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  1. Thread: bots

    by Jay_MND
    Replies
    12
    Views
    7,493

    Hello all, I appreciate you flagging these...

    Hello all,

    I appreciate you flagging these suspected spam post, it was indeed spam and the user has been permanently banned. All threads and posts have also been deleted.

    Thanks again and I...
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    Thumb Print Magazine

    Hello All,

    Do you read the Association's magazine - Thumb Print?

    We would love to get your thoughts about what should be included, what we do well and what could be improved.

    If you have the...
  3. Replies
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    16,230

    Voice Banking News - ModelTalker

    Hello All

    From the 1st of July 2017, voice banking technology company, ModelTalker, will begin to charge users to download their finished voice. The service is currently free of charge.

    As long...
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    1,861

    The 2017 Improving MND Care Survey is now open. ...

    The 2017 Improving MND Care Survey is now open.

    This year, we are combining our Carers survey and Improving MND Care survey. This is the first time we have done this and we hope it simplifies the...
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    Safety for Wheelchair Users on Trains

    Rica, who conduct consumer research for older and disabled people, is working with Integrated Transport Planning Ltd (ITP) on a project for the Rail Safety and Standards Board (RSSB) looking at...
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    1,861

    Hello Barry, this is a brand new survey for...

    Hello Barry, this is a brand new survey for everyone to fill in again. We want to see if there have been any changes.

    Thank you.
  7. Replies
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    1,861

    Improving MND Care and Carers Survey 2017

    We will be launching an important survey later this month. This will be focused on understanding what it is like to live with MND, or to care for someone with the disease.

    The output from the...
  8. Replies
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    Sticky: Our second 2017 Regional Conference takes place...

    Our second 2017 Regional Conference takes place tomorrow (Saturday 06 May) in Liverpool.

    We will be live streaming the whole conference on Facebook. Visit facebook.com/mndassociation. You'll be...
  9. Thread: New

    by Jay_MND
    Replies
    10
    Views
    3,820

    Hello Leanne We're very sorry to hear about...

    Hello Leanne

    We're very sorry to hear about your diagnosis today.

    Our online forum community are an amazing group of people who help each other by sharing personal experiences and tips.
    ...
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    Sticky: The dates for our 2017 Regional Conferences and...

    The dates for our 2017 Regional Conferences and AGM have now been announced. The dates for your diaries are as follows;

    Sat 11 March; Holiday Inn - Taunton
    Sat 06 May; Crowne Plaza -...
  11. Thread: Symposium Live

    by Jay_MND
    Replies
    5
    Views
    2,906

    Hello All Now the Symposium is over, we'd love...

    Hello All

    Now the Symposium is over, we'd love to know what you all thought of our new Symposium Live webpage?

    Did you find it useful? Did you learn anything new about MND research? Was it easy...
  12. Thread: Symposium Live

    by Jay_MND
    Replies
    5
    Views
    2,906

    It's the second day of our International...

    It's the second day of our International Symposium.

    We've had over 1000 visitors to our Symposium Live page which sums up 10 subjects that will be discussed at the conference. You can take a look...
  13. Thread: Symposium Live

    by Jay_MND
    Replies
    5
    Views
    2,906

    Today is the iMNDA (Irish Motor Neurone Disease...

    Today is the iMNDA (Irish Motor Neurone Disease Association) and the International Alliance of ALS/MND Associations afternoon with three experts in the field of ALS/MND care and research.

    The...
  14. Thread: Symposium Live

    by Jay_MND
    Replies
    5
    Views
    2,906

    Symposium Live

    It's the MND Association's International Symposium next week.

    We've picked 10 popular themes and produced videos and text explaining how they can impact all people affected by MND. Check them out...
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    Thank you all for your responses, they've been...

    Thank you all for your responses, they've been fantastic and we will love sharing them with other people.

    Thanks again, Jay.
  16. Replies
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    What does this forum mean to you?

    Hello All

    We are looking to produce an informative board promoting our care forum for those living with motor neurone disease. It will be used at our Regional and Annual Conferences where we will...
  17. Christmas Card Competition - Children & Young People

    Between 27 October and 16 December we are running a Christmas card competition open to children and young people.

    There are two age groups, and a winning design from each will be printed as one of...
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    The cost of MND; take part in research.

    Demos is partnering with the MND Association to undertake research into the hidden costs associated with MND.

    They are looking for people with MND to take part in the research as diary keepers....
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    Sticky: Our next Regional Conference is being held on...

    Our next Regional Conference is being held on Saturday 29 October in Thorpe Park Hotel & Spa, Leeds.

    If you're living with MND, you and your family and/or carer can attend for free. If you're an...
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    Our AGM and Annual Conference takes place on...

    Our AGM and Annual Conference takes place on Saturday at East Midlands Airport.

    If you're attending we look forward to seeing you. If you're not able to attend, you can watch the day as it happens...
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    Brilliant Barry. We will see you soon. Jay

    Brilliant Barry.

    We will see you soon.

    Jay
  22. Replies
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    27,005

    Have you registered to attend our Annual...

    Have you registered to attend our Annual Conference and AGM yet?

    The conference takes place on Saturday 10 September at East Midlands Airport.

    You'll hear the latest updates on all things MND,...
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    Neurological Alliance Survey

    The Neurological Alliance has launched its second neurological patient experience survey.

    The survey aims to collect vital information about the experiences of care received by people affected by...
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    We're pleased to announce that our 2016 AGM and...

    We're pleased to announce that our 2016 AGM and Annual Conference is taking place on Saturday 10 September 2016 at the Radisson Blu Hotel at East Midlands Airport.

    The conference is a great...
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    22,218

    Sticky: Don't forget - our next Regional Conference takes...

    Don't forget - our next Regional Conference takes place on Saturday 2 July in Crewe, Crewe Hall.

    If you're living with MND, you and your family and/or carer can attend for free. If you're an...
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