Search:

Type: Posts; User: Cookewitch

Page 1 of 20 1 2 3 4

Search: Search took 0.06 seconds.

  1. East Sussex Support Group Meeting - Saturday 8 October 2016

    We will be having a support group meeting for those living with MND and their carers on Saturday 8 October 2016 at 2pm to 4pm.

    The venue is Church End in Lewes. Come along and say hello

    If you...
  2. East Sussex Support Group Meeting - Saturday 14 May 2016

    We will be having a support group meeting for those living with MND and their carers on Saturday 14 May 2016 at 2pm to 4pm.

    The venue is Church End in Lewes. Come along and say hello

    If you...
  3. East Sussex Support Group Meeting - Saturday 6 February 2016

    We will be having a support group meeting for those living with MND and their carers on Saturday 6 February 2016 at 2pm to 4pm.

    The venue is Church End in Lewes. Come along and say hello

    If...
  4. Replies
    3
    Views
    3,227

    I was about to have one but sadly dad passed away...

    I was about to have one but sadly dad passed away before it could take place but the idea of it was very similar to that you've described.
  5. Replies
    22
    Views
    9,665

    So sorry for your loss. Thinking of you and...

    So sorry for your loss. Thinking of you and yours x
  6. Replies
    20
    Views
    8,335

    Dad had the twitching but he also suffered with...

    Dad had the twitching but he also suffered with his eyes watering and stinging for no reason....could have been the MND, we weren't sure. I had off the shelf eyedrops which helped. The ones from...
  7. Just a little reminder about our support group...

    Just a little reminder about our support group meeting this coming weekend.
  8. Replies
    16
    Views
    5,326

    I second Miranda, we were given a note pad from...

    I second Miranda, we were given a note pad from the MND Association which Dad could then right a message on whilst he was still able.
  9. East Sussex Support Group Meeting - Saturday 24 October 2015

    We will be having a support group meeting for those living with MND and their carers on Saturday 24 October 2015 at 2pm to 4pm.

    The venue is Church End in Lewes. Come along and say hello :)

    ...
  10. Replies
    18
    Views
    8,658

    Sorry to hear of your loss x

    Sorry to hear of your loss x
  11. East Sussex Support Group Meeting - Saturday 22 August 2015

    We will be having a support group meeting for those living with MND and their carers on Saturday 22 August 2015 at 2pm to 4pm.

    The venue is Church End in Lewes. Come along and say hello :)

    If...
  12. Replies
    31
    Views
    12,304

    So sorry to hear your news. Will be thinking of...

    So sorry to hear your news. Will be thinking of you and yours x
  13. Replies
    13
    Views
    6,327

    I know what you mean Nettie. There doesn't seem...

    I know what you mean Nettie. There doesn't seem to be enough support or follow on for bereaved carers.
  14. Just a little 'bump' as we have our Support Group...

    Just a little 'bump' as we have our Support Group Meeting this Saturday....there will be cake!
  15. Replies
    25
    Views
    15,497

    Glad you've got the creams Anna, Cavilon worked...

    Glad you've got the creams Anna, Cavilon worked wonders on an area Dad had that was deemed stage 1.
  16. Replies
    25
    Views
    15,497

    There are special creams that you can get on...

    There are special creams that you can get on prescription which help if you don't have them already. Proshield is one and this is better used as a preventative. If you have what could become a...
  17. East Sussex Branch Support Group Meeting - Saturday 20 June 2015

    We will be having a support group meeting for those living with MND and their carers on Saturday 20 June 2015 at 2pm to 4pm.

    Please note that the venue will now be Church End in Lewes. Pop the...
  18. Replies
    4
    Views
    2,169

    Most local branches have support group meetings...

    Most local branches have support group meetings for those with MND and their carers. I'm not sure what area you're in but your local branch will be able to let you know and many of them post in the...
  19. Replies
    25
    Views
    9,749

    I would suggest that this is opened up to...

    I would suggest that this is opened up to bereaved carers, we have invaluable experience and insights that can be shared.
  20. Thread: Grieving

    by Cookewitch
    Replies
    334
    Views
    118,330

    I was worried about going to see Dad but I'm so...

    I was worried about going to see Dad but I'm so glad I did. Seeing him back in his 'normal' clothes and not in pj's etc meant I was left with an image of the Dad that I remembered before...
  21. Replies
    7
    Views
    2,862

    I remember when my dad was diagnosed the...

    I remember when my dad was diagnosed the whirlwind of people coming and going was really tough.....telling you things but in all honesty most of them next to no help. This forum was my...
  22. Thread: Hi folks

    by Cookewitch
    Replies
    31
    Views
    13,472

    I used to do it for my Dad it was a good...

    I used to do it for my Dad it was a good 'benchmark' if you like.
  23. East Sussex Branch Support Group Meeting - 25 April 2015

    We will be having a support group meeting for those living with MND and their carers on Saturday 25 April 2015 at 2pm to 4pm.

    Please note that the venue will now be Church End in Lewes.

    If...
  24. Replies
    5
    Views
    3,380

    I think donating it to the MNDA is a great...

    I think donating it to the MNDA is a great idea....who better to make sure it gets to someone who really needs it.....my Dad's one was loaned to him by the MNDA :)
  25. Replies
    11
    Views
    5,303

    I certainly do think it's postcode dependant. If...

    I certainly do think it's postcode dependant. If your mum has a nurse offering weekly visits I'd take it! All Dad got was the consultant from the hospice come round now and again and when I tried...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4