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Type: Posts; User: Tecwyn

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    Thank you Ellie for your reply, I think I could...

    Thank you Ellie for your reply, I think I could well be suffering from a spot of anxiety. Dr just said to go back if muscle pains continue and Neuro just reassured that it was not familial MND but...
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    Hi all, hope everyone here is keeping well and...

    Hi all, hope everyone here is keeping well and maintaining a positive attitude. My dad is currently declining but thankfully at what appears to be a slow pace, still walking, talking and eating but...
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    Thanks Terry, no not mentioned yet as difficulty...

    Thanks Terry, no not mentioned yet as difficulty only come on last few days
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    Thank you for all previous advice, alongside...

    Thank you for all previous advice, alongside speech problems my dad now has some difficulty in swallowing most foods and is now only eating protein shakes and some ice cream this development came on...
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    Hi, I'm not meaning to be intrusive but is there...

    Hi, I'm not meaning to be intrusive but is there anyone who can provide some insight into how long it takes for the voice to go when hoarseness sets in and what is the most comfortable way of...
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    Some absolutely fantastic information, thank you....

    Some absolutely fantastic information, thank you. A lot of what you say makes so much sense, its people with your thought process that will beat the disease.
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    Some very insightful information there, you...

    Some very insightful information there, you really are doing some good research in this area, keep up the good work. I wonder what the link is between football and MND as there does seem to be...
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    Onein400.. You seem very knowledgable in the...

    Onein400.. You seem very knowledgable in the genetic side of things, please would it be possible to elaborate on the following especially the part about it NOT being dominant/recessive inheritance
    ...
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    Thanks onein400, some interesting information. I...

    Thanks onein400, some interesting information. I happen to agree with what you are saying as it makes sense but still I think some reserve needs to be in place when educating the public as any...
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    Thank you Lynne, some very wise words and...

    Thank you Lynne, some very wise words and thoughts there, hopefully my dad can learn to stop thinking of the future too much
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    Ha, yes I can imagine! I'm 31 and don't live with...

    Ha, yes I can imagine! I'm 31 and don't live with parents but really aim to be a big support to them. Do you worry at all about your children if they ever have any sort of minor illness that could be...
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    The twitching thing worries myself as there are...

    The twitching thing worries myself as there are many stories on here of people noting this as the first symptom, have also read that twitches are common but don't know if there is any difference with...
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    Yes good advice, what will be will be I guess,...

    Yes good advice, what will be will be I guess, putting it into practice is harder, although I know that I have to stop the worry and be strong for my parents
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    Without being too intrusive, please can I ask if...

    Without being too intrusive, please can I ask if any of your children went through the same thoughts and emotions as I have mentioned and am going through? and how they have managed to cope?

    lots...
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    Thank you Ellie, I may just do that. As you...

    Thank you Ellie, I may just do that.

    As you can probably tell, I am scared at the minute for primarily how my dad will progress and whether there is now a faulty gene within the family.
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    Going by observing my dad then I would say that...

    Going by observing my dad then I would say that the only definite symptoms are muscle wastage and weakness resulting in falling
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    Thank you for the kind words, still finding it...

    Thank you for the kind words, still finding it hard to believe that this isn't a genetic disease, if it wasn't I think there would be more clusters around certain occupations/locations?

    If 5000...
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    Thank you Terry, yes a lot to come to terms with...

    Thank you Terry, yes a lot to come to terms with unfortunately

    all the best
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    Thank you Ellie, it's all raw at the minute and...

    Thank you Ellie, it's all raw at the minute and wrestling with thoughts on how my dad is going to deal with it and how to move on with a slight chance I may get it, hopefully things will ease and we...
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    Thank you for replies, I will be using this forum...

    Thank you for replies, I will be using this forum as a source of support to help my dad. I maybe need to put this genetic link at the back of my mind so as to be strong for my parents I think.
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    Hi, I have the exact same symptoms, almost...

    Hi, I have the exact same symptoms, almost identical! mine came on a few days after my dads diagnosis so maybe anxiety? for the record I too have been a little worried especially after my dads...
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    Father diagnosed and genetics

    Hello to everyone here, pleased to meet you.

    Unfortunately my father has recently been diagnosed and it's a big shock. I have a few questions if possible please and please excuse my ignorance and...
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