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Type: Posts; User: Doug Carpenter

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    Hi Jules Welcome to the forum where you find...

    Hi Jules

    Welcome to the forum where you find lots of help, support and love.

    Yes, do try taking Riluzole. As Ellie says, some people may experience side effects, but these are not common. I’ve...
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    Free stairlift

    I know of a second hand straight stairlift (Handicare Simplicity) that is being offered free to a good home – for a small donation to the MNDA. The track is in two equal parts – total length 412 cm,...
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    Hi Debbie Please empty your inbox. Doug

    Hi Debbie

    Please empty your inbox.

    Doug
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    Hi Steve Sorry this welcome is a bit late. I...

    Hi Steve

    Sorry this welcome is a bit late. I haven’t felt too bright recently.

    I just wanted to follow up on the eating part of your post. I’m not surprised you’re going for sugary things. Your...
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    Hi Lucy Welcome! And thank you for posting. ...

    Hi Lucy

    Welcome! And thank you for posting.

    I hope the great empathy and support you will find here is helpful.

    You’re clearly supporting your husband marvellously but, understandably, at...
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    Panniertank

    Morning folks

    Does anyone have news of Panniertank?

    She hasn’t posted since mid-April and had a lot on her plate at the time. I sent a PM recently but have received no reply.

    I’m worried.
    ...
  7. Hey Matthew HAPPY BIRTHDAY! Wine is a...

    Hey Matthew

    HAPPY BIRTHDAY!

    Wine is a serious hobby of mine. Now I drink very little. So I make sure when I do it's VERY good wine.

    Doug
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    Oh good! Stay safe.

    Oh good!

    Stay safe.
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    I wonder if you are using the main style to...

    I wonder if you are using the main style to display the pages or a mobile style.

    At the very bottom of a page, in the middle, do you see: Log out Main site Top

    If so, click on Main site.
    ...
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    Well, you tried..... Doug

    Well, you tried.....

    Doug
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    Many thanks Deb for your positive views on the...

    Many thanks Deb for your positive views on the Salsa Mini. That's very encourging to hear. My OT said she'd change anything as necessary.

    I'd like to hear more about that change of battery and...
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    Thanks Ellie(K) Yes, this morning was a lovely...

    Thanks Ellie(K)

    Yes, this morning was a lovely morale boost. I've been feeling a bit low recovering from a tummy bug.

    Yes, as far as I know. It was specified by my MND OT. It seems to have...
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    Times two!

    Today I received a warrant from NS&I telling me I’ve won £50 on the premium bonds, which my father gave me about forty years ago! Every little helps.

    But….but…..much more importantly, my OT has...
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    Welcome to the Forum David. Sorry you've had...

    Welcome to the Forum David.

    Sorry you've had to join us, but you will find a huge amount of information, support and friendship here.

    Your positive attitude is one of the best therapies.
    ...
  15. Thread: Ivan

    by Doug Carpenter
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    Hi Ivan Just a quick update on high calorie...

    Hi Ivan

    Just a quick update on high calorie nutritional drinks.

    The link I included in my 20.31 post yesterday is not appropriate. It goes to the US site. Here is the specific Ensure product...
  16. Thread: Ivan

    by Doug Carpenter
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    Hi Ivan Welcome to the Forum. I was so sorry...

    Hi Ivan

    Welcome to the Forum. I was so sorry to read of your wife’s diagnosis.

    Based on recent personal experience, may I pick up on one aspect of it: weight loss.

    To an extent, loss of...
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    That's marvellous news Andy! Wishing you a...

    That's marvellous news Andy!

    Wishing you a smooth move

    Bon voyage!

    Doug
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    Many thanks Debbie! Doug x

    Many thanks Debbie!

    Doug x
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    MND is very sneaky!

    While I was looking one way, monitoring changes in what I thought was important - decreasing ability to walk, weight loss, hand and arm strength - MND sneaked past and I suddenly discovered I was...
  20. Thread: Als

    by Doug Carpenter
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    Thanks for posting Puddy. I was beginning to...

    Thanks for posting Puddy.

    I was beginning to fear the Forum itself had gone into lockdown!

    Thinking of you both.

    Doug
  21. Hi Andy Given the diverse nature of those...

    Hi Andy

    Given the diverse nature of those already listed. I’m not sure what criteria you’re using.

    It’s good to see Lee Millard listed by the way.

    But if you’re thinking of people who make...
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    Hi David Thank you ever so much for posting a...

    Hi David

    Thank you ever so much for posting a detailed and positive description of your RIG experience. It’s of enormous help to people like me who know the theory but have not yet faced the...
  23. Andy I agree it feels like that sometimes. ...

    Andy

    I agree it feels like that sometimes.

    Three possible reasons:

    Terry

    Kayleigh
  24. Thread: Hi

    by Doug Carpenter
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    Hi Diddly (lovely name!) A warm welcome,...

    Hi Diddly (lovely name!)

    A warm welcome, though sorry of course you've had to join us.

    Just on the matter of voice banking - The system currently favoured by the MNDA is Acapela; they may even...
  25. Hi Peanut I bought a Sennheiser PC36 call...

    Hi Peanut

    I bought a Sennheiser PC36 call control headset for about £50 for the same purpose. Very good headphone sound and microphone. It's been very useful since.

    Doug
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