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Type: Posts; User: stev50

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  1. Thread: Als

    by stev50
    Replies
    13
    Views
    4,336

    Hi Puddy, Welcome to this forum I have been...

    Hi Puddy,
    Welcome to this forum I have been absent from this forum for a while. I know who you feel with your situation. I have lived and cared
    for my loved one and witnessed plateaus and...
  2. Replies
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    4,517

    Hello to all those who kindly responded, As you...

    Hello to all those who kindly responded,
    As you can see I have been off line for a short while. We finally laid Doreen to rest on 27th December, attended by her family, friends and warmly by some...
  3. Replies
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    4,517

    Thank you all for your kind responses. Doreen...

    Thank you all for your kind responses. Doreen will be laid to rest on 27th December, but as usual, not without a fight :D!
    regards Steve
  4. Replies
    15
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    4,517

    To My Friends on the Forum

    Sadly tonight my lovely wife Doreen died in my arms with her family in attendance. D was diagnosed with ALS/PBP in April 2017 and eventually ended up quadriplegic, peg fed and unable to communicate...
  5. Replies
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    1,832

    Hi Annjac, Sorry to hear you are...

    Hi Annjac,
    Sorry to hear you are feeling onset symptoms and waiting for diagnosis. From my experience as a carer of my wife "D ,s" travel and movement is difficult when it comes to...
  6. Thread: Frieda

    by stev50
    Replies
    41
    Views
    9,556

    Hi Frieda, Welcome to the forum Sorry to hear...

    Hi Frieda, Welcome to the forum
    Sorry to hear you have your diagnosis and are having issues with medication. I guess I am speaking on behalf of my wife D as her carer. D has had the same problems...
  7. Thread: Limb Tremors

    by stev50
    Replies
    2
    Views
    1,575

    Hi Ellie, thanks for your reply. Sorry for a...

    Hi Ellie,
    thanks for your reply. Sorry for a late response. Been ill myself after my latest re-occurring cancer inspection, all clear! but had infection afterwards. Back up and fighting again!....
  8. Thread: Limb Tremors

    by stev50
    Replies
    2
    Views
    1,575

    Limb Tremors

    My wife D is now into her third year of MND diagnosis. She is now fully quadriplegic and has been incapable of voluntarily moving her limbs. Lately i have noticed she has significant tremors in both...
  9. Replies
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    2,774

    Devonmaid, As a carer...

    Devonmaid,
    As a carer for my wife who is now in the palliative stage of MND I admire your resolve, support and tenderness you have given Tony. So often its is a forgotten...
  10. Thread: Pain in bed

    by stev50
    Replies
    19
    Views
    10,710

    Hi Andrewoz ,, i have tried different variations...

    Hi Andrewoz ,, i have tried different variations of beds for my wife D who along the journey is now quadraplegic. Having tried top of the range, i am told by the ot, which did not work for D, we...
  11. Replies
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    7,716

    Hi Tim / murrjo 1, I can fullly understand how...

    Hi Tim / murrjo 1,
    I can fullly understand how you feel right now. My wife D has PBP /ALS and has recently become quadraplegic. She also suffers from restless feet syndrome. We have reached the...
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