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  1. Replies
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    Good afternoon Doug Thank you for thank you...

    Good afternoon Doug

    Thank you for thank you again!



    I am not quite sure what you mean by issues - I have not met all the trustees yet only the new ones elected this time, plus the Chair and...
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    Good morning all Thank you for your...

    Good morning all

    Thank you for your congratulations - I hope I can do some good in this role

    Warmly
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    Good morning Barry Thank you for your...

    Good morning Barry

    Thank you for your congratulations.



    I was looking for you and wondered if something like that stop you attending - I hope we can meet at some other time.

    Prof Shaw...
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    Elected as trustee

    Good afternoon to you all

    I am not sure how far the news has travelled, but I just wanted to say thank you very much for all of you that voted for me in relation to becoming a trustee of the MND...
  5. Thread: Flail arm

    by nunhead_man
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    350

    Good afternoon Happy Chappy At least they did...

    Good afternoon Happy Chappy

    At least they did not call it. "man in a barrel syndrome" which is what I was told by one person who saw me when my left arm started to go!!!

    Essentially, I believe...
  6. Thread: Good news

    by nunhead_man
    Replies
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    814

    Good afternoon Lynne I too am glad you are...

    Good afternoon Lynne

    I too am glad you are sorted out and take it easy on the road - watch out for cyclists!

    Warmly
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    Hi Ellie, No, I did not - as Doug says...

    Hi Ellie,



    No, I did not - as Doug says above, it seems to hark back to the epidemiological** Doll (sp?) studies concerning the link between smoking and cancer.

    Err...
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    Good morning Barry Yes, I will be there,...

    Good morning Barry

    Yes, I will be there, although arriving quite late on Friday night as I have a rather complicated weekend - please make yourself known to me if you can

    Warmly
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    Good afternoon Thank you for saying I should...

    Good afternoon

    Thank you for saying I should have posted this because my learning from this forum had suggested it was misleading.

    Perhaps an email to somebody other - the director, perhaps -...
  10. Thread: Sandpiper

    by nunhead_man
    Replies
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    1,034

    Hello and welcome Sandpiper Catching up from...

    Hello and welcome Sandpiper

    Catching up from the back as usual , so able to say I agree with everything said above!

    In particular, you may find things here that you will not find in your local...
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    MND as a multistage process

    From my Twitter feed from Kings I think

    Mind the wrap - it is a very long URL
    ...
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    Hi Dina Can I add my two pennies worth of...

    Hi Dina

    Can I add my two pennies worth of encouragement to carry on grumbling as much as you want.

    It had not occurred to me the losing my arms would affect my ability to hug and as this is one...
  13. Thread: update...

    by nunhead_man
    Replies
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    Hi Kayleigh What an interesting idea - I...

    Hi Kayleigh



    What an interesting idea - I will try and find out who their agents are!

    Actually it was this bloke that got me thinking about a project with his programme DIY SOS -...
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    UK Biobank reports research

    Good morning all

    For various reasons, we have been participating in the UK Biobank database collection process and this includes yesterday going to their Reading centre and having a multiplicity...
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    Hi Broostine I quite understand why you...

    Hi Broostine



    I quite understand why you are upset - a diagnosis of motor neurone disease always upsetting both to the person living through it and the person supporting them.

    Do you happen...
  16. Thread: update...

    by nunhead_man
    Replies
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    1,983

    Hi Lynne Thank you - planning is my stock...

    Hi Lynne



    Thank you - planning is my stock in trade from my working life, so I tend to run private projects like this one alongside the projects we run for our clients.

    And strangely those...
  17. Thread: update...

    by nunhead_man
    Replies
    20
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    1,983

    Good morning Okay – excitement over. The...

    Good morning

    Okay – excitement over.

    The house we were looking would require me to run a substantial building project to get it into shape.

    Also, I may be two or three years away from...
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    Hi Juan, Can I repeat the question that was...

    Hi Juan,

    Can I repeat the question that was asked earlier about where you are based in doing this study?

    Interestingly, my experiences recently are similar to that of AndyB, in that my...
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    Good evening, Ben and welcome As somebody has...

    Good evening, Ben and welcome

    As somebody has said none of us want to be here, but it is very good to be here, given the support we get.

    I am wondering if you are thinking that chain of events...
  20. Thread: New member

    by nunhead_man
    Replies
    16
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    1,555

    Hi Madhur Thank you for your thanks - please...

    Hi Madhur

    Thank you for your thanks - please let us know how you get on.

    I know there are a number of languages used in the Indian subcontinent and I hope somebody on that site speaks the one...
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    Shrew, I am so sorry to hear this and I am not...

    Shrew, I am so sorry to hear this and I am not surprised that you are heartbroken and as is said above, Mick will be sorely missed.

    Also, you must not think that you are yourself responsible -...
  22. Thread: New member

    by nunhead_man
    Replies
    16
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    1,555

    Hi Madhur And welcome from me to the forum ...

    Hi Madhur

    And welcome from me to the forum

    A quick hunt found this......

    https://www.alsmndalliance.org/directory/asha-ek-hope-foundation-for-mndals/

    They seem to be in Mumbai
  23. Thread: update...

    by nunhead_man
    Replies
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    1,983

    Hi Ellie And thanks yet again - and - so...

    Hi Ellie



    And thanks yet again - and - so 790 mm is wide enough, but 1120 mm is too short.

    So you are saying if the chair is tilted or you have long legs, which of course is no problem your...
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    Hi there Can I 2nd that - so will I, but I...

    Hi there



    Can I 2nd that - so will I, but I am afraid, given it is the hundred and odd thousand Conservative party members who are selecting the Prime Minister because of the way our system...
  25. Thread: update...

    by nunhead_man
    Replies
    20
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    1,983

    Good morning And thank you Deb and Kayleigh...

    Good morning

    And thank you Deb and Kayleigh for voting for me.

    On our housing position, we have had a final nail in the coffin of being able to stay here if I need adaptions to cope with...
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