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  1. Replies
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    Hi Sarah Did you ever trial this communication...

    Hi Sarah

    Did you ever trial this communication device with a switch?

    Thanks
    Tracy
  2. Thread: Hi

    by Crazy girl
    Replies
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    8,154

    Hi Becky Welcome! This forum is...

    Hi Becky

    Welcome!

    This forum is great.....much more positive with tips than dwelling on the crap of it all!

    My husband is 37, i'm 41 an I appreciate what you said about change of lifestyle!...
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    6,177

    My husband has been taking Riluzole for eighteen...

    My husband has been taking Riluzole for eighteen months...with or without food, with or without drinking alcohol...and no side effects, just another pill to take!

    Tracy
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    Hi Just wanted to add I agree with all...

    Hi

    Just wanted to add I agree with all comments too.....

    Funny how you change over time....a year ago everyone knew but I didn't really want to talk about it much but now, I want people to know...
  5. Thread: Coping

    by Crazy girl
    Replies
    5
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    3,075

    Hi Ken I have no magic answers but wanted to...

    Hi Ken

    I have no magic answers but wanted to say i understand completely how you feel and how frightening it is.

    I struggle daily and at times feel like I can't carry on caring for my husband...
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    John Not to add fuel to your fire about...

    John

    Not to add fuel to your fire about getting overhead hoist but just wanted to add that we've had overhead hoists installed downstairs and upstairs and we live in Wales and don't tend to get...
  7. Replies
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    6,111

    Hi Jason Just wanted to say I understand how...

    Hi Jason

    Just wanted to say I understand how your Grandma feels.....it's very hard accepting help and for some reason you do feel that you should be able to look after your partner yourself even...
  8. Thread: Hi All

    by Crazy girl
    Replies
    11
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    6,849

    Hi Kiran Welcome and good to see you on here, I...

    Hi Kiran
    Welcome and good to see you on here, I care for my husband so look forward to sharing experiences with you.

    Tracy
  9. Replies
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    Pete - thanks so much, you're right.....nickname...

    Pete - thanks so much, you're right.....nickname means I am willing to give anything a go and when its important and what I want to do, the word impossible is a challenge to me to do it!!! Good...
  10. Thread: Respite

    by Crazy girl
    Replies
    16
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    8,233

    Derek, Yes we are a fairly young couple, my...

    Derek,

    Yes we are a fairly young couple, my husband is 37. It's a very hard hand that life has dealt us but we try and make the most of each day, that's all any of us can do I think.

    Thanks for...
  11. Replies
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    Fantastic research as always Matt, I always read...

    Fantastic research as always Matt, I always read your info with interest, even though I don't always understand it all!,

    Got me thinking.....could we use this info to try and help people now? High...
  12. Thread: Respite

    by Crazy girl
    Replies
    16
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    8,233

    Hi Derek We don't have hospice's in Wales and...

    Hi Derek

    We don't have hospice's in Wales and I've not been offered any respite care since my husband was dx in Oct 2010, despite having a 3 year old too....

    Means I can't remember what a good...
  13. Replies
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    31,887

    Bruce Forsyth Xx

    Bruce Forsyth

    Xx
  14. Thread: "Friends?"

    by Crazy girl
    Replies
    19
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    14,399

    Love this so much am gonna post on fb! Thx...

    Love this so much am gonna post on fb! Thx Jeannie.
  15. Thread: "Friends?"

    by Crazy girl
    Replies
    19
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    14,399

    I'm loving the responses....thanks so much...

    I'm loving the responses....thanks so much everyone, so bloody nice to know it's not just me being a complete cow and others experience my feelings.

    What really drives me nuts......is people...
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    Thanks John. Brave or stupid....not sure which...

    Thanks John. Brave or stupid....not sure which it'll be! But I'm willing to give it a go....

    As always Robyn thanks for advice.

    Tracy
  17. Replies
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    11,751

    Trip to Disney,Florida

    After much loved trip to Vegas and seeing how geared up the US are for less able, we are now hoping to go to Disney, Florida end of April....will almost certainly be our last trip as a family and...
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    Same thing with my husband......

    Same thing with my husband......
  19. Thread: "Friends?"

    by Crazy girl
    Replies
    19
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    14,399

    "Friends?"

    I know this is going to be a vey personal thread but.......everyone is so helpful on here and I really wondered how others respond to the situation if they have it.

    'friends' - some come and in...
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    3,850

    Hi both, Thanks so much for your responses and...

    Hi both,

    Thanks so much for your responses and sorry it's taken me so long to reply. It all kicked off after I posted this and my husband went into hospital shortly after to have his peg fitted....
  21. Replies
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    3,850

    Waiting time for Peg fittings?

    Hi all,

    I was just wondering how long people have waited for a Peg to be fitted once it has been agreed with your consultant?

    Reason is we discussed this in September last year with our...
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    Mike, We are so sorry for your loss. Like...

    Mike,

    We are so sorry for your loss. Like others I dont know you or your family but I care for my husband and I just wanted to tell you that your blog is amazing, and has really helped me and my...
  23. Thread: mittens?

    by Crazy girl
    Replies
    17
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    23,083

    Hi Luce, I love this forum! If you have a ...

    Hi Luce,

    I love this forum! If you have a problem someone has more than likely thought of a solution! I'm struggling to put my husbands gloves on and any kind of mittens are normally in 'girly'...
  24. Thanks for recommending this, I bought it when I...

    Thanks for recommending this, I bought it when I was near 'burn out' phase and it was soooo helpful for me to read and not think I was going mad! It's brilliant and first thing I've read where I can...
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    999,803 Me me me!!!! How fab do you feel? I...

    999,803

    Me me me!!!! How fab do you feel? I feel very smug........

    I love Internet shopping!
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