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  1. Replies
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    I am sorry you are so anxious, Nigel - it must...

    I am sorry you are so anxious, Nigel - it must be difficult for you to sit back and think about other things.

    I really think you should see your GP, please make an appointment so you can discuss...
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    Tot, if the Neurologist is not an MND Specialist,...

    Tot, if the Neurologist is not an MND Specialist, you can always get a 2nd opinion at an MND Clinic which might give a clearer picture. I'm sorry you are in this "Is it or isn't it?" category.
    ...
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    When you say you got a "probable" diagnosis, Tot,...

    When you say you got a "probable" diagnosis, Tot, what was it exactly - probale what?

    Some of your symptoms are not ALS/MND symptoms and twitching can be benign or point to a host of other...
  4. Thread: TV programme

    by Ellie
    Replies
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    280

    Yes and the patient featured had a 6 month...

    Yes and the patient featured had a 6 month hospital stay following a trache whilst waiting for his care package to be sorted.

    https://www.bbc.co.uk/programmes/m000fjg7

    Love Ellie.
  5. Email Notification of New Private Messages Has Stopped Working.

    This function is currently not working​ - it was working at 10.13 yesterday but had stopped working by 15.15 and was not working at 12.00 today.

    I checked my Settings and this option is still...
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    Glad to hear at least some of your pain has...

    Glad to hear at least some of your pain has subsided, Terry.

    Love Ellie.
  7. Replies
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    Congrats on (finally!!) upgrading your desktop...

    Congrats on (finally!!) upgrading your desktop PC, Doug and successfully transferring your files - hope you can find them all now ;);)

    Hopefully you'll find Windows 10 better and easy to...
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    Woohoo Andy ! Everything crossed for hassle...

    Woohoo Andy !

    Everything crossed for hassle free completion.

    Love Ellie.
  9. Replies
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    B, his local hospice might offer him counselling,...

    B, his local hospice might offer him counselling, as well as providing other services not only for your dad, but for the family too.

    And please don't think of hospices as just places to go for...
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    Hi B and a warm welcome to the Forum. So sorry...

    Hi B and a warm welcome to the Forum.

    So sorry for your dad's diagnosis.

    I guess we all deal differently with the bombshell of the diagnosis of MND - some people dive right in and start...
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    Thanks.

    Thanks.
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    Welcome to the Forum, Mango. Sorry to hear of...

    Welcome to the Forum, Mango.

    Sorry to hear of your mother's diagnosis.

    If you don't hear about the nature of the CHC care package within the next few days, chase it up - the sooner it's in...
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    Hope you are all safe there, Sarah, and the WAV...

    Hope you are all safe there, Sarah, and the WAV isn't floating off down the street !!

    Love Ellie.
  14. Thread: ALS for Dummies

    by Ellie
    Replies
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    "You own the disease" I couldn't agree more,...

    "You own the disease"

    I couldn't agree more, Shaun.

    Because keeping positive is SO important, taking ownership and control of our MND is empowering - and that includes being confident enough...
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    Hi Admin, Perhaps you could tell whoever sent...

    Hi Admin,

    Perhaps you could tell whoever sent you the survey that there is an error in its 'clickabililty'.

    Question 11:

    1120

    It asks the participant to click ALL applicable options but...
  16. Thread: Voice Banking?

    by Ellie
    Replies
    6
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    598

    You might find this Info Sheet helpful, Lesley: ...

    You might find this Info Sheet helpful, Lesley:

    https://static.mndassociation.org/app/uploads/2017/05/19135029/07D-Voice-banking.pdf

    Love Ellie.
  17. Replies
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    Hi Ali, Sorry you find yourself in such a...

    Hi Ali,

    Sorry you find yourself in such a state of worry.


    Carpal Tunnel Syndrome can account for these physical changes.


    Yes, tongue fasciculations on their own can most definitely be...
  18. Thread: At peace now.

    by Ellie
    Replies
    8
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    So sorry to hear your sad news MamaRics. ...

    So sorry to hear your sad news MamaRics.

    Wishing you peace and strength over the coming weeks.

    Love Ellie.
  19. Thread: Stomach problem?

    by Ellie
    Replies
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    522

    A GP or nurse can palpate his abdomen and feel...

    A GP or nurse can palpate his abdomen and feel for impaction or, worst case scenario, he will be X-rayed.

    If it's constipation, a few Movicol (or similar) should do the trick and he may need to...
  20. Thread: Stomach problem?

    by Ellie
    Replies
    4
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    522

    Hi Chrissie. Any chance Douglas is constipated...

    Hi Chrissie.

    Any chance Douglas is constipated - nausea, stomach ache and swollen tummy are often signs of (bad) constipation. Has he an appetite?

    I do think it is one of the times to...
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    Hi Harry and welcome to the Band of Brother,...

    Hi Harry and welcome to the Band of Brother, Sisters, other identifiers and non-identifiers hanging out on the Forum.

    Sorry you've had the diagnosis.

    Love Ellie.
  22. Replies
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    Clever lady, your wife. You'll just have to...

    Clever lady, your wife. You'll just have to start accidentally dropping a dish or two and you may get a free pass :D

    Actually Shaun, consider your dishwashing chore as hydotherapy for your hands...
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    Hi Sarah, Even though we know we've a terminal...

    Hi Sarah,

    Even though we know we've a terminal illness, it is still utterly shocking to hear healthcare professionals talk about a prognosis and it sure does focus the mind !!


    That is...
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    Hi Shaun, Even if your nearest specialist MND...

    Hi Shaun,

    Even if your nearest specialist MND Clinic is a bit of a trek, it's worth going to for regular appointments, at least until you get to know what's what regarding local services.
    ...
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    Sorry to hear your mum had ALS, Nigel. Have...

    Sorry to hear your mum had ALS, Nigel.

    Have you been to your GP yet, given you've been worried about your symptoms for 2 months now?

    Take care.

    Love Ellie.
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