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  1. Replies
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    Great to see you all still on the forum folks!!...

    Great to see you all still on the forum folks!!
    It's been a long time but I'll be back from time to time again.
    Life is good for me again now so it's pay back time. I'm ready to help at the local...
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    Oh Pen. What you're expressing happened to my...

    Oh Pen.
    What you're expressing happened to my dear, previously very affectionate husband and me. I was his sole carer so can't compare things in quite the same way but I remember him coming home...
  3. Thread: Ellie

    by Nettie B
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    Wow. Looks like I missed something to...

    Wow. Looks like I missed something to celebrate!!! Great news and God bless you both!!!
    XXXX Nettie
  4. Thread: Ellie

    by Nettie B
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    Hear, hear to all of you. Both of you, Ellie and...

    Hear, hear to all of you. Both of you, Ellie and CC were so helpful to my Trevor who came to the end of that journey two and a half years ago, and to me, trying my darndest to support him along it....
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    That was asking for trouble Terry!! (That's...

    That was asking for trouble Terry!! (That's answering your initial posting on this thread, for clarification).
    Nettie ��
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    What an amazing g price of kit Terry! Nettie XX

    What an amazing g price of kit Terry! Nettie XX
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    I'm glad you both know about the stuff on the...

    I'm glad you both know about the stuff on the roof of the mouth. I wish I'd realised what was going on at the time. Mind you, it didn't seem to have bothered Trevor at the time. Input from the Neuro...
  8. Thread: Need a laugh?

    by Nettie B
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    27,845

    You don't change do you Terry? .... Thank...

    You don't change do you Terry? .... Thank heavens! That's so funny!!!
    X Nettie
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    Have you both checked the roof of your mouths...

    Have you both checked the roof of your mouths folks? Trevor used to clean his teeth really well and I had no need to check his mouth care. He had been fully PEG fed for several months before he had...
  10. Dear Julip. I can add nothing to all the...

    Dear Julip. I can add nothing to all the wonderful support, genuine empathy and advice that the members of the forum have given. I was in your shoes three years ago when my dear fit, healthy, dynamic...
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    Wendy's spot on. We carers take on one more...

    Wendy's spot on. We carers take on one more little thing extra after another till we realise that we're completely overwhelmed.

    This is where this forum scores top points ... Someone always comes...
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    Hi Chelsea. My husband had MND, starting with...

    Hi Chelsea.
    My husband had MND, starting with swallowing and speech too but his limbs were affected a little later. As others have said there seems to be no pattern to this disease. I wonder if you...
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    Bless you Terry. Keep smiling pal. I'll never...

    Bless you Terry.
    Keep smiling pal.
    I'll never forget that MND meeting when Trevor and I heard a whirring sound behind us. I turned round to see you launching yourself into an upright position...
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    Oh Lorret. I well remember that awful phase. I...

    Oh Lorret.
    I well remember that awful phase. I felt so guilty when I was grumpy to Trevor. It must have been so upsetting for him although it was only on a couple of occassions.
    I phoned the GP...
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    This is amazing CC. I hope and pray that this...

    This is amazing CC.
    I hope and pray that this line of research and trials comes to something.
    There are some incredibly knowledgeable folks on this forum for whom I have always held tremendous...
  16. Thread: Communication

    by Nettie B
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    33,103

    Well Dude. No one could ignore that for sure!!

    Well Dude. No one could ignore that for sure!!
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    How come we never met your grandad Terry???? X...

    How come we never met your grandad Terry???? X Nettie
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    Very best wishes

    Just popping in to wish all of you as Happy a Christmas as at all possible. I really will be thinking of you!!
    I remember the last Christmas that Trevor enjoyed with my grandchildren. I'd bought him...
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    Failing any joy from your GP, Alfie's Mum, can...

    Failing any joy from your GP, Alfie's Mum, can you contact your Dietician/PEG nurse? He or she may well be round like a shot to check it out. Ours would have but I know we were very, very lucky with...
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    Just in case you're able to link in to us at the...

    Just in case you're able to link in to us at the moment Terry, I'm thinking of you and so would Trevor be if he could, bless him! You're a great guy and tirelessly help others on this forum. I'm sure...
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    Hi Ali and Chris. My Trevor had very bad...

    Hi Ali and Chris.
    My Trevor had very bad problems with drooling from very early on in his MND journey. Unfortunately we never did manage to find a solution for that that suited him for one reason or...
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    Jon, this is so hard for you ... emotionally,...

    Jon, this is so hard for you ... emotionally, practically...........
    You will get so much help and support from this forum. It's a wonderful, wonderful help to people like us, carers, family,...
  23. Thread: Hospice care

    by Nettie B
    Replies
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    10,532

    So sorry Reta. I've just read your post and feel...

    So sorry Reta. I've just read your post and feel for you. I've been there too and as others say, you are not alone . Keep sharing Reta. We're all here for you love.
    Nettie
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    Thinking of you Terry and hoping things will be...

    Thinking of you Terry and hoping things will be better than you expect.
    I well remember the communication problems and indignities! Trevor only had single days at the hospice so he didn't have all...
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    I find it incredulous that all those American...

    I find it incredulous that all those American Trump supporters (and indeed Trump himself) seem to have forgotten that all inhabitants of the USA , apart from the native Red Indians, are either...
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