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Type: Posts; User: Hayls

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  1. Thread: Motability

    by Hayls
    Replies
    6
    Views
    357

    We’ve been on the scheme for many years, you have...

    We’ve been on the scheme for many years, you have to ensure the vehicle you need is suitable for age under 25, my step son is 20 and won’t be able to drive my WAV vehicle, my husband has a A vehicle...
  2. Replies
    404
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    47,680

    Oooo can’t wait to receive my duel motor riser...

    Oooo can’t wait to receive my duel motor riser recliner and we has a phone call from our WAV dealership and hope to get it out to us next week , oh happy days :))
  3. Replies
    12
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    428

    Good morning Lynne, Yikes, it’s not an easy...

    Good morning Lynne,
    Yikes, it’s not an easy decision, I’m already at the point I need to think about it, right arm completely gone, right leg barely moveable, only thing enabling me to stand is my...
  4. Thread: My future

    by Hayls
    Replies
    3
    Views
    349

    [QUOTE=Ellie;96979]You'll find another use for...

    [QUOTE=Ellie;96979]You'll find another use for door handles, taps, table edges and the likes - they double up as scratching posts :D

    ;) pmsl
  5. Replies
    12
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    428

    Thank you Ellie and Kate, Kate, thank you for...

    Thank you Ellie and Kate,
    Kate, thank you for sharing your own dilemma, hope the path you’ve chosen works well for you.
    I’ll speak to my Nurse team and see what they suggest, the last thing I want...
  6. Replies
    13
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    2,107

    Oooo I’ll check them out, thanks for the tip ;)

    Oooo I’ll check them out, thanks for the tip ;)
  7. Replies
    13
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    2,107

    Hello Matthew, I was bulbar onset too, great...

    Hello Matthew, I was bulbar onset too, great advice about acceptance and staying strong, hydration and nutrition is key, I was advised to get a PEG or RIG fitted sooner rather than later, so glad I...
  8. Replies
    14
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    1,693

    Jo Jo, my local hospice OT got me an Easy Track...

    Jo Jo, my local hospice OT got me an Easy Track over bed hoist 2 weeks ago as my community OT isn’t allowed to visit, Easy Track doesn’t require to be attached to walls or ceiling, has a maximum...
  9. Replies
    12
    Views
    428

    When is it time………

    Ok, I’m biting the bullet, my ability to stand is almost completely gone, I still have control but it’s getting exhausting going to the loo various times a day, I don’t know if pads are suitable but...
  10. Thread: Teeth Brushing

    by Hayls
    Replies
    9
    Views
    749

    Hello Tess, My speech and language therapist...

    Hello Tess,
    My speech and language therapist recommended a soft toothbrush to gently apply mouthwash to the top of teeth and gums about an hour after the toothpaste that will help protect, I can’t...
  11. Thread: Hello Everyone

    by Hayls
    Replies
    4
    Views
    496

    Hello Tess, I’m 37, I’ve had MND since July last...

    Hello Tess,
    I’m 37, I’ve had MND since July last year, this forum and the people in it have been my greatest support, your not alone, if anyone doesn’t have the answer, they’ll point you in the...
  12. Thread: Bed Advice

    by Hayls
    Replies
    11
    Views
    1,258

    Hubby and I have gone for HSL attachable...

    Hubby and I have gone for HSL attachable adjustable beds, I have a free stand overhead hoist that is in place over our beds (6ft wide the beds together plus room for my transfer chair) so I can be...
  13. Replies
    9
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    1,205

    Sarah, I totally understand the difficulties...

    Sarah, I totally understand the difficulties trying to get dressed, I now can’t stand alone so in order to keep my safe, hubby always dresses me lying down, he gets me on my side, pulls up items as...
  14. Thread: Hello everyone!

    by Hayls
    Replies
    29
    Views
    5,091

    Hello Sue1 Your so right, whether we want to or...

    Hello Sue1
    Your so right, whether we want to or not, we learn a lot and we constantly problem solve, never ever forget how amazing you are, your still there by his side and never be afraid to ask...
  15. Thread: Hip pain

    by Hayls
    Replies
    6
    Views
    1,196

    Thank you for starting this thread, the hints and...

    Thank you for starting this thread, the hints and tips I’m going to try, thank you everyone;)
  16. Thread: Hello

    by Hayls
    Replies
    8
    Views
    1,266

    Hello Elvisfan, I was a support worker for...

    Hello Elvisfan,
    I was a support worker for people with learning disabilities, my voice changed to the point it would unsettle them, I had to stop working, I totally understand :)
  17. Thread: Hi

    by Hayls
    Replies
    10
    Views
    2,182

    Hello Diddly, I agree with Lynne, having being...

    Hello Diddly,
    I agree with Lynne, having being loaned a single motor riser recliner chair my OT got for me, now I’m not as mobile, it’s the most uncomfortable thing I’ve ever sat on, I’ve bought...
  18. Thread: Hello everyone!

    by Hayls
    Replies
    29
    Views
    5,091

    Sue1 I know about FTD, my Dad developed...

    Sue1
    I know about FTD, my Dad developed personality character changes, it took us years for FTD to finally being diagnosed, he craved sugary things, laughed at everything and would get past...
  19. Thread: MND Collective

    by Hayls
    Replies
    1
    Views
    749

    MND Collective

    Found this group on Facebook, it’s a group set up by carers of MND to offer hints and tips and support and advice to anyone :)
    https://www.facebook.com/groups/mndcollective/?ref=share
  20. Thread: In Denial

    by Hayls
    Replies
    18
    Views
    3,449

    Hello Madge, glad to here your enjoying the...

    Hello Madge,
    glad to here your enjoying the garden, the Squirrels and pigeons have me entertained and the neighbours moggy is teased by them all, I get the giggles watching the drama lol
    Ooo HSL,...
  21. Thread: In Denial

    by Hayls
    Replies
    18
    Views
    3,449

    Hello Madge, the sun is certainly shining today,...

    Hello Madge, the sun is certainly shining today, I’m much the same as everyone else, I feel glued to a chair and my phone or TV are my only way to reach out and experience the world. The only good...
  22. Replies
    7
    Views
    1,477

    I kept having that message while in mobile phone...

    I kept having that message while in mobile phone mode, if your using a mobile, scroll down the bottom and view as full page and it should load it like a normal website, hopefully you can view it that...
  23. Thread: Pain in bed

    by Hayls
    Replies
    19
    Views
    10,329

    I’m having a lot of pain in my ankles, hips and...

    I’m having a lot of pain in my ankles, hips and sometimes knees in bed, I don’t want to take beclofen as I’m not adequately homed and don’t have the lifting equipment to not be able stand which...
  24. Replies
    99
    Views
    17,637

    Doug Nicely put, this is a scary time and my...

    Doug
    Nicely put, this is a scary time and my heart goes out to anyone affected by this but as I use to be a community carer, every year, flu would weaken and kill many elderly people, it was so sad,...
  25. My MND was bulbar onset, it was very scary, is...

    My MND was bulbar onset, it was very scary, is your breathing affected? I’m having all fluids and nutrition and medication via a feeding tube, no vocal ability but my breathing muscles are currently...
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