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  1. Thread: update...

    by Ellie
    Replies
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    2,184

    Hmmm, not ideal but worth trying to find a way to...

    Hmmm, not ideal but worth trying to find a way to mount it centrally, allowing for those right side buttons by building some sort of buffer?



    That software is just the Tobii drivers and...
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    Hi Debbie. Thinking of you and hope you're...

    Hi Debbie.

    Thinking of you and hope you're recovering well??

    Can't but think the leg plaster must be unbearable in hot weather :(

    1048


    Love Ellie.
  3. Thread: Good news

    by Ellie
    Replies
    35
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    1,227

    1047

    1047
  4. Thread: update...

    by Ellie
    Replies
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    2,184

    Excellent point Andy - if you're thinking of...

    Excellent point Andy - if you're thinking of relocating, you need to know what MND services will be available to you before moving.

    I know folk here are well looked after in the Sheffield MND...
  5. Thread: Hello folks

    by Ellie
    Replies
    8
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    141

    Hi Iain and a warm welcome to you. My kids...

    Hi Iain and a warm welcome to you.

    My kids were 3 and 5 at my diagnosis and, right from the start, we were upfront with them, using age appropriate language - that's how we decided to do it and...
  6. Thread: update...

    by Ellie
    Replies
    28
    Views
    2,184

    Is it a touchscreen? The adhesive on the...

    Is it a touchscreen? The adhesive on the magnetic strips won't stick to a touchscreen surface. If I use the 4C with a tablet, I use BluTack, or similar, to hold it in place as it's only for...
  7. I am so pleased for you both Wailywoo that things...

    I am so pleased for you both Wailywoo that things are starting to improve - it can be very hard to see the wood for the trees when there is so much happening and so much to do.

    I guess it's...
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    Notwithstanding your long-suffering wife IS fed...

    Notwithstanding your long-suffering wife IS fed up with you and your antics, you should drink water after massages, not only to help flush out toxins, but massages can lead to dehydration - a foot...
  9. Replies
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    Yes Glos, Baclofen will reduce your spasticity,...

    Yes Glos, Baclofen will reduce your spasticity, which may improve your gait - if your muscle tone is high, it makes for less fluid / natural leg movement, affecting your gait.

    As I don't know if...
  10. Thread: Silverstone

    by Ellie
    Replies
    39
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    2,004

    Good to hear the coconut oil is working well,...

    Good to hear the coconut oil is working well, Barry.

    Keep up the recovery!

    Love Ellie.
  11. Thread: Heartbroken

    by Ellie
    Replies
    27
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    2,378

    Mick's funeral is today and his biker pals will...

    Mick's funeral is today and his biker pals will be there for him and his family - a touching send off to an avid biker....

    I'm sure Shrew will take some comfort that we're all thinking of her on...
  12. Thread: Broken wrist

    by Ellie
    Replies
    9
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    525

    Sue, I'm so sorry you broke your wrist whilst...

    Sue, I'm so sorry you broke your wrist whilst caring for Steve - it not only shows how precarious a carer's role is but also shows the impact on the person with MND when their primary carer is out...
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    Hi Glos, I apologise, I did say I wouldn't...

    Hi Glos,

    I apologise, I did say I wouldn't bombard you but...

    I just reread your first post and wondered - did anyone say anything about having high muscle tone (spasticity) in your leg...
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    Hi Hayls & welcome to the Forum but sorry you've...

    Hi Hayls & welcome to the Forum but sorry you've had to join.

    Glad the Sertraline is working for your EL.

    If you feel up to it, feel free to post in the Introduce Yourself sub-forum so people...
  15. Thread: Flail arm

    by Ellie
    Replies
    9
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    588

    Welcome to the Forum, Happy Chappy. As Terry...

    Welcome to the Forum, Happy Chappy.

    As Terry said, try keep your joints moving, even passively if you can't manage it actively, but don't exercise to the point where it aches or takes long for the...
  16. Thread: Good news

    by Ellie
    Replies
    35
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    1,227

    Oh that's uplifting news for you Lynne :cool: ...

    Oh that's uplifting news for you Lynne :cool:

    Wishing you many happy adventures.

    Love Ellie.
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    Congrats Andy and well deserved!! Love Ellie.

    Congrats Andy and well deserved!!

    Love Ellie.
  18. Replies
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    Yes me too, it means I can't use my eye gaze to...

    Yes me too, it means I can't use my eye gaze to explain what's so funny or chat for quite some time :D:D
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    Would you give the Citalopram another try Terry,...

    Would you give the Citalopram another try Terry, half a tablet even, as you said, given the side effects are usually transient?

    I hate the thoughts of you missing out socially :(

    Love Ellie.
  20. Replies
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    Hi Dina, I'll give you my experience of my...

    Hi Dina,

    I'll give you my experience of my mild Emotional Lability (aka PBA PseudoBulbar Affect)

    I've the 'laughing type' too, which, if I could choose to have either the laughing or crying...
  21. Replies
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    Oh Glos, I am so sorry and can understand why...

    Oh Glos, I am so sorry and can understand why it's all a blur for you and probably for your wife too.

    It'll take a while for it to sink in and the fog to clear, so I won't overwhelm you by saying...
  22. Thread: Struggling

    by Ellie
    Replies
    8
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    587

    Hi Mama Rics, I am so sorry you're feeling...

    Hi Mama Rics,

    I am so sorry you're feeling like this.

    I can only echo the advice already given but would stress that it's not OK for your husband to demand that you, and you alone, should care...
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    Dina, I'm sorry but I copied and pasted your...

    Dina,

    I'm sorry but I copied and pasted your post out of Mama Ric's thread as I am sure you wouldn't want this sensitive topic to go off point and upset Mama Rics - I hope you are not...
  24. This MND Research blog is an update from a...

    This MND Research blog is an update from a clinical trial of Truimeq, a repurposed HIV drug.

    https://mndresearch.blog/2019/07/17/could-mnd-be-treated-by-hiv-drugs/

    Love Ellie.
  25. Replies
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    All the best Glos. Hope you get even an...

    All the best Glos.

    Hope you get even an inkling as to what's going on with you.

    One thing to remember is that you're going to a very good & experienced Neurologist, which is great.

    Don't...
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