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Type: Posts; User: wooz

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  1. probably not, probably a brain tumour

    probably not, probably a brain tumour
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    unfortunately I was 34 when I was diagnosed so it...

    unfortunately I was 34 when I was diagnosed so it can happen. Sorry to hear about your situation, try and stay positive
  3. Thread: Peg seepage

    by wooz
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    5,588

    don't worry about the air bubble, its just the...

    don't worry about the air bubble, its just the wind trying to escape ;)
  4. Thread: Frightened

    by wooz
    Replies
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    5,077

    I have been using bipap full time for over a...

    I have been using bipap full time for over a year, find it a good thing ;) don't worry about it!
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    speak to your gp and see if you fall under the...

    speak to your gp and see if you fall under the care of Phyllis tuckwell hospice in Farnham? They have looked after my needs for over five years!
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    dragon software is superb, takes time to get used...

    dragon software is superb, takes time to get used to it but then brilliant! Make sure you invest in a top quality microphone, makes the experience even better!
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    where r u based, is it Guilford way?

    where r u based, is it Guilford way?
  8. Thread: The Peg or not

    by wooz
    Replies
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    5,987

    I have a rig fitted, best thing!

    I have a rig fitted, best thing!
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    18,063

    have you asked for a spare bipap? This is what I...

    have you asked for a spare bipap? This is what I have!
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    what about using smartnav? if she has good head...

    what about using smartnav? if she has good head movement this could be the answer
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    speak to the mnda as I know they can supply a...

    speak to the mnda as I know they can supply a closomat toilet. Also try Contour Showers for the equipment, much nicer the typical white sterile equipment on the market! Also make sure the shower has...
  12. Thread: reading aids

    by wooz
    Replies
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    6,519

    can he use the computer? I use the kindle app to...

    can he use the computer? I use the kindle app to read books!
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    Sudafed nasal spray!

    Sudafed nasal spray!
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    ask for a nasal tips mask, much more comfy

    ask for a nasal tips mask, much more comfy
  15. Thread: sickness

    by wooz
    Replies
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    2,066

    sickness

    does anyone have sickness as a symptoms of mnd?
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    I think certain parts of the NHS are hugely...

    I think certain parts of the NHS are hugely underrated, great news
  17. Thread: Reliance on NIV

    by wooz
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    1,566

    Reliance on NIV

    i think I have hit the point of 100% reliance on my NIV, Does anyone else feel the same?? Any tips or advice on this? BTW, I am still eating the majority of my food orally, thanks
  18. Thread: Body drier

    by wooz
    Replies
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    12,923

    we have the altro flooring. My advice is not to...

    we have the altro flooring. My advice is not to go for the beige colour as it always looks dirty!
  19. Thread: swallowing

    by wooz
    Replies
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    5,493

    I have a RIG fitted which does the same job,...

    I have a RIG fitted which does the same job, however only had a local. Needs to be changed every six months but its very easy to change, done at home!
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    I have a PA/carer most days. They are here from...

    I have a PA/carer most days. They are here from 8am to 5pm. They do most things for me including personal care, making lunch / refreshments, stock take all my medical supplies and tablets, washing...
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    I have been very impressed. MNDA have funded...

    I have been very impressed. MNDA have funded riser recliner, feeding arm via OCE, closomat, electric wheel chair, smartnav for PC etc
  22. Thread: Shavers

    by wooz
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    7,126

    I taught my wife to shave me, much quicker than...

    I taught my wife to shave me, much quicker than struggling yourself
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    can you lie on your side? I found this made it...

    can you lie on your side? I found this made it alot easier
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    i have the H system installed, terrific!

    i have the H system installed, terrific!
  25. Thread: Advice welcome

    by wooz
    Replies
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    5,370

    MNDA funded my closomat toilet. Don't forget to...

    MNDA funded my closomat toilet. Don't forget to include extra strong joists for when/if you need ceiling hoist!
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