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  1. Thread: Pain/Agony

    by MNDConnect
    Replies
    62
    Views
    9,329

    Hi Hayls I am sorry to hear that you were...

    Hi Hayls

    I am sorry to hear that you were admitted to the Macmillan Unit. It's good to hear that things have improved. Fingers crossed for both you and Terry getting home soon.

    Best Wishes
    ...
  2. Replies
    12
    Views
    1,220

    Hi Juliette Thank you for letting us know. I...

    Hi Juliette

    Thank you for letting us know. I am pleased to hear that the Consultant has decided to prescribe another antibiotic.

    If you have any further concerns then please don't hesitate to...
  3. Replies
    12
    Views
    1,220

    Hi Juliette Is it possible that you could give...

    Hi Juliette

    Is it possible that you could give us a call to discuss this? Withdrawal of treatment is a complex situation and it would be easier to discuss it over the phone if possible. The...
  4. Thread: Pain/Agony

    by MNDConnect
    Replies
    62
    Views
    9,329

    Hi Hayls I'm sorry for the delay in responding...

    Hi Hayls

    I'm sorry for the delay in responding to your post. It looks as though Ellie covered everything (thanks Ellie ;)).

    There is anecdotal evidence to show that stress might impact on the...
  5. Replies
    5
    Views
    839

    Dear Helen82, It is very easy and perfectly...

    Dear Helen82,
    It is very easy and perfectly understandable for you to think any pain or twitching you feel could be related to MND especially when you are with your mum on a regular basis and are...
  6. Replies
    21
    Views
    2,830

    Sorry, I'm bombarding you with questions. I'm...

    Sorry, I'm bombarding you with questions. I'm happy to give you a call to discuss this if you'd like to. Please just private message me your telephone number. Or please feel free to give us a call...
  7. Replies
    21
    Views
    2,830

    Hi Lesley Is the dietary drink shot a...

    Hi Lesley

    Is the dietary drink shot a supplementary drink that she drinks slowly or is it a quick shot of something? It sounds as though this may have been the trigger. Has she had a recent...
  8. Replies
    21
    Views
    2,830

    Hi Lesley This must be very frightening for...

    Hi Lesley

    This must be very frightening for both you and your mam. Does anything in particular seem to trigger the attacks?

    Does she become breathless because of the attacks or is she...
  9. Replies
    77
    Views
    11,246

    Hi TAPG1 EMGs would probably be considered...

    Hi TAPG1

    EMGs would probably be considered more uncomfortable than painful. There are two parts to an EMG. One part uses very fine needles, a bit like acupuncture needles so they may be a little...
  10. Replies
    77
    Views
    11,246

    Dear Tapg1, I was so sorry to hear that you are...

    Dear Tapg1,
    I was so sorry to hear that you are in hospital. I am really hoping you get the care and support you need.
    Best wishes
    Ruth
  11. Replies
    3
    Views
    1,057

    Hi I am really pleased to hear that you are in...

    Hi

    I am really pleased to hear that you are in a much better place. It sounds as though you had a really nasty injury to your shoulder. When we break a bone, it never heals in exactly the way...
  12. Replies
    77
    Views
    11,246

    Hi TAPG1 We did discuss weight loss and MND at...

    Hi TAPG1

    We did discuss weight loss and MND at length recently over the phone. Weight loss in MND can be caused by someone not getting enough nutrition due to swallowing problems or through the...
  13. Replies
    77
    Views
    11,246

    Dear TAPG1, Thank you for updating us...

    Dear TAPG1,

    Thank you for updating us regarding your appointment with your psychiatrist.

    Hopefully, once your medication starts to work you will be able to look at your symptoms with more...
  14. Replies
    2
    Views
    1,057

    Dear Mikael, I am sorry to read that you have...

    Dear Mikael,

    I am sorry to read that you have been experiencing symptoms for over two years now with no obvious reason why.

    By posting on this forum I am assuming you are concerned that your...
  15. Replies
    14
    Views
    2,678

    Hello Bretange, I was so sorry to hear of your...

    Hello Bretange,
    I was so sorry to hear of your recent health problems. Many healthy people experience muscle twitching, and these are not usually a cause for concern. Often this symptom can be...
  16. Replies
    77
    Views
    11,246

    Hi TAPG1 I am sorry that you still have...

    Hi TAPG1

    I am sorry that you still have concerns and to hear that you are worried.

    As we've discussed previously, facial twitching in the way you describe would not be a typical symptom of...
  17. Replies
    77
    Views
    11,246

    Dear TAPG1, We are currently in the process of...

    Dear TAPG1,

    We are currently in the process of looking into this for you.

    We will let you know as soon as possible.

    Kind regards
    Jacqui Anderson
    Senior MND Connect Adviser
  18. Replies
    9
    Views
    1,973

    Dear Sarah, I am so sorry to hear how you and...

    Dear Sarah,

    I am so sorry to hear how you and your wife are struggling with your relationship in the face of the enormous strain this disease is putting you under.

    Does your wife have anyone...
  19. Replies
    5
    Views
    1,417

    Hi Mickey18, I am very sorry to hear that you...

    Hi Mickey18,

    I am very sorry to hear that you are concerned about possible MND. It’s understandable that you feel at a loss. Waiting for answers can be so difficult and worrying.

    If it would...
  20. Replies
    2
    Views
    1,108

    Hi Jordan, I am very sorry to hear that you...

    Hi Jordan,

    I am very sorry to hear that you have been experiencing these symptoms that are concerning you.

    I believe you have just had a telephone conversation at length with my colleague...
  21. Replies
    8
    Views
    2,071

    Hi Tapg1 As we discussed the other day,...

    Hi Tapg1

    As we discussed the other day, tingling and pins and needles are not symptoms of MND. These are caused by sensory nerves which are not affected by MND.

    If you stick your tongue out to...
  22. Replies
    77
    Views
    11,246

    Hi Tapg1 It was nice to speak to you this...

    Hi Tapg1

    It was nice to speak to you this morning. I am sorry that you are still worried.

    As we discussed this morning, if you had muscle wastage, you would know. Muscle wastage can be seen...
  23. Replies
    77
    Views
    11,246

    Hi Tapg1 Twitching on it's own would not...

    Hi Tapg1

    Twitching on it's own would not normally be considered a symptom of MND.

    MND can cause weight loss but so can many other things and again, you would expect to see other symptoms.
    ...
  24. Replies
    77
    Views
    11,246

    Hi Tapg1 Twitching is something that can be...

    Hi Tapg1

    Twitching is something that can be felt and is something that is experienced by about 70% of the population. For the majority of those people the twitching is caused by stress and...
  25. Thread: What Now?

    by MNDConnect
    Replies
    58
    Views
    6,010

    It sounds as though having a communication board...

    It sounds as though having a communication board may help things as it will make communication much easier for your Gran which will hopefully help with her frustration at being understood. If the...
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