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Type: Posts; User: panniertank

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    Thank you all for your feedback. I am sorry Shrew...

    Thank you all for your feedback. I am sorry Shrew that Mick doesn't have the confidence to drive anymore. I can still drive at the moment and it is one of the few things I do that feels normal. My...
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    I fell in my house today but fortunately didn't...

    I fell in my house today but fortunately didn't hurt or break anything. My right leg is weak and affects my balance when walking. But very occasionally (not even every week) it just suddenly gives...
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    Thank you all for your feedback and advice. The...

    Thank you all for your feedback and advice. The only time I ever feel positive , I think, is when I am in denial. I will get re-diagnosed or my symptoms will just go into remission. But, As one of my...
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    Thanks Lynne and Gillette. I have asked about...

    Thanks Lynne and Gillette. I have asked about walking frames but my physio's don't feel I am at that stage so they have given me walking sticks. I do have access to palliative care at my MND clinic....
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    It's 5 months since my diagnosis and I still...

    It's 5 months since my diagnosis and I still can't come to terms with it. I can still drive and walk at the moment although my balance is bad as well as the strength of my right leg. I have slightly...
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    Thank you Rachel. My next MND clinic appointment...

    Thank you Rachel. My next MND clinic appointment is next week so I will make a list of questions to ask them based on your's and everyone else's advice in conjunction with my own thoughts / concerns.
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    Thank you kd1and Ellie for your advice.

    Thank you kd1and Ellie for your advice.
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    Hi, I am ashamed to state I am not entirely sure...

    Hi, I am ashamed to state I am not entirely sure what is meant by hospice. I have assumed it is a specialist hospital but the NHS also refers to "hospice care". When diagnosed I was referred to a...
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    [QUOTE=kd1;89852]Hi, ; for me the OT has been...

    [QUOTE=kd1;89852]Hi,
    ; for me the OT has been crucial and the MND nurse useful.
    Thank you kd1. Yes at the moment my OT is going to be key to my decisions. Another question. Have you set up a...
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    Thank you music man's wife. I have contacted the...

    Thank you music man's wife. I have contacted the MND clinic to ask if they can contact a social services worker so l can try to understand what care options will be available.
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    Thank you Debbie. Yes, the biggest reassurance I...

    Thank you Debbie. Yes, the biggest reassurance I have at present is the MND clinic staff. But, no fault of their own, some things just seem to be taking a long time to sort out. When I cared for my...
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    Thank you for your response johnburton. Are you...

    Thank you for your response johnburton. Are you still at the independent stage or do you have social careers assisting you?
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    Living alone with mnd

    Hello. Can you give me any advice about living alone with MND. I am single with no partner and my family will be unable to provide practical support. I will soon be seeing a surveyor to assess if my...
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    Hi Rajesh. Sorry, was your question for me ?...

    Hi Rajesh. Sorry, was your question for me ? Apologies if it wasn't. But if it is then I am at the early stages of MND. The symptoms were very very subtle during 2018. They then suddenly worsened in...
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    Hello music mans wife. I am so sorry your husband...

    Hello music mans wife. I am so sorry your husband was diagnosed with MND. Incredibly my spinal condition is also AS. I was amazed that my symptoms were not due to AS spinal or nerve damage. Was your...
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    Hi again. I saw my GP yesterday as I fell on...

    Hi again. I saw my GP yesterday as I fell on Thursday and hurt my right arm. I did mention my chronic insomnia and anxiety/ panic attacks and she has put me back on a small dose of antidepressant...
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    thank you

    Thank you all for your feedback. I apolgise if I haven't replied to all of you individually. This is the first forum I have ever joined and i am one of those people who has never used social media...
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    new member / single person

    Hello,
    I was diagnosed with MND in January this year (2019). it was devestating especially as i have suffered with a serious rheumatic condition in my spine for nearly 20 years. At the...
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