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Type: Posts; User: Candle

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  1. Thread: RIP Dude

    by Candle
    Replies
    22
    Views
    6,762

    Hi Dudes Son I don’t really post much anymore...

    Hi Dudes Son

    I don’t really post much anymore but was sad to learn of Dudes passing. He always welcomed newbies and had some good advice. He will be sorely missed on the boards.

    Best wishes...
  2. Replies
    16
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    5,028

    My mother had an NG tube, which she used very...

    My mother had an NG tube, which she used very successfully for many months. I'm not sure how often it needed changing but it wasn't replaced in hospital. My niece had one for an altogether...
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    3
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    4,142

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    1
  4. Replies
    9
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    4,012

    Depending on the size of the dogs, would a...

    Depending on the size of the dogs, would a micro-chipped door exit/entry be suitable? They can be programmed to be accessible to pets at set times and allow for lots of animals with the right sensor...
  5. Replies
    10
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    4,321

    There is absolutely no reason for a GP not to...

    There is absolutely no reason for a GP not to prescribe something for pain relief. I suggest you start as you mean to go on and insist your request for GP input is a priority. Assuming you live...
  6. I am sorry your mum is suffering, which sounds...

    I am sorry your mum is suffering, which sounds very much like my mum's experience. Mum felt dreadful almost throughout and also had alot of pain yet this is often said not to be a symptom of MND. ...
  7. Replies
    154
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    49,809

    Mum had a nasogastric (NG) tube, which goes up...

    Mum had a nasogastric (NG) tube, which goes up one nostril directly into the stomach, for several months. The dietician regularly checked the feed to ensure it met mum's requirements. She had to...
  8. Wow, that looks fantastic and will be a huge...

    Wow, that looks fantastic and will be a huge benefit to anyone who cannot adjust their position in bed. Well done to the engineers and thank you for successfully trialling it.
  9. Replies
    5
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    2,992

    Sorry your mum is struggling so much at the...

    Sorry your mum is struggling so much at the moment. From my own experience mum had a few occasions where I thought she'd never improve but she did. I hope it is the same for your mum and that she...
  10. Replies
    12
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    3,605

    Sorry you're having a difficult day and I can...

    Sorry you're having a difficult day and I can understand your confidence has been knocked by falls. Would it be worth considering aids to help you in the house, even if you don't necessarily need...
  11. Thread: Grief

    by Candle
    Replies
    8
    Views
    3,462

    I'm sorry you lost your dad to MND. You don't...

    I'm sorry you lost your dad to MND. You don't say how recently you lost him. I lost my mum nearly two years ago. I wish she hadn't had to go what she went through and like you I try to focus on...
  12. Replies
    5
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    3,002

    I don't know if there's enough garden space but...

    I don't know if there's enough garden space but wonder if a housing pod extension might be suitable. (Google the term "housing pod extension" or "mph building systems" to see what I mean.)

    The...
  13. Thread: Burning throat

    by Candle
    Replies
    13
    Views
    4,043

    I've had a sensation of cold or wetness down one...

    I've had a sensation of cold or wetness down one leg occasionally and left a meeting once as I thought I'd sat on something nasty! I never saw a doctor but read it can be something interfering with...
  14. Thread: Burning throat

    by Candle
    Replies
    13
    Views
    4,043

    I have posted abou this previously as mum too...

    I have posted abou this previously as mum too complained of a burning sensation in various parts of her body including the throat. I believe it was related to MND as it seemed to affect the area...
  15. Thread: warfarin

    by Candle
    Replies
    20
    Views
    6,442

    Mum was prescribed Duloxetine for pain as...

    Mum was prescribed Duloxetine for pain as recommended by the Hospice. It did make her nauseous for a while though.

    You can definitely have bloods taken at home by the nurse from the GP...
  16. Replies
    35
    Views
    11,867

    When a loved one is diagnosed with MND the...

    When a loved one is diagnosed with MND the "carer" is also thrown into a situation they too weren't prepared for. The worst of it is the carer often feels guilty for thinking about themselves when...
  17. Replies
    16
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    15,172

    I'm sorry you're struggling today. I don't think...

    I'm sorry you're struggling today. I don't think anyone would use the word coward to describe someone facing such difficulties and knowing things are not going to improve.

    Like Ellie says,...
  18. Replies
    2,470
    Views
    681,886

    Dave, it's probably very usual to feel you have...

    Dave, it's probably very usual to feel you have too much time on your hands right now. Are there any "men with sheds" groups near you? Such a group would widen your circle of friends and tire you...
  19. Replies
    78
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    20,887

    Thinking of you and your family at this sad time.

    Thinking of you and your family at this sad time.
  20. Thread: My dad

    by Candle
    Replies
    574
    Views
    150,109

    Thinking of you. It's such a hard time for you,...

    Thinking of you. It's such a hard time for you, especially with the other difficulties you have. Hope Connor stays well.
  21. Replies
    2,470
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    681,886

    Such sad news Dave. I wish you and the family...

    Such sad news Dave. I wish you and the family strength in the time ahead. X
  22. Thread: Ebay

    by Candle
    Replies
    32
    Views
    15,989

    Terry, I definitely think you should contact your...

    Terry, I definitely think you should contact your local newspaper about this shoddy treatment (from the unscrupulous seller, eBay and PayPal) and Trading Standards. The item was not fit for...
  23. Replies
    2,470
    Views
    681,886

    So sorry to read this Dave. I was with mum...

    So sorry to read this Dave.

    I was with mum when she nodded that she wanted sedation just a few days before she died. Like Julie she was in a nursing home, didn't want to be admitted to a...
  24. Thread: My dad

    by Candle
    Replies
    574
    Views
    150,109

    If he can manage to keep his eyes open for a...

    If he can manage to keep his eyes open for a little while, mum successfully used a Bluetooth mouse and an onscreen keyboard with Dwell Clicker long after she could no longer write, type or use her...
  25. Replies
    20
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    6,773

    Mum struggled with nausea throughout. I did...

    Mum struggled with nausea throughout. I did wonder if it was stress-related as it was almost constant and worse following any medication changes.
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