Search:

The next meeting of Blackpool & surrounding areas MND support group is at 1pm. on Friday 2nd November at Trinity Hospice Day Care Centre

I am not sure how many of you are aware that the MND...

Hi there Fru, sorry I am rather late in replying, haven’t looked at this for a few days. Thank you so much for your help & going to the trouble of sending me links. I really appreciate that
Thank...

Thank you Chris & John for your help.
I will email my MND nurse right now & ask if they have a Circulation Booster.
Thanks to both of you. Maeve

Does anyone else suffer from extremely cold feet, if so have you found any medication that has helped ? Maeve

Hi Eleanor, I am Mavis Roeves on Facebook. I will look out for you, or you can PM me if you like. Maeve x

Hi voicegirl, I will look out for you too. Maeve x

Hi Pinkelle, sorry to have taken so long to reply, not been on here for a few days.
I am on Motor Neurone Awareness Group too. I will look out for you. Is your name Still Pinkelle on that site ?...

Hi Pinkelle, which one are you on? Maeve

Hi there Luke, not sure if this will help but I thought it was worth a mention.

If your mum has ever been in the Civil Service she would be able to buy an annual holiday insurance through CSIS &...

Hi Pinkelle, I didn’t know there were any but I will take a look now that you have mentioned it
Thanks. Maeve x

Hi there murrjo1,
I live very close to Blackpool & I have been going to the support group in Preston that Kevin mentioned, it’s really good & they are a friendly bunch of people. However, there is a...

Yes It was great news Kev, if I could skip I would have skipped out of there. . See you at the next meeting Maeve x

Hi Jaxx
yes there are times when I am unable to get the words out at all & it’s frustrating & very upsetting, it’s not surprising you both cry, it’s a huge trauma & you don’t know what is going on....

Hi Jaxx,yes it does sound very similar to mine, that’s exactly what I thought when I read your post. Of course you cry a lot, I guess we all do. It’s a terrible shock & not an easy thing to accept. I...

Hello Jaxx, just thought this may help you. I was diagnosed April 2017. My speech is very slow & slurred, I also have weakness in my left leg & left hand. I recently saw my specialist & he was very...

Thankyou for that Miranda, it will be a big help. Maeve x

Hi Kevin
Thanks for your advice. We have a bathroom downstairs ( which is the one we think we could convert) & a bedroom next door to it.
Your input is appreciated Kevin. I will speak to you at the...

Quite right, keep on going Barry. Enjoy your cooking & Happy Xmas to you ?
Maeve x

Happy Xmas to you too Andy
From Maeve x

Hi there Raymond
So sorry to hear that you have been diagnosed with this awful disease. I was only diagnosed in April this year & it came as a terrible shock to me, it was the last thing on my mind....

Hi Terry

Thank you for your comments on wet room.
I appreciate your help & advice.
Good idea to let people know where we live too
Happy Xmas Maeve x

Thanks for your reply Ellie, its very helpful, the link was very useful too.
Happy Xmas Maeve x

Hello there

I am sure several people on this forum have had a wet room installed.

I am just at the planning stage & wondered if any of you can advise me of what I will need & what to avoid. ...

Hi Bern, yes I do I am originally from Jarrow. Haven’t lived there for many years but still call it home & I love to go back there when I can
Love. Maeve x

Hi Bern, I bet it sounds great, with a Jarra accent. Maeve x