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Type: Posts; User: Jan

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  1. Thread: That conversation

    by Jan
    Replies
    24
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    9,038

    Reta I felt so pleased and most of all humbled...

    Reta I felt so pleased and most of all humbled that you came to see me, was such a lovely surprise to wake up and see you there, update on everything I shall be moving to a 24 hour hursing home on...
  2. Thread: That conversation

    by Jan
    Replies
    24
    Views
    9,038

    Thank you so much for your responses, hubbie has...

    Thank you so much for your responses, hubbie has just given me time in the garden whilst he was weeding, I know that when I am admitted I will be surrounded by caring people, although I am not...
  3. Thread: That conversation

    by Jan
    Replies
    24
    Views
    9,038

    That conversation

    I have had a rough few weeks, having moved house I had hoped to enjoy it a little while longer, I am now totally dependent on carers/husband to care for me. Shock visit at home yesterday from...
  4. Replies
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    6,408

    I guess I have been lucky, they delivered my...

    I guess I have been lucky, they delivered my indoor power chair on Thursday which replicates my push along chair for outside just 2 weeks after request went in, they also delivered my Sarah steady...
  5. Thread: Catheters

    by Jan
    Replies
    13
    Views
    5,002

    Catheters

    I think I want to go this route, I sit here and my day revolves around needing the loo but waiting for carers to come in and assist, hospice day is Wednesday and my MND nurse will be there, carers...
  6. Thread: Pain in the butt

    by Jan
    Replies
    24
    Views
    8,468

    I have recently developed a pressure sore which...

    I have recently developed a pressure sore which has opened up, just waiting for district nurse to come and change dressings. It is massively painful, and I cannot get comfortable at all. I am told...
  7. Replies
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    16,276

    I have had so many falls recently I am now banned...

    I have had so many falls recently I am now banned from even attempting to walk, my left leg has no strength left, cannot weight bear on it and my right leg will only hold me with someone else's help...
  8. Replies
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    My then neurologist wrote to my life insurance...

    My then neurologist wrote to my life insurance company 2 years ago, they paid out in full, bit of a bonus, you don't usually get to spend your own life insurance :)

    That's great news AM, will you...
  9. Thread: Chc

    by Jan
    Replies
    4
    Views
    2,080

    Chc

    I feel so fortunate and very very lucky. Last Wednesday the hospice completed forms for fast track CHC, by Thursday it had been approved and today we learnt that an agency had been appointed and...
  10. Thread: Cruising with MND

    by Jan
    Replies
    9
    Views
    3,526

    I only cruised before MND but do know that P&O...

    I only cruised before MND but do know that P&O sailing from Southampton have disabled cabins although they seem to sell out early, not sure about feeding but I am sure that they would be very...
  11. Thread: Tom

    by Jan
    Replies
    15
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    4,481

    Oh dear, so so sorry xxx

    Oh dear, so so sorry xxx
  12. Replies
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    5,848

    Due to go home tomorrow, pain relatively sorted,...

    Due to go home tomorrow, pain relatively sorted, appetite back and now on baclofen, that makes me pretty nauseous but they have given me a tablet to combat that. Proud of hubbie, he has done all the...
  13. Replies
    14
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    5,848

    Life in the hospice

    so I have been here since last Friday and things seem to be getting under control. I have crossed some big hurdles such as letting others bathe and dress me. Seem to be getting on top of pain in my...
  14. Thread: Rest bite

    by Jan
    Replies
    15
    Views
    4,568

    I am going to give it a go, I do have a Bi-pap...

    I am going to give it a go, I do have a Bi-pap machine and manage to sleep with it, this past weekend I lay on the bed at 3pm Saturday just for a few hours but did not wake until 6am Sunday! 15...
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    3,969

    Such a wonderful gesture! Well done Terry. I...

    Such a wonderful gesture! Well done Terry. I hadn't known about your family involvement with 9/11 CC, I love New York but haven't been back there since that awful day, I do hope that your family...
  16. Thread: Rest bite

    by Jan
    Replies
    15
    Views
    4,568

    Our hospice has gone down the same route,...

    Our hospice has gone down the same route, District nurse called them out to me last week, went to day hospice today and they want to admit me this Friday as I am in so much pain in my back and my SAT...
  17. Thread: Michaels Passing

    by Jan
    Replies
    21
    Views
    7,275

    Very sad news, wishing you peace in these...

    Very sad news, wishing you peace in these difficult times, you were such a good friend to Michael, a truly special person whose care and commitment shines through your posts, sending you big virtual...
  18. Thread: Michael

    by Jan
    Replies
    22
    Views
    7,671

    So sorry to read this, wishing you strength and...

    So sorry to read this, wishing you strength and love xxx
  19. Thread: GrannieAnnie

    by Jan
    Replies
    29
    Views
    9,215

    If not too late I would like my name to be added...

    If not too late I would like my name to be added please
  20. Thread: Lifeline pendant

    by Jan
    Replies
    5
    Views
    3,468

    I am in Ashford too, I have a wrist band and a...

    I am in Ashford too, I have a wrist band and a clip on fall detector supplied by the OT for Ashford Social Services, they paid for it and continue to pay for it too xx
  21. Thread: No longer a Fake

    by Jan
    Replies
    22
    Views
    7,651

    If you have Chrissie as your MND nurse you have...

    If you have Chrissie as your MND nurse you have an absolute angel in her, she is simply the best, sorry for your confirmed diagnosis but hopefully you will now get the support you need x
  22. Thread: Feeling down!

    by Jan
    Replies
    15
    Views
    4,427

    Hi Pinkelle, be kind to yourself, it's good to...

    Hi Pinkelle, be kind to yourself, it's good to cry and let your feelings out. Working is possible, I have worked all the time since diagnosis in August 2014 albeit in the last few months I have...
  23. Thread: Friends ha

    by Jan
    Replies
    13
    Views
    6,384

    I can totally relate to this, we moved to our...

    I can totally relate to this, we moved to our present home two years ago to be nearer our children, many old friends said they would visit, in all this time only a few have done so far, one has...
  24. Replies
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    5,678

    Contact the airline you are flying with and let...

    Contact the airline you are flying with and let them know you need assistance, when you arrive at the airport just inside whatever terminal you are travelling from go to the assistance desk and say...
  25. Thread: Communication

    by Jan
    Replies
    38
    Views
    33,814

    My assistive technology person came from the...

    My assistive technology person came from the hospital, provided me with a new iPad on loan, then the department gifted me the predictable app into my iTunes account, they also provided some training...
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