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    It was my husband's fault I fell. Whisper it...

    It was my husband's fault I fell. Whisper it softly. He shot me back far too swiftly. I avoided showing you the cut on my head,
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    I haven't been about for some time

    I have just been busy having lots of people visiting. But I have a new blog post singing the praises of my lift. www.toomanycandles.co.uk
  3. Thread: GrannieAnnie

    by Susan
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    8,771

    I am so sorry to hear this. She was a wonderful...

    I am so sorry to hear this. She was a wonderful lady and will be missed.
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    It is far better once you know as all sorts of...

    It is far better once you know as all sorts of things fall into place. Fantastic you got a MND association visit so quickly and you obviously have a few professionals lined up already which is...
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    It is difficult to say this early. I am in...

    It is difficult to say this early. I am in Scotland too and we get what we describe as a circle of power when we go to Aberdeen. It is a long haul over there for us so I sometimes go to MND...
  6. Thread: My new blog post

    by Susan
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    My new blog post

    I can't seem to find the bit where I was grovelling about sharing my blog post so I have to just give you the link this time.

    http://www.toomanycandles.co.uk/cat/lets-talk-about-our-cat/ It...
  7. Thread: Rock Bottom

    by Susan
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    3,822

    If you want to go back to your family please do. ...

    If you want to go back to your family please do. I am sure they would love it and you can get a lot of help in your home.

    Have you been in touch with MND Connect at all? They are really helpful....
  8. Thread: Gordon Aikman

    by Susan
    Replies
    6
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    2,518

    He was an absolute inspiration. He did an...

    He was an absolute inspiration. He did an enormous amount to raise awareness of MND and the amount of money he raised was staggering.

    It is tragic that he died at only 31.
  9. Thread: Stairlift

    by Susan
    Replies
    33
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    15,425

    We were told to move house as the Council has no...

    We were told to move house as the Council has no money. We aren't but we are aiming for a through floor lift before I need it.

    My OT is fantastic so if it turns out I stop being able to climb...
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    I am so sorry to hear this. You have all had...

    I am so sorry to hear this. You have all had such a hard time. My condolences to you and all your family.
  11. Thread: Bladder problems

    by Susan
    Replies
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    8,563

    LittleO, I am so sorry to hear about Bakerchick....

    LittleO, I am so sorry to hear about Bakerchick. She was a really great contributor to the forum.

    I hope you can take comfort in the fact she went peacefully but it still must seem a really...
  12. Thank you Ellie, those look really good. I...

    Thank you Ellie, those look really good. I definitely want one in the future as my legs get worse. My husband has keenly ordered a low exercise bike that he reckons he can use too and it should be...
  13. Thanks Barry That looks really good. And easy...

    Thanks Barry

    That looks really good. And easy to get on.
  14. Does anyone have an exercise bike to use at home?

    We have a high folding one which I have been using for months. Sadly, in the past couple of days I can only get on if my husband lifts my leg over the bar which isn't ideal.

    So I wondered if...
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    I am so sorry Poppy. This forum is fantastic...

    I am so sorry Poppy. This forum is fantastic every time you have a question. There are some really lovely people on here. Have you got an OT, physiotherapist and other professionals in place yet? ...
  16. Thread: New Blog post

    by Susan
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    808

    New Blog post

    It has taken me too long to write this but I have a new blog post looking at how things have changed since I was diagnosed. Quite a lot it has to be said. But there is SO much I can still do. ...
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    I am so sorry to hear this. It is so hard to...

    I am so sorry to hear this. It is so hard to lose a beloved father. My thoughts are with you
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    I have read your story too and loved it. I...

    I have read your story too and loved it. I really enjoyed all the practical jokes you concocted. You have had so much going on in your life and I love the idea you are fitting in as much as you can...
  19. Thread: Jorrocks

    by Susan
    Replies
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    2,539

    How are you getting on now? I love this forum as...

    How are you getting on now? I love this forum as there is always someone to answer questions. And the support is fantastic.
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    Hi Pen It must feel really scary at the...

    Hi Pen

    It must feel really scary at the moment. This is a fantastic forum where people really understand what you are going through. But wait for the diagnosis. It does sound like MND but it...
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    Oh BC, I am so sorry you feel this way. I...

    Oh BC, I am so sorry you feel this way.

    I also loved food and cooking so much. Weirdly I don't mind too much but I can still eat soft stuff for now. It is so hard to accept changes and after...
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    I would definitely agree Barry. It is hopelessly...

    I would definitely agree Barry. It is hopelessly unfair that it is a lot easier to get stuff when you are working age. And I really don't think Motability should have a cut off age.

    It still...
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    I always feel a bit iffy doing this but I finally...

    I always feel a bit iffy doing this but I finally have a new blog post. I am not convinced I mention MND at all but I was so excited to get my lovely new motabilty car that it is all car related. ...
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    Hi Barbara I would have a PEG fitted as soon...

    Hi Barbara

    I would have a PEG fitted as soon as possible too. I had mine done at the end of August and it is fantastic for liquids. I am pretty useless at thin drinks so it really is worth...
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    That is good news Trooker. Less rocking with the...

    That is good news Trooker. Less rocking with the new machine sounds much better and better still that your uncle seems better. (Too many betters there - sorry)

    Do you have Andy as his MND nurse...
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