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    You're not being a hypochondriac Andy :) - it's...

    You're not being a hypochondriac Andy :) - it's important to let Neuro know what symptoms you have to build up a picture of what's going on. Pins & needles aren't usually directly attributable to...
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    Given your diagnosis of "Possible ALS", you...

    Given your diagnosis of "Possible ALS", you should definitely tell your Neurologist this. When is your next appointment?
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    Hi Rick, No it's normal to have spontaneous...

    Hi Rick,

    No it's normal to have spontaneous recovery of function, but maybe the muscle tone changed, you're less tired or stressed, better fed or rested??

    Whatever the reason, take it with a...
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    Hi Kienstra, If you do an internet search on...

    Hi Kienstra,

    If you do an internet search on "Edaravone Europe", you'll find a Dutch company selling both Radicut and generic Edaravone.

    They've a live chat facility so you can see how far they...
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    I'm in Dublin. Yep, my Neuro is heavily...

    I'm in Dublin.

    Yep, my Neuro is heavily involved in research and there are breakthroughs coming thick & fast.

    Pity the pharmas & regulators are so slow. Here's to gene therapy!

    take care,...
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    Unfortunately not in your jurisdiction Steve. My...

    Unfortunately not in your jurisdiction Steve. My GP, a personal friend, has always been open to trying anything (within reason) but I'm in my 11th year with ALS and too disabled now to try...
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    Hi Steve, Have you had any joy re finding a...

    Hi Steve,

    Have you had any joy re finding a prescribing doctor?

    Ellie.
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    Why not contact the Dutch company selling the...

    Why not contact the Dutch company selling the drug to see if they can help with a prescribing doctor? You can't be the only person in the UK seeking Edaravone!

    Or a private Neurologist/Doctor...
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    Hi Steve, Have you asked your GP or...

    Hi Steve,

    Have you asked your GP or Neurologist if they would prescribe and administer the drug if you organised importation & paid for it?

    Ellie.
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