Search:

Type: Posts; User: Pinkelle

Page 1 of 20 1 2 3 4

Search: Search took 0.07 seconds.

  1. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    Sorry Terry what I meant was to come off the...

    Sorry Terry what I meant was to come off the nippy permanently and let nature take its course. X
  2. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    Im still here. Been through a whirlwind of...

    Im still here. Been through a whirlwind of emotions. After having a second chest infection my condition has deteriorated. I made a decision to come off my nippy and the doctors spoke to me about it....
  3. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    Now have a chest infection again. ve got chct,...

    Now have a chest infection again. ve got chct, all we are waiting for is putting 24hour care before i can come home.very fed up now.
  4. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    I don't want to sound depressing but I really...

    I don't want to sound depressing but I really think that i haven't got much longer. I cant be off my nippy for long. I told my husband but he just says we'll see. I just want him to prepare our sons...
  5. Replies
    4
    Views
    950

    Shoulder and arm pain

    For a few months now since my right arm has got weaker my shoulder and arm is really painful. The nurses are aware but sometimes they forget and will pull it when dressing or rolling me. It is agony...
  6. Thread: Breathing

    by Pinkelle
    Replies
    7
    Views
    1,483

    Im getting more mucous but can't seem to shift it...

    Im getting more mucous but can't seem to shift it very well with my cough assist. Sometimes it works which is a great relief. More often than not though it won't and its exhausting. Any tips?
  7. Replies
    20
    Views
    2,939

    I totally get it about the shoes. I was so upset...

    I totally get it about the shoes. I was so upset to send my heels to charity. Was a bit selfish as I have friends with same size as me but i didn't want to see them wearing the shoes i loved
  8. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    I had an assessment for chc 3weeks ago. Still not...

    I had an assessment for chc 3weeks ago. Still not heard anything.
  9. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    I'll be glad to get home. The nurses in here are...

    I'll be glad to get home. The nurses in here are lovely but i do feel like a piece of meat at times. I realise since being in here I will need full time care especially when mick is at work. Any...
  10. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    The link worked well, and one of Deans friends...

    The link worked well, and one of Deans friends sent me videos of the speeches and the First dance. So I've been watching them over and over! Still in hospice. Feeling a a bit better. Im very anxious...
  11. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    Thanks for all your lovely comments and support....

    Thanks for all your lovely comments and support. Ive just spoken to the dr and asked why i dont feel any better and he said its the mnd?
  12. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    After months of organising equipment, carers etc ...

    After months of organising equipment, carers etc im not well enough to go to my sons wedding tomorrow. Been in the hospice a week with a chest infection. The infection has gone but i still feel...
  13. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    Thanks everyone. Feel a bit better today. The...

    Thanks everyone. Feel a bit better today. The hospice are one step ahead with video streaming the wedding. They told me today they are going to set it up for me a last resort.
  14. Thread: Fed up

    by Pinkelle
    Replies
    74
    Views
    10,179

    Fed up

    Here we go again. Back in hospice due to another chest infection. Been here since Thursday. Got to the point where i couldnt be detached from my nippy. I only usually wear it at night but managed...
  15. Replies
    63
    Views
    9,411

    The pump rate is slowly increasing to the rate i...

    The pump rate is slowly increasing to the rate i was on. When having the drink it gets poured in and let gravity do the work which is very slow. I also have started having the drink spread through...
  16. Replies
    63
    Views
    9,411

    Ive started the increased calories in my feed....

    Ive started the increased calories in my feed. Ive neen waking feeling a bit nauseous. Also feel a bit nauseous after putting the nutricia milk shake through the rig as well. Ive started apreadi g...
  17. Replies
    63
    Views
    9,411

    Ellie she never mentioned calogen. I doubt she...

    Ellie she never mentioned calogen. I doubt she will as she works for nutricia. Im seeing my mnd nurse tomorrow I'll chat to her x
  18. Replies
    63
    Views
    9,411

    Had the dietician round. Weight dropped to 40...

    Had the dietician round. Weight dropped to 40 kilos now !! Have a new plan. Increasing my night feed from 750 calories to 1000 calories. Plus adding 300 calories by having a nutricia drink via rig....
  19. Replies
    24
    Views
    7,444

    I purchased a motorised set but my feet won't...

    I purchased a motorised set but my feet won't stay in the pedals.
  20. Replies
    63
    Views
    9,411

    Im 43kg. So i will be different. Ive never been...

    Im 43kg. So i will be different. Ive never been told how much i should have. Im going to contact the nutricia dietician next week.
  21. Replies
    63
    Views
    9,411

    Ellie your 1800calories, does that include your...

    Ellie your 1800calories, does that include your feed? X
  22. Replies
    63
    Views
    9,411

    Sarah my feed is 750 calories overnight. I try to...

    Sarah my feed is 750 calories overnight. I try to eat through the day even though I don't have an appetite. I reckon somewhere in the region of 800 calories.
  23. Replies
    46
    Views
    6,333

    Thank you for researching kayleigh. The toilet ...

    Thank you for researching kayleigh. The toilet will jave to be big enough for a hoist to go over. Ots getting to the point where I really don't want to go. Its not how i imagined my eldest son's...
  24. Replies
    46
    Views
    6,333

    My physio has been able to find company that ...

    My physio has been able to find company that will hire hoists but the toilet at venue is too small! Nowlooking to see if theres a room we can use and hore a commode as well. This is proving to be...
  25. Replies
    63
    Views
    9,411

    Ive been on overnight feeds since end of October....

    Ive been on overnight feeds since end of October. I loat a lot of weight previously to this. I do eat theought the day to compliment this but i cant seem to put any weight on either. Im going ring...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4