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Type: Posts; User: Lynne K

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  1. Replies
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    The Salsa Mini looks fab in it's turning circle....

    The Salsa Mini looks fab in it's turning circle. I have got a Spectra XTR2. It's not easy manoeuvring indoors. I've scraped several things and took a little piece out of the bottom drawer of my chest...
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    Hi Rafiksq, I'm sorry about your wifes difficult...

    Hi Rafiksq, I'm sorry about your wifes difficult years and that ALS has been hanging over her head since her mum passed with it. She could have asked for genetic testing to at least rule out or...
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    Hi Helen, welcome to our forums. You have...

    Hi Helen, welcome to our forums. You have certainly come to the right place for help, advice and support. I'm sorry about your mums more rapid decline than expected since last March. I've read about...
  4. Thread: Carol

    by Lynne K
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    Hi Carol, welcome to our forum. I'm sorry about...

    Hi Carol, welcome to our forum. I'm sorry about your husbands passing in November. You have certainly had a horrible couple of years. It's good that you go to a day hospice. Do you have carers or...
  5. Hi Kjen, sorry about your husbands diagnosis....

    Hi Kjen, sorry about your husbands diagnosis. Great that you found this forum and had the courage to join. As others have said it's a friendly helpful place to come, share, ask questions and learn a...
  6. Thread: Good morning

    by Lynne K
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    808

    I've collected my virtual hug. Thank you Deb,...

    I've collected my virtual hug. Thank you Deb, Lynne :)
  7. Thread: Good morning

    by Lynne K
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    Big hugs from me Dina, plus one real one that I...

    Big hugs from me Dina, plus one real one that I owe from when we met at Redbank the other week. Lynne x
  8. Thread: Good morning

    by Lynne K
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    808

    Hi Dina and Dug. A very weary Lynne here but...

    Hi Dina and Dug. A very weary Lynne here but lovely to hear half full glass and smiles. Pinks passing was sad and that feeling lingered last night so I put one of the Netflix series on that I've been...
  9. Thread: Pinkelle 💕

    by Lynne K
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    If Pinkelle is Eleanor then I'm extremely sorry...

    If Pinkelle is Eleanor then I'm extremely sorry for her passing because of this bl***y cruel disease. Thank you for posting. I wish her peace and hope that her family are ok. Lynne
  10. Thread: Rch4

    by Lynne K
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    Hi Leo. Thanks for uploading your mums scores....

    Hi Leo. Thanks for uploading your mums scores. The chart looks like ot has slowed down jer decline considerably if the estimate without the drug is accurate. I hope that the study proves it will be...
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    Sounds good about working from home and that you...

    Sounds good about working from home and that you can still drive. Lynne
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    Yea, Gloslad. I was similarly slowly losing my...

    Yea, Gloslad. I was similarly slowly losing my ballance for 4 years. I too, like lots of other people on this forum, had an active life, walking hills and mountain scrambling (for those with no hill...
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    Hi Gloslad, we all cannot say that you have MND...

    Hi Gloslad, we all cannot say that you have MND or not. But the tests you've had sound to a non expert that you don't have MND. I don't know whether or not signs are in our brains and spinal fluid...
  14. Thread: hi

    by Lynne K
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    Great thought for the day Doug. Bring it on....

    Great thought for the day Doug. Bring it on. Lynne :)
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    Hi Vix, so sorry that you have had to join us...

    Hi Vix, so sorry that you have had to join us with your husbands recent diagnosis. You have already had lots of good advice so I won't overload you with more. But I will say how important it is for...
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    Hi Pen.' I'm also sorry that your friends family...

    Hi Pen.' I'm also sorry that your friends family are not in touch. They obviously don't know how much of yourself went into caring for your friend. It's nice to hear from you after several months. I...
  17. Thread: Cbd

    by Lynne K
    Replies
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    791

    Aha, Johnboy, Tramadol was the best for me You...

    Aha, Johnboy, Tramadol was the best for me
    You reminded me of the name that I couldn't remember earlier. I have a box so will check it's expiry date and if it's in date I'll take some tonight and...
  18. Thread: Cbd

    by Lynne K
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    791

    Hi KD1, I have no experience of CBD but I did get...

    Hi KD1, I have no experience of CBD but I did get other drugs in the past before MND to ease my pain and help me to sleep. A low dose of amitriptilyne about 10mg (not sure if I've spelled it...
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    Sorry for slow response Vicky. I've been taking...

    Sorry for slow response Vicky. I've been taking Rilozone since November 2017. Lynne
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    You've already got good advice MMW but just a...

    You've already got good advice MMW but just a little message to say that I agree with leaving a little polite note so it's a learning opportunity for the badly parked driver. Lynne
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    Oh dear. Hope that things ease so that you can...

    Oh dear. Hope that things ease so that you can sleep better. Lynne
  22. Thread: Ibudilast

    by Lynne K
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    Ibudilast is now being put on a 2b-3 trial...

    Ibudilast is now being put on a 2b-3 trial according to ALS News. They are recruiting now for people that haven't had their MND diagnosis for more than 18 months. Any of you that are in the US please...
  23. Thread: Last message

    by Lynne K
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    Hi Sky. Smashing news and thanks. Lynne

    Hi Sky. Smashing news and thanks. Lynne
  24. Thread: house

    by Lynne K
    Replies
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    Hi Ben. Does your landlord know that you have...

    Hi Ben. Does your landlord know that you have MND? Good luck speaking them about a hoist. If they aren't happy with this then contact your local housing office for an urgent adapted bungalow or flat....
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    Hi Jo, welcome to our forums. I'm sorry that I...

    Hi Jo, welcome to our forums. I'm sorry that I don't have any knowledge of your request but I just wanted to wish you good luck for getting your husbands OT to sort out what's needed quickly. Lynne
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