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  1. Thread: Driving with mnd

    by kevin
    Replies
    9
    Views
    2,327

    Dew to domestic pressure I had to fill ballast...

    Dew to domestic pressure I had to fill ballast bottles with sand it's still you idea . That dock job would be a no go for me I get hoisted in and out of water and not good with cold limbs just don't...
  2. Thread: Driving with mnd

    by kevin
    Replies
    9
    Views
    2,327

    Terry the bricklaying went first its unsupported...

    Terry the bricklaying went first its unsupported bending. You are unable with mnd . It's walker only for me now I just lost confidence with sticks . Good tip weights in walker I got from u thanks for...
  3. Thread: Driving with mnd

    by kevin
    Replies
    9
    Views
    2,327

    Hi Terry I got slow progression but that's not...

    Hi Terry
    I got slow progression but that's not no progress it's always a bit . I think swimming helps me I swim 3 times a week and swim a mile . It can not be all I had some one from our group who...
  4. Thread: Driving with mnd

    by kevin
    Replies
    9
    Views
    2,327

    You got any more bad news terry . I don't think...

    You got any more bad news terry . I don't think your right my mate let his run out he just applied and got new one but that was a few years ago hope things not changed .
  5. Thread: Driving with mnd

    by kevin
    Replies
    9
    Views
    2,327

    Driving with mnd

    I decided to drive again . Anyone know what forms I need from dvlc . I know I need neurologist to sign . Had a go in automatic I am sure I can manage that but I am having a few lessons it's very...
  6. Replies
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    31,940

    You have tiled floor that's unusual most have non...

    You have tiled floor that's unusual most have non slip Lino . Are they non slip tiles
  7. Thread: Wet Room Help

    by kevin
    Replies
    37
    Views
    14,594

    Hi christoff Don't forget it's not planners who...

    Hi christoff
    Don't forget it's not planners who pass plans it's councilors . Your in a very strong position find out who is in planing committee and email them all . Get support letter off Rachel...
  8. Thread: Bed advice

    by kevin
    Replies
    18
    Views
    14,536

    Hi I to find it hard to turn in a single bed . I...

    Hi I to find it hard to turn in a single bed . I use two withnell bed rails because I have strength in arms and hands I can pull my self around a double . I have run timber between rails to support...
  9. Thread: Turning in bed

    by kevin
    Replies
    37
    Views
    12,259

    Hi pink So hard this as we are all so...

    Hi pink
    So hard this as we are all so different. I got two withnell bed rails . They are telescopic so fit under any bed . My arms and hands are strong so I grab rail and turn . I was sliding out...
  10. Thread: toilets

    by kevin
    Replies
    10
    Views
    3,873

    Hi Alison We all only got one toilet so...

    Hi Alison
    We all only got one toilet so comparing the market is not good . I am third to have mnd in my family we all had close o mat and never had a problem simple to fit if your replacing an...
  11. Replies
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    4,572

    Murrjo1 We have group at Preston hospital we...

    Murrjo1
    We have group at Preston hospital we meet every month if your interested mnd association have meeting at samsburry . Gorge Barton trust have a group . I believe mnd association are setting...
  12. Replies
    119
    Views
    31,940

    Hi Pink I asked about dryer . Nothing wrong...

    Hi Pink
    I asked about dryer . Nothing wrong with the idea but in 2 years he only used it once . Same answer as Susan . Basically when u finished showering you want dresseed and out of bathroom
  13. Replies
    119
    Views
    31,940

    Hi pink Ok if you have to have one they do one...

    Hi pink
    Ok if you have to have one they do one with a radiator in centre you can get a btu rating on them so you will know if it's big enough for the room . To get btu required for bathroom you...
  14. Replies
    119
    Views
    31,940

    Hi pink I use towel robe with a hood julie puts...

    Hi pink
    I use towel robe with a hood julie puts it in tumble drier when I shower so it's very warm . The reason for hood is when you put it over head arms are in right place this means I can put it...
  15. Replies
    119
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    31,940

    I only know one person whith a body dryer sorry...

    I only know one person whith a body dryer sorry he says it's the worst thing he ever bought . No idea what make it is and why he speaks so badly about it but I meet him next week and can ask what...
  16. Thread: Can we fight mnd

    by kevin
    Replies
    12
    Views
    3,567

    Hi Andy I do my best to live in the present and...

    Hi Andy
    I do my best to live in the present and take what comes on the chin . But it's not always possible converting the home you must imagine yourself in a wheelchair to cover all options. I left...
  17. Thread: BIo Bidet

    by kevin
    Replies
    37
    Views
    14,904

    Hi Hayley Thanks for the information which I...

    Hi Hayley
    Thanks for the information which I passed on . I have no update on what has been resolved but it's Christmas and most people are on sceliton staff if not closed . I promis I will report...
  18. Thread: Can we fight mnd

    by kevin
    Replies
    12
    Views
    3,567

    Hi Andy I miss cycling so much , your brain...

    Hi Andy
    I miss cycling so much , your brain freewhelles the next hill is all important . I got a ladies bike which I set up on a turbo trainer I rode it for three years till lifting my leg over got...
  19. Thread: Can we fight mnd

    by kevin
    Replies
    12
    Views
    3,567

    Hello all All Chris I agree with you too my MND...

    Hello all
    All Chris I agree with you too my MND nurse told me that a positive out look is a big factor in well being and that will extend life .

    Exercise is a big thing for me . It's one man...
  20. Thread: Can we fight mnd

    by kevin
    Replies
    12
    Views
    3,567

    Thanks Ellie and Barry I am struggling with...

    Thanks Ellie and Barry
    I am struggling with what type of MND I have . I asked consultant who just says bulbar onset and adds everyone is different . I asked is it a pls form he said no we have ECG...
  21. Thread: Can we fight mnd

    by kevin
    Replies
    12
    Views
    3,567

    Can we fight mnd

    That's a massive question. I was of the opinion that exercise slowed the progress of mnd but I have seen some who try so hard and it never slows.

    We are such a mixed bunch things seem to work for...
  22. Replies
    8
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    2,314

    Welcome to forum pal I hope u had a good...

    Welcome to forum pal
    I hope u had a good Christmas and managed to put mnd at one side .

    This forum is great place for advice you can always find some one who had that symptom and can tell you...
  23. Thread: Newly Diagnosed

    by kevin
    Replies
    18
    Views
    4,537

    Afternoon Karl Like you I have family with MND...

    Afternoon Karl
    Like you I have family with MND . It's not great when you get your diagnosis because you know all about it . I went mad when I was told shouting at consultant . I had started in a...
  24. Thread: Newly Diagnosed

    by kevin
    Replies
    18
    Views
    4,537

    Hi Karl I had cramps about two years ago maybe...

    Hi Karl
    I had cramps about two years ago maybe 3 anyway long time since . I take 350 mg tablet of magnesium everyday and no more cramp . A word of warning they act as laxitives . Good luck mate...
  25. Thread: Speech

    by kevin
    Replies
    22
    Views
    8,665

    Hi jaxx Lost my speech 4 years ago . I do a no...

    Hi jaxx
    Lost my speech 4 years ago . I do a no that everyone recognises but that's about it . Never argue any more you loose every time .

    I miss the spontaneity. I have to type everything now...
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