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  1. Thread: Frieda

    by Frieda
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    7,906

    I am getting a gadget to establish how much...

    I am getting a gadget to establish how much oxygen I get during the night. I assume that if it's not enough I may get an oxygen machine? In a leaflet from the mnd patient guide it says Oxygen therapy...
  2. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Hi Sheila, Lynne and Terry, My energy is fine, I...

    Hi Sheila, Lynne and Terry,
    My energy is fine, I am eating loads.
    Sent an email to mnd nurse asking for advice, not taking tablet tonight. Thanks for your helpful comments, you're stars! Love xox
  3. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Hi, last night was my 3rd night with just 5 mg...

    Hi, last night was my 3rd night with just 5 mg Baclofen. In the night I was very tired and was only half awake when using the commode, which was ok. But I am also dopey today and dozing, also ok. But...
  4. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Thank you so much, dear Ellie! Still good on day...

    Thank you so much, dear Ellie! Still good on day 2, so glad. Love, Frieda xox
  5. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Thank you,. Terry. My limbs have suddenly become...

    Thank you,. Terry. My limbs have suddenly become quite stiff, I have started with 5 mg, so far so good.
  6. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Yes, Kayleigh, I have a physio, who gets things...

    Yes, Kayleigh, I have a physio, who gets things done, like getting a hospital bed, a rollator and now I have one for upstairs as well to get from bedroom to bathroom. I am lucky. Have a good evening...
  7. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Thank you for the website Kayleigh, very helpful...

    Thank you for the website Kayleigh, very helpful and also your advice again, Ellie. My walking is getting worse by the day. Having relief on my right leg for keeping upright, it now twists and bends...
  8. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Dear Andy and dear Ellie, thank you so much for...

    Dear Andy and dear Ellie, thank you so much for your help ful suggestions. So I have a new box of 10 mg tablets and thought I could cut them in half to try. But now I have diarrhea again and don't...
  9. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    It was 10 mg I took at night. And looking back in...

    It was 10 mg I took at night. And looking back in my diary I saw that I felt nauseous after the third night, which did go away after breakfast. That's not something I normally get, whereas diarrhea...
  10. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Thank you, I'll try building up slowly. I am...

    Thank you, I'll try building up slowly. I am always suspicious of pharma and maybe read leaflets to closely...
  11. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Thank you all, maybe I'll try Baclofen again, I...

    Thank you all, maybe I'll try Baclofen again, I don't remember what strength I had. I was so distressed by the diarrhea, having accidents etc I threw them away...
  12. Thread: Frieda

    by Frieda
    Replies
    41
    Views
    7,906

    Frieda

    I was diagnosed with mnd/ALS in August this year. I was given Baclofen to stop muscles seizing up. Worked well but on day 3 I had violent diarrhea, which lasted for 3 days and I stopped them. Now I...
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