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Good morning friends.

I thought I would share this news story and video broadcast by the BBC. The video is an hour long but I found it inspirational how Doddie tackles life with MND in the same...

Great news Doug.

Be patient and stop regularly if you get tired. It’s worth the effort and I found my recording satisfying when I used it during a meeting yesterday.

Best wishes,
Barry

Hi Debbie,

Both my daughters are primary school teachers who changed careers in their late 30’s. They recount many stories of the joys the children bring as well as the challenges.

Kayleigh,...

Hi Kayleigh,

My bunny batteries ran out last night after a tiring but enjoyable day. https://youtu.be/Bxt4HG__TC4

Cadbury was one of my clients and many times I would visit the staff shop,...

Sorry Debbie there were 36 portions and they all went. I did manage to get one for myself however. It was so good to meet most of the group and I was well looked after because I was the only man on a...

All this talk about food reminds me that I have to make a cake today for the walking group lunch tomorrow. I still socialise with the group which I accompanied in the early days following diagnosis...

Hi Andy,

I watched yesterday when they had ask the panel. The presentations were okay but we didn’t learn anything new. No doubt the speakers later this week will inspire hope.

Best wishes,...

I will be arriving soon with the cheese Doug as ‘77 was a classic year.

Best wishes,
Barry

Hi Terry aka Santa,

I’m pleased your move to pip retains the higher award and I agree that the process is laborious. Why oh why do people with a diagnosis of MND still have to go through the...

Low gear Dina as we don’t want you to get caught for speeding.

Kayleigh I remember riding the ratatouille ride with my daughter and granddaughter at Disney Paris 3 years ago and my granddaughter...

The website has gone crazy and duplicated my post.
I have tried deleting without success. Maybe it’s that bang on the head lol.
Barry

I certainly celebrated 2 of the good things in life yesterday, food and music. We went with our daughters to a tapas restaurant and had excellent food before going to a concert.

The day didn’t get...

I certainly celebrated 2 of the good things in life yesterday, food and music. We went with our daughters to a tapas restaurant and had excellent food before going to a concert.

The day didn’t get...

I certainly celebrated 2 of the good things in life yesterday, food and music. We went with our daughters to a tapas restaurant and had excellent food before going to a concert.

The day didn’t get...

Hi CC,

Sorry to hear that you have injured your foot and I hope you recover quickly. Our A & E (ER to you) is a place to avoid. They park you on a trolley for several hours before seeing a doctor....

Yes Kayleigh, Rome is fabulous as is Venice and many other Italian places. I didn’t visit Venice until 2 years ago and it is very challenging for people with disabilities. Bridges everywhere and...

Thanks Kayleigh for the music and video which reminded me of the times I have been to this fabulous and outrageous city. I would love to go back but I think it would be too challenging.

Love,...

Hi Graham,

Having read the lyrics I researched your music hero and he certainly had a way with words. Whilst he died early aged 60, his lifestyle would appear to be a contributing factor. Thank...

Hi Graham,

Good to hear you are still fighting even if it should not be necessary in your case. MND has stolen your body but not your mind, although I still don’t like your taste in music but you...

Hi JFarrell,

Please don’t concern yourself. Even if you are diagnosed with MND like many of us on this forum you will find support and advice on how to cope. Diagnosis comes as a huge shock but...

Hello Andy,

I take a water soluble curcumin in my daily juice drink. It is not a cheap supplement but I believe it improves my general well-being.
...

Hello Anne and welcome.

I do hope that your diagnosis doesn’t point to MND but I hope your doctor can expedite this process. There are schools of thought that suggest MND can be triggered by...

Thanks for the update Ben.

The opening of the trial at more centres is good news and I hope that the uptake grows.

Barry

Hi Dina,

This is great news for your friend and I hope you hear it is successful. Our friend had a baby daughter 2 weeks ago following this treatment and both parents are overjoyed.

My good...

Hi Ellie,

I confess to winning a medal for our Cha Cha in the 90’s. It was through dancing that I met my wife and although we did ballroom we also attended many “disco” events where we were often...