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  1. Thank you for that. I see the MNDA research...

    Thank you for that.

    I see the MNDA research director was quoted - interesting to see nicotinamide "tagged"

    Warmly
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    Good afternoon Iain Welcome - I am also sorry...

    Good afternoon Iain

    Welcome - I am also sorry to hear about your diagnosis and it sounds like you are being very sensible about it.

    I have little to add to the above as our daughters are older,...
  3. Thread: update...

    by nunhead_man
    Replies
    28
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    2,396

    Hi Lynne Thank you for the information and...

    Hi Lynne



    Thank you for the information and also you Ellie in relation to Sheffield - it was already on our list.

    We have a hesitation in that my model for moving in later years was that of...
  4. Thread: update...

    by nunhead_man
    Replies
    28
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    2,396

    Hi Ellie, No it is not a touchscreen - I am...

    Hi Ellie,

    No it is not a touchscreen - I am using it on a PC monitor - look for HP ZR24W - which has a flat bezel but has controls for the screen on the right-hand side which means I cannot mount...
  5. Thread: Flail arm

    by nunhead_man
    Replies
    9
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    641

    Hello Happy Chappy To both questions the...

    Hello Happy Chappy



    To both questions the answer is neither, because I am not sure either is sensible.

    I am not sure the TENS machine will help much with those muscles that do not have a...
  6. Thread: update...

    by nunhead_man
    Replies
    28
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    2,396

    Good morning Ellie Thank you - I think DIY...

    Good morning Ellie



    Thank you - I think DIY SOS is probably not sensible given our occupational therapist's and architects advice that is simply not possible to fit a big enough footprint on...
  7. Thread: update...

    by nunhead_man
    Replies
    28
    Views
    2,396

    Hi Ellie I picked up 1 of the Tobii units...

    Hi Ellie



    I picked up 1 of the Tobii units but I am having trouble getting on with it - the physical unit does not stick to my current screen very well and perhaps because of that the software...
  8. Thread: Flail arm

    by nunhead_man
    Replies
    9
    Views
    641

    Hi Happy Chappy Thank you - do keep posting...

    Hi Happy Chappy

    Thank you - do keep posting here to help



    My arms do not flail at the moment as I have some musculature left in both shoulders and arms - my left hand is quite badly damaged...
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    Good afternoon Doug Thank you for thank you...

    Good afternoon Doug

    Thank you for thank you again!



    I am not quite sure what you mean by issues - I have not met all the trustees yet only the new ones elected this time, plus the Chair and...
  10. Replies
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    Good morning all Thank you for your...

    Good morning all

    Thank you for your congratulations - I hope I can do some good in this role

    Warmly
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    Good morning Barry Thank you for your...

    Good morning Barry

    Thank you for your congratulations.



    I was looking for you and wondered if something like that stop you attending - I hope we can meet at some other time.

    Prof Shaw...
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    Elected as trustee

    Good afternoon to you all

    I am not sure how far the news has travelled, but I just wanted to say thank you very much for all of you that voted for me in relation to becoming a trustee of the MND...
  13. Thread: Flail arm

    by nunhead_man
    Replies
    9
    Views
    641

    Good afternoon Happy Chappy At least they did...

    Good afternoon Happy Chappy

    At least they did not call it. "man in a barrel syndrome" which is what I was told by one person who saw me when my left arm started to go!!!

    Essentially, I believe...
  14. Thread: Good news

    by nunhead_man
    Replies
    35
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    1,566

    Good afternoon Lynne I too am glad you are...

    Good afternoon Lynne

    I too am glad you are sorted out and take it easy on the road - watch out for cyclists!

    Warmly
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    Hi Ellie, No, I did not - as Doug says...

    Hi Ellie,



    No, I did not - as Doug says above, it seems to hark back to the epidemiological** Doll (sp?) studies concerning the link between smoking and cancer.

    Err...
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    Good morning Barry Yes, I will be there,...

    Good morning Barry

    Yes, I will be there, although arriving quite late on Friday night as I have a rather complicated weekend - please make yourself known to me if you can

    Warmly
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    Good afternoon Thank you for saying I should...

    Good afternoon

    Thank you for saying I should have posted this because my learning from this forum had suggested it was misleading.

    Perhaps an email to somebody other - the director, perhaps -...
  18. Thread: Sandpiper

    by nunhead_man
    Replies
    11
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    1,107

    Hello and welcome Sandpiper Catching up from...

    Hello and welcome Sandpiper

    Catching up from the back as usual , so able to say I agree with everything said above!

    In particular, you may find things here that you will not find in your local...
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    MND as a multistage process

    From my Twitter feed from Kings I think

    Mind the wrap - it is a very long URL
    ...
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    Hi Dina Can I add my two pennies worth of...

    Hi Dina

    Can I add my two pennies worth of encouragement to carry on grumbling as much as you want.

    It had not occurred to me the losing my arms would affect my ability to hug and as this is one...
  21. Thread: update...

    by nunhead_man
    Replies
    28
    Views
    2,396

    Hi Kayleigh What an interesting idea - I...

    Hi Kayleigh



    What an interesting idea - I will try and find out who their agents are!

    Actually it was this bloke that got me thinking about a project with his programme DIY SOS -...
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    UK Biobank reports research

    Good morning all

    For various reasons, we have been participating in the UK Biobank database collection process and this includes yesterday going to their Reading centre and having a multiplicity...
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    Hi Broostine I quite understand why you...

    Hi Broostine



    I quite understand why you are upset - a diagnosis of motor neurone disease always upsetting both to the person living through it and the person supporting them.

    Do you happen...
  24. Thread: update...

    by nunhead_man
    Replies
    28
    Views
    2,396

    Hi Lynne Thank you - planning is my stock...

    Hi Lynne



    Thank you - planning is my stock in trade from my working life, so I tend to run private projects like this one alongside the projects we run for our clients.

    And strangely those...
  25. Thread: update...

    by nunhead_man
    Replies
    28
    Views
    2,396

    Good morning Okay – excitement over. The...

    Good morning

    Okay – excitement over.

    The house we were looking would require me to run a substantial building project to get it into shape.

    Also, I may be two or three years away from...
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