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  1. Thread: Lost mam

    by Nightowl2016
    Replies
    15
    Views
    4,344

    Lost mam

    Well yesterday morning at 9.20 I lost my mother to this cruel horrible disease
    I just want to say thanks to everyone who has given me advice & listen to my rants from the time I joined this forum...
  2. Replies
    2
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    1,897

    Chest infection

    Hello my poor mam is in hospital with a chest infection & im sure she ainít gonna come out of hospital
    I was meant to have a chc meeting yesterday but cancelled it even though it was granted that...
  3. Replies
    19
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    9,416

    Hi she is on senacot every night Mam won’t go...

    Hi she is on senacot every night
    Mam won’t go into the day hospice
    Mams cathertar got to be changed every 28 days plus I got to change the leg bag every week & re order bags supply’s so that’s...
  4. Replies
    19
    Views
    9,416

    Hi mam wonít go to day centre Iím trying to work...

    Hi mam wonít go to day centre Iím trying to work on her for restbite in the school holidays
    No liquid form all tablets to be crushed & painkillers , the pain patch is the lowest one
    Iím hoping to...
  5. Replies
    19
    Views
    9,416

    Wow thank you all for your advice it is greatly...

    Wow thank you all for your advice it is greatly appreciated & I am starting to sort things out slowly spoke to a family meme we how I felt ,
    On Tuesday Mam had pain all down her side when distrect...
  6. Replies
    19
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    9,416

    Hi thanks for replying no Nero nurse , the physio...

    Hi thanks for replying no Nero nurse , the physio has put in touch with an macillian nurse but she cancelled twice , we had a end of life care plan started other week where mam said she didn’t want...
  7. Replies
    19
    Views
    9,416

    Tired of caring

    Hi as the thread states Iím so tired & exhausted from caring for mam I know she canít help it but I just canít keep going I have 3 kids with the youngest being 2 & hardwork having a toddler & I work...
  8. Replies
    6
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    2,439

    Thank you to all that replied I think it was the...

    Thank you to all that replied I think it was the carers rushing her into bed & not putting her comfortable
    They are always the same in a rush to get out of the house they never spend the 30 mins at...
  9. Replies
    6
    Views
    2,439

    Swallowing at night

    Hi every time the carers put my mam to bed I check on her when they leave , but tonight she was screaming at me she canít swallow & get her out of bed , can any1 suggest when this happens what can I...
  10. Replies
    6
    Views
    6,716

    Thank you all for your replays it was the o t...

    Thank you all for your replays it was the o t that refered us to the social worker
    I will find out more tomorrow & ask the social worker can Mam get the chc
    Thank you guys so much I wouldn't...
  11. Replies
    6
    Views
    6,716

    Cost of carers ? Need help plz

    Hello
    I'm back again to ask more questions
    As Mam can no longer walk weight bear any more I've finding it hard to care for her on my own & run a house look after 3 children & work 1 nightshift a...
  12. Thread: Hoist

    by Nightowl2016
    Replies
    4
    Views
    2,386

    Thank you Ellie so relieved they will supply...

    Thank you Ellie so relieved they will supply hoist & got some1 coming out tomorrow morning
  13. Thread: Hoist

    by Nightowl2016
    Replies
    4
    Views
    2,386

    Hoist

    Hello thank you all for your replies on my last post about the peg mam is going to have it this Thursday

    Mam as gone down hill & cant walk no more with me holding her
    I'm finding it hard trying...
  14. Thread: Peg

    by Nightowl2016
    Replies
    8
    Views
    5,369

    Thank you terry very helpful Do nurses come &...

    Thank you terry very helpful
    Do nurses come & check it from time to time or do u have carers in that take care of it
    I've never heard of a rig , I work in a nursing home & a resident had a peg...
  15. Thread: Peg

    by Nightowl2016
    Replies
    8
    Views
    5,369

    Peg

    Hello everyone don't come on here much as haven't got much time caring for Mam & 3 kids & working 1 nightshift a week
    Can I ask those of you who have had the peg fitted how was u after it ? How...
  16. Thread: Esa

    by Nightowl2016
    Replies
    7
    Views
    4,725

    Thanks sueb I hope mam gets into the support...

    Thanks sueb
    I hope mam gets into the support group and can just phone gp for paper over the phone
  17. Thread: Esa

    by Nightowl2016
    Replies
    7
    Views
    4,725

    Thank you very much for your reply

    Thank you very much for your reply
  18. Thread: Esa

    by Nightowl2016
    Replies
    7
    Views
    4,725

    Esa

    Hello everyone
    I'm looking for advice my mam has just put in for esa had she has finished work now , she has had payments going in her bank but no letter to say the amount & if its weekly monthly...
  19. Thread: Pip

    by Nightowl2016
    Replies
    3
    Views
    5,120

    Thank you so much for replying mam ain't at that...

    Thank you so much for replying mam ain't at that stage where she terminal & 6 months left that's why I thought it be strange them
    Coming out to the house .
  20. Thread: Pip

    by Nightowl2016
    Replies
    3
    Views
    5,120

    Pip

    Hi everyone when a mnd cordinator came to the house she told my mam to put in for pip
    So I done this for her in sept & now some1 coming out to the house this week about her claim I thought they...
  21. Replies
    10
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    5,241

    Well done that's fantastic

    Well done that's fantastic
  22. Replies
    101
    Views
    32,392

    Thank you terry so helpful & great detail to why...

    Thank you terry so helpful & great detail to why as I can't ask mam why they tested breathing
    I just wish some1 would come out & explain everything so I can write it down
    Thanks
  23. Replies
    101
    Views
    32,392

    Thank you for your reply Since mam being...

    Thank you for your reply
    Since mam being diagonised we haven't heard from anyone I have rung the mnd cordinator twice to see if they can come out to explain everything but no reply
    I contacted...
  24. Replies
    101
    Views
    32,392

    Breathing tests

    Hi could some one tell me why they do breathing tests
    When my mam was in hospital having bloods tiny needles , lumber puncture etc she also mentioned they done breathing tests I didn't like to ask...
  25. Replies
    6
    Views
    4,555

    Thank you terry you have been so helpful since I...

    Thank you terry you have been so helpful since I joined &
    Thank you really appricate it
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