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  1. Replies
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    Thanks everyone. I will make more in depth...

    Thanks everyone. I will make more in depth inquires.

    Ann
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    MND and antibiotics

    I have had the most dreadful week and wonder if other members of the forum have had any similar experiences.

    On PH Saturday I felt very unwell and phoned 111. The duty doctor visited me at home...
  3. Thread: Heartbroken

    by Annb
    Replies
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    4,262

    Oh Shrew, of course you aren't responsible. You...

    Oh Shrew, of course you aren't responsible. You really don't know what happened. You are still in shock. Even when you know it is going to happen death it is always a shock. You cared for your...
  4. Thread: Hi, Im Juan

    by Annb
    Replies
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    2,993

    Hello Ellie I always value your contribution....

    Hello Ellie
    I always value your contribution. Thank you for your suggestion.
    I am using a wooden spoon to open the microwave at the moment but it is getting harder. I will try the key grip.
    I...
  5. Thread: Hi, Im Juan

    by Annb
    Replies
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    2,993

    Hello Kayleigh I am having a big problem...

    Hello Kayleigh

    I am having a big problem sleeping at night due to leg discomfort, pain and an inability to turn over which wake me up several times. The recent hot weather has made things a lot...
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    Hi Lynne There are four seats in my particular...

    Hi Lynne
    There are four seats in my particular car. Some have only three. I drive in and sit behind and between the two rear seats. I have two grandchildren so they can travel in the back with me....
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    I am so pleased you found a car that you like at...

    I am so pleased you found a car that you like at the NEC Lynne. It sounds wonderful.

    I am not eligible for the mobility scheme but have managed to find an ex-mobility vehicle. It's a three year...
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    Thank you for your advice Dina. I think you are...

    Thank you for your advice Dina. I think you are right that I need to look for an ex-WAV but the problem is I am not sure how to locate one. I have spent hours googling on the internet and have been...
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    Advise on accessible cars please

    Can anyone suggest which is the best secondhand accessible car to buy .
    I have been unable to drive my car for several months now but when my daughter takes me shopping in it I find getting in and...
  10. Thread: Voice banking.

    by Annb
    Replies
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    6,202

    Barry - I think some NHS provisions are a postal...

    Barry - I think some NHS provisions are a postal lottery and depends on the Trust.. In my area SALT will assist with Model Talker but they do not provide iPads. My local hospice are generous to a...
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    It was disappointing that the threshold was not...

    It was disappointing that the threshold was not met but they realised a shift in criteria could make the drug worth pursuing. They can only find out certain facts when the research is reviewed, as in...
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    BBC PROGRAMME ON PARKINSONs DRUG TRIAL

    I watched a programme on BBC last night about a level II drug trial for Parkinsons. It showed how L2 trials are conducted and it charted the patients over several years. The failure of certain...
  13. Thread: Stair lift

    by Annb
    Replies
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    1,729

    Hello Hazzle Our stairlift has proved...

    Hello Hazzle
    Our stairlift has proved invaluable. It was fitted initially for my husband and now I live alone it allows me to go upstairs in my house.
    We did look at through the floor lifts too....
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    To those who know Charles. He is quite poorly at...

    To those who know Charles.
    He is quite poorly at present and feeling very low. I am sure he would appreciate some cheery PMs
    Ann
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    Hello Maid I can understand your present...

    Hello Maid
    I can understand your present frustrations and fear having recently being given your diagnosis.
    I was diagnosed in August 17. I went for a carpal tunnel test and received my devastating...
  16. Thread: Finding comfort

    by Annb
    Replies
    59
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    11,700

    Glove

    Hello Andy

    Please can you post details of the special glove you have found.

    Many thanks Ann
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    We recently visited London for an appointment...

    We recently visited London for an appointment with my Consultant and decided to make the most of the day. We discovered that the Tate Britain offers free parking at the rear of the gallery and the...
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    Hello Barry I had been looking for a lighter...

    Hello Barry

    I had been looking for a lighter kettle, possibly with a tip-motion. However, i am now considering the water boiler you have recommended. I notice in the picture that the cup is being...
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    I would be interested to hear about any possible...

    I would be interested to hear about any possible lightweight folding electric wheelchairs too. I am very pleased with my salsa2 it is comfortable for use at home but it cannot go in a normal car. I...
  20. Interestingly, it seems that MPs are replying...

    Interestingly, it seems that MPs are replying with a standard letter prepared by the government. I received the letter below from Dominic Rabb MP when I sent him the MNDA letter.

    Dear Ann,


    ...
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    The survey connection does not appear to be...

    The survey connection does not appear to be working.
  22. Thread: Aches and pains

    by Annb
    Replies
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    2,135

    Hello Andy I have suffered from backache...

    Hello Andy
    I have suffered from backache recently. The physio checked me out and found nothing too amiss but suggested some exercises to improve my posture. However, when I saw my Consultant a few...
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    Twinkle - Have you asked about your husband...

    Twinkle - Have you asked about your husband having an electric chair? I think you are entitled to one if you have MND. I would give the Wheelchair Service a ring or ask your OT to refer you, as I...
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    My Salsa Mini electric wheelchair was delivered...

    My Salsa Mini electric wheelchair was delivered last week. There must be more than one version because mine has 5 speed levels and it's very easy to increase and decrease the speed. It also has...
  25. Thread: Living on my own

    by Annb
    Replies
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    4,249

    Hello Annie After reading Bernie's reply I...

    Hello Annie
    After reading Bernie's reply I thought I would I add my own thoughts.
    Our stair-lift was originally fitted for my husband. He was heavy and I had a lot of problems helping him to get on...
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