husband every time we go out try to find a good disabled loo. He's been making a list of good ones on his mobile phone. He adds bits of info ie poor access or too...
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    Ok, thanks Terry. Lynne

    Ok, thanks Terry. Lynne
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    Hi Terry, I clicked on the link that the 'ex...

    Hi Terry, I clicked on the link that the 'ex doctor' put up. I can't remember his forum name just now, maybe 'onein400' or similar. That was a few days ago and before your post. I didn't input any...
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    Hi Anne. Welcome to our forums. I'm sorry that...

    Hi Anne. Welcome to our forums. I'm sorry that you've had a really awful time the last year or so. If you can get your GP to contact your neurologist urgently they usually can bring urgent...
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    Sounds good Doug. Enjoy your freedom in your new...

    Sounds good Doug. Enjoy your freedom in your new starship (car) for however long you can drive. Lynne
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    Doug, I have a tear in the rotator cuff of my...

    Doug, I have a tear in the rotator cuff of my left shoulder too. Very painful sometimes and sore all of the time. Have exercises helped or worsened your shoulder pain? Lynne
  20. Thread: Rch4

    by Lynne K
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    Thanks for the link Original Thought. A good read...

    Thanks for the link Original Thought. A good read and worrying about the apparent biased and dishonest power brokers in scientific circles, immoral. Lynne
  21. Thread: Frieda

    by Lynne K
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    Freida, my neurologist told me that Baclofen...

    Freida, my neurologist told me that Baclofen makes muscles slack so if your legs and arms have deteriorated since taking it it's your decision whether or not to continue with it. You could find other...
  22. Sarah, I'm sorry that you've arrived at such a...

    Sarah, I'm sorry that you've arrived at such a difficult place in your mnd journey too quickly. I wouldn't be surprised if it knocks your confidence. Very good advice already suggested.

    I hope...
  23. Barbara, I'm sorry that you all are having such a...

    Barbara, I'm sorry that you all are having such a bad time of it with your dad. I agree with all that Ellie said, especially about a cushion being provided by your dad's OT. There's gel cushions that...
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    Sorry about your cancelled appointment Sheila and...

    Sorry about your cancelled appointment Sheila and much good luck for Monday, Lynne
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    Good for you Ellie. I don't like oils on my skin...

    Good for you Ellie. I don't like oils on my skin but an actual massage sounds great. We've had our heating on for weeks and I have a couple of fleece blankets near to me that I use often for my...
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