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  1. Thread: Telling Family

    by miranda
    Replies
    14
    Views
    1,104

    Hello Tess. I wonder why he doesn’t want to tell...

    Hello Tess. I wonder why he doesn’t want to tell family about his diagnosis? With the easing of lockdown, I would guess family might seeeven more differences than you do who has been with him every...
  2. Thread: Introduction

    by miranda
    Replies
    13
    Views
    1,058

    Welcome John. I’ve had a PEG for several years...

    Welcome John. I’ve had a PEG for several years but still manage a soft food diet and only use the tube for meds and extra water. Hope it all goes well.
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    507

    Welcome Kate and Victor. I’m sure you will find...

    Welcome Kate and Victor. I’m sure you will find the forum supportive as you both as carers need to think of yourselves as well as your loved ones. Do,please ask questions, someone will probably know...
  4. Thread: Hello everyone

    by miranda
    Replies
    13
    Views
    1,290

    Welcome Jules. Your loo seat question is a first...

    Welcome Jules. Your loo seat question is a first as far as I can recall!! Seriously, if your balance is compromised, then the potential for a fall with a hard landing is very risky. It’s often...
  5. Replies
    5
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    559

    Did you have the seat belt on?

    Did you have the seat belt on?
  6. Thread: Cutlery

    by miranda
    Replies
    4
    Views
    1,212

    https://www.completecareshop.co.uk/eating-aids/ada...

    https://www.completecareshop.co.uk/eating-aids/adapted-cutlery/bendable-spoon

    I have this set of cutlery. You can bend them to the angle which best suits you. Not too heavy and easy to hold. ...
  7. Replies
    21
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    2,561

    Hello Denise. Welcome to the forum. It’s good...

    Hello Denise. Welcome to the forum. It’s good to see that you alreadyfeel better for having shared your worries. With time, you will both develop different ways of coping and learn to adapt. There...
  8. Replies
    11
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    1,572

    Hi Bexxy. There is absolutely no need for you to...

    Hi Bexxy. There is absolutely no need for you to buy any equipment ". In addition to what has already been said, your local Speech Therapy team (part of NHS) will assess, advise ant provide...
  9. Thread: Moving house

    by miranda
    Replies
    13
    Views
    2,584

    Good to have you back here.

    Good to have you back here.
  10. I use a iPad mini but voice banking came too late...

    I use a iPad mini but voice banking came too late for me so I don’t know about storage requirements. The standard one is too heavy and cumbersome. It’s worth contacting the local speech therapy...
  11. Replies
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    1,480

    Welcome to our forum Sue. I don’t have any...

    Welcome to our forum Sue. I don’t have any personal experience but hopefully someone will be in touch with some answers for you. On more general matters related to MND please don’t hesitate to ask...
  12. Thread: New to Posting

    by miranda
    Replies
    9
    Views
    1,447

    Welcome Lucy. I can only imagine how...

    Welcome Lucy. I can only imagine how overwhelming it must be for you both to cope with life with MND especially now with coronavirus taking centre stage in all our lives and limiting our normal...
  13. Replies
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    944

    Wishing you well too. Hope you find a relevant...

    Wishing you well too. Hope you find a relevant online forum for support now you have a firm diagnosis.
  14. Replies
    5
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    1,069

    I Hayls I thought this said superglue. Now I...

    I

    Hayls I thought this said superglue. Now I can’t stop giggling! I can so,picture you and hubby struggling Debbie - you have to,laugh or cry! Or maybe do both. Anyway good luck with getting...
  15. Thread: Ric feed

    by miranda
    Replies
    7
    Views
    1,113

    I had a PEG fitted many years ago but have only...

    I had a PEG fitted many years ago but have only used it for meds and extra hydration. I manage with a soft food diet but can’t swallow tablets.
  16. Thread: Lost

    by miranda
    Replies
    27
    Views
    4,013

    Welcome Jackie to our forum. It’s good that you...

    Welcome Jackie to our forum. It’s good that you have found us after what must have been like a never ending nightmare. We all have different ways of coping and there absolutely no way we can answer...
  17. Thread: This forum

    by miranda
    Replies
    20
    Views
    2,609

    There was a recent post referring to the fact the...

    There was a recent post referring to the fact the forum wasn’t having as much traffic as normal. Several reasons were suggested but, personally, I think it’s to do with our reaction to lockdown and...
  18. Thread: inbox

    by miranda
    Replies
    14
    Views
    5,147

    Thanks Ellie. Itís emptied now xx

    Thanks Ellie. Itís emptied now xx
  19. Thread: Motability

    by miranda
    Replies
    13
    Views
    2,351

    RSA are the insurers for the motability scheme...

    RSA are the insurers for the motability scheme vehicles and have always been very helpful and understanding when we have had to contact them.
  20. Replies
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    2,461

    Welcome Matthew. Although no one wants a MND...

    Welcome Matthew. Although no one wants a MND diagnosis, you seem to have had the diagnosis quickly. Please don’t hesitate to ask questions - someone on the forum will usually have an answer or can...
  21. Replies
    22
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    11,592

    I’ve now got my new app for iPhone or iPad - it’s...

    I’ve now got my new app for iPhone or iPad - it’s called Speech Assistant and I am very happy with it.
  22. Thread: Hello Everyone

    by miranda
    Replies
    7
    Views
    1,448

    Welcome Tess. Please don’t ever feel there are...

    Welcome Tess. Please don’t ever feel there are questions you can’t ask. It’s a lot to take in but try to take a step at a time otherwise you will feel overwhelmed.
  23. Thread: Teeth Brushing

    by miranda
    Replies
    9
    Views
    1,588

    If using an electric toothbrush, donít switch it...

    If using an electric toothbrush, donít switch it on until itís in the mouth! One of my carers learnt the hard way!!!
  24. Replies
    14
    Views
    2,368

    I’ve got side rails fitted to my hospital bed and...

    I’ve got side rails fitted to my hospital bed and use these to haul myself over. I also have Wendylet sheets (Provided by my wonderful OT). These have a slippery fabric down the centre which helps...
  25. Replies
    12
    Views
    2,518

    Hello David and welcome. I lost my speech before...

    Hello David and welcome. I lost my speech before voice banking was available and used a wonderful cheap app called Speak It. Unfortunately it’s not now available and I’ve tried using Predictable...
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