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  1. Replies
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    My m a m had pseudo bulbar palsy, does she still...

    My m a m had pseudo bulbar palsy, does she still have speech ? Hope you are caring for yourself
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    If you need information on emotional lability you...

    If you need information on emotional lability you should go to the the als association in the USA try the forum there and try mnd forums worldwide read what carers have said and what sufferers think...
  3. Thread: New

    by Streetwise
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    13,066

    if you know your husbands profession find out if...

    if you know your husbands profession find out if the charity connected to it can help you, if they can ask them for equipment ,advice on other areas we got a lot of help from our charity instead of...
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    I had the same experience with hospices, they...

    I had the same experience with hospices, they only help people who can talk with cancer ,we had best help at the MS respite centre at Leuchie (its not a servite convent now -its secular)near north...
  5. my mam Was like you ,lived another two years,...

    my mam Was like you ,lived another two years, that was 20 years ago, it appears to have extended I was informed because of the care that is given ,she didn’t take any drug so I don’t know anything...
  6. Thread: Help needed

    by Streetwise
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    3,359

    Look up fasciculations for yourself on the...

    Look up fasciculations for yourself on the Internet ,it is possible for them to be visible because of stress or a virus like flu or one of the motor neurone diseases ,I get them a lot but I suffer...
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    moving

    Could you swap to a council property ,we nearly had one 25 years ago,Heres portsmouth.gov.uk, southampton.gov.uk,Lewes.gov.uk, they all contain advice on council and private housing.:)
  8. Thread: Check in

    by Streetwise
    Replies
    11
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    3,815

    All I did was buy what I thought might help but I...

    All I did was buy what I thought might help but I was paying the bills and she helped me (but I didnt leave the nursing home very often !as she was so paralysed her vocal cords !had gone early on...
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    no it doesnt sound like my mam at all ,you sound...

    no it doesnt sound like my mam at all ,you sound run down not a surprise
  10. Thread: Check in

    by Streetwise
    Replies
    11
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    3,815

    look up expenses sheet on the Internet ,When I...

    look up expenses sheet on the Internet ,When I fill them out for applications! it just usually comes down to utilities so that’s gas, electric ,water then groceries! but that includes cleaning...
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    to be honest we wouldn’t of known my mothers if...

    to be honest we wouldn’t of known my mothers if we didn’t get a free magazine called The Law Gazette Because she was a member of the Law Society, it’s one very small charity that had one tiny advert...
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    Do you know the name of the charity for your...

    Do you know the name of the charity for your profession ?if so you could apply for assistance ,see if they could get you a stand chair, to stand you up right
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    do you think you’re at the point where the house...

    do you think you’re at the point where the house is too much of a burden? if not start shopping for a carers agency ,don’t necessarily just take one social services offers , don’t pretend about...
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    If hes over 55 he could be prescribed melatonin...

    If hes over 55 he could be prescribed melatonin its a natural hormone it regulates sleeping and waking
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    8,293

    I don't have motoneuron disease but I had an...

    I don't have motoneuron disease but I had an infection 12 years ago and since that time everything has changed in flavour from what I can gather it's because of starvation, I lost too much weight to...
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    my mam.was given amitryptiline but not for long...

    my mam.was given amitryptiline but not for long gp care was negligent at nursing home i take vit b complex its good for depression /anxiety
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    part 2 Sainsburys let you tick in the substitutes...

    part 2 Sainsburys let you tick in the substitutes box (which is on the checkout page )which you dont want substituting morrisons dont let you tell them beforehand but you can send unwanted items back...
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    one thing get an account with tesco as they give...

    one thing get an account with tesco as they give you a choice to substitute if they dont have the first thing you want none of the others do this ,the others just give you there choice which is a...
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    hello my mam did it in a sort of polite way then...

    hello my mam did it in a sort of polite way then she couldnt speak but it was embarassing in front of the carers most of my mothers siblings and some family could be cruel ,I take citalopram its a...
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    try adding extra virgin olive oil and sunflower...

    try adding extra virgin olive oil and sunflower oil to savoury things and coconut oil to sweet things they are both high in fat also appear to be very good for the skin
  21. how strong is your husbands grip? if he couldn't...

    how strong is your husbands grip? if he couldn't operate an electric wheelchair it will be a waste of time ,our application for housing was fast tracked !after !!!!the occupational therapist (Who...
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    hello good source of fat is extra-virgin olive...

    hello good source of fat is extra-virgin olive oil but don't cook with it Cook with plain Olive Oil ,it also appears to have been made for the top layer of skin have no idea why.
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    done

    done
  24. Your mum is coping with rapid! change and that is...

    Your mum is coping with rapid! change and that is hard !my mam was /still is to me !very independent! and took help!!!! from me !!!!!when she couldnt !!!!!avoid !!!!!me !
    You could play the 'do it...
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    let's say I got to know one neighbour very...

    let's say I got to know one neighbour very well!!!! as I never thought she (my mam)would get to the point where we needed help !!!in 1997 I had no idea what M.N.D did to the physical body!!!! there...
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